Article
Assisted dying
Care
Comment
Death & life
Suffering
5 min read

Why end of life agony is not a good reason to allow death on demand

Assisted dying and the unintended consequences of compassion.

Graham is the Director of the Centre for Cultural Witness and a former Bishop of Kensington.

A open hand hold a pill.
Towfiqu Barbhuiya on Unsplash.

Those advocating Assisted Dying really have only one strong argument on their side – the argument from compassion. People who have seen relatives dying in extreme pain and discomfort understandably want to avoid that scenario. Surely the best way is to allow assisted dying as an early way out for such people to avoid the agony that such a death involves?  

Now it’s a powerful argument. To be honest I can’t say what I would feel if I faced such a death, or if I had to watch a loved one go through such an ordeal. All the same, there are good reasons to hold back from legalising assisted dying even in the face of distress at the prospect of enduring or having to watch a painful and agonising death.  

In any legislation, you have to bear in mind unintended consequences. A law may benefit one particular group, but have knock-on effects for another group, or wider social implications that are profoundly harmful. Few laws benefit everyone, so lawmakers have to make difficult decisions balancing the rights and benefits of different groups of people. 

It feels odd to be citing percentages and numbers faced with something so elemental and personal and death and suffering, but it is estimated that around two per cent of us will die in extreme pain and discomfort. Add in the 'safeguards' this bill proposes (a person must be suffering from a terminal disease with fewer than six months to live, capable of making such a decision, with two doctors and a judge to approve it) and the number of people this directly affects becomes really quite small. Much as we all sympathise and feel the force of stories of agonising suffering - and of course, every individual matters - to put it bluntly, is it right to entertain the knock-on effects on other groups in society and to make such a fundamental shift in our moral landscape, for the sake of the small number of us who will face this dreadful prospect? Reading the personal stories of those who have endured extreme pain as they approached death, or those who have to watch over ones do so is heart-rending - yet are they enough on their own to sanction a change to the law? 

Much has been made of the subtle pressure put upon elderly or disabled people to end it all, to stop being a burden on others. I have argued elsewhere on Seen and Unseen that that numerous elderly people will feel a moral obligation to safeguard the family inheritance by choosing an early death rather than spend the family fortune on end of life care, or turning their kids into carers for their elderly parents. Individual choice for those who face end of life pain unintentionally  lands an unenviable and unfair choice on many more vulnerable people in our society. Giles Fraser describes the indirect pressure well: 

“You can say “think of the children” with the tiniest inflection of the voice, make the subtlest of reference to money worries. We communicate with each other, often most powerfully, through almost imperceptible gestures of body language and facial expression. No legal safeguard on earth can detect such subliminal messaging.” 

There is also plenty of testimony that suggests that even with constant pain, life is still worth living. Michelle Anna-Moffatt writes movingly  of her brush with assisted suicide and why she pulled back from it, despite living life in constant pain.  

Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder. 

Despite the safeguards mentioned above, the move towards death on the NHS is bound to lead to a slippery slope – extending the right to die to wider groups with lesser obvious needs. As I wrote in The Times recently, given the grounds on which the case for change is being made – the priority of individual choice – there are no logical grounds for denying the right to die of anyone who chooses that option, regardless of their reasons. If a teenager going through a bout of depression, or a homeless person who cannot see a way out of their situation chooses to end it all, and their choice is absolute, on what grounds could we stop them? Once we have based our ethics on this territory, the slippery slope is not just likely, it is inevitable.  

Then there is the radical shift to our moral landscape. A disabled campaigner argues that asking for someone to help her to die “is no different for me than asking my caregiver to help me on the toilet, or to give me a shower, or a drink, or to help me to eat.” Sorry - but it is different, and we know it. Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder.  

In Canada, many doctors refuse, or don’t have time to administer the fatal dose so companies have sprung up, offering ‘medical professionals’ to come round with the syringe to finish you off. In other words, companies make money out of killing people. It is the commodification of death. When we have got to that point, you know we have wandered from the path somewhere.  

You would have to be stony-hearted indeed not to feel the force of the argument to avoid pain-filled deaths. Yet is a change to benefit such people worth the radical shift of moral value, the knock-on effects on vulnerable people who will come under pressure to die before their time, the move towards death on demand?  

Surely there are better ways to approach this? Doctors can decide to cease treatment to enable a natural death to take its course, or increase painkillers that will may hasten death - that is humane and falls on the right side of the line of treatment as it is done primarily to relieve pain, not to kill. Christian faith does not argue that life is to be preserved at any cost – our belief in martyrdom gives the lie to that. More importantly, a renewed effort to invest in palliative care and improved anaesthetics will surely reduce such deaths in the longer term. These approaches are surely much wiser and less impactful on the large numbers of vulnerable people in our society than the drastic step of legalising killing on the NHS. 

Article
Creed
Politics
Suffering
Trauma
6 min read

Dear Kemi, about that lost faith

Who stands with us when we suffer?

Graham is the Director of the Centre for Cultural Witness and a former Bishop of Kensington.

Kemi Badenoch sits and talks.
Kemi Badenoch.
ARC.

Dear Kemi (if I may)

Lost faith is usually a sad tale. And you have told us how you lost yours. I hear your grandfather was a Methodist minister, and so as a young girl, you would pray, seeing answers from time to time for longer hair, good grades and the like. But when you heard the story of Elizabeth Fritzl, whose father Josef kept her captive underground for 24 years, repeatedly raping her, you began to ask why God did not answer Elizabeth’s prayers for release. And so you gave up on God.

Now I have real sympathy for you. I have struggled with this too. The Josef Fritzl story and the suffering he inflicted on his daughter is truly horrific. None of us find the problem of evil easy. In fact, I have never yet met a Christian who thinks they have solved it. Yet the remarkable fact is that many of us believe in God anyway. And it’s not because we haven’t thought deeply about it. Many people start with a simple faith in a God who answers prayers, and yet one day, they come across what seems like an anomaly – that some prayers don’t seem to find an answer.

Of course, you’re not the first to have stumbled upon the problem of unanswered prayer. For centuries, Christians have pondered deeply the strange persistence of evil in the world, from St Irenaeus to St Augustine, to Thomas Aquinas, to any number of modern theologians.

They all knew that not all prayers get answered – yet even more, they knew that this is not a marginal thing for Christians, it actually lies at the very heart of our faith.

On the top of every spire, on every altar of a church, around many Christian necks, is a cross. It recalls the excruciating death of an executed innocent man. It is the universally recognised symbol of Christianity, as recognisable as the Islamic crescent or the Jewish Star of David.

Christianity centres on this remarkable claim: that God allowed his Son Jesus to die a cruel and tortured death, and did not respond to his agonised prayer: “My God, my God why have you forsaken me?” All he got was silence. Nothing.

So unanswered prayer is not something that lurks at the margins of Christian faith as a guilty secret. It lies at the very heart of it.

And yet I still believe. Why?

Why does God not intervene to stop the suffering of the world? Why did not God not stop the holocaust? Why does he not stop the suffering of the people of Gaza? Or the Israeli hostages? Or people who suffer from debilitating depression? Or long-term mental illness?

The answer is I don’t know. And why should I? For all I know, God might stop all kinds of things from happening – by definition I don’t know about thing that don’t come to pass. Yet I have to assume that God does not intervene to stop the vast majority of the suffering we inflict on each other. The best I can say is that he seems to allow us to have our own way, giving us the courtesy of accountability for our own actions. As a conservative politician, keen to stress personal responsibility, you should know that more than anyone.  

Josef Fritzl was the cause of his daughter’s suffering, not God. Fritzl was himself the child of an alcoholic father who abandoned him when he was four-year-old and a manipulative and abusive mother who brought him up thereafter. Not that this excuses his crimes for a moment, but he was part of a chain of sin and suffering handed on from one generation to another that stretched back through his parents, their parents, back to the very beginning of human history and beyond. Evil and suffering are part of our world. Christianity knows about evil all too well.

All this might hint at an answer, yet it still doesn’t satisfy. It still doesn’t reduce the suffering. Trying to explain it doesn’t make it any easier to endure it. In fact, if what we Christians say about evil is true, we cannot explain it because evil literally makes no sense. It is the absence of sense, the absence of meaning. It has no point, because it is literally pointless.

The real reason we Christians continue to believe is not that we have a neat answer to it, nor because we haven’t thought about it, but because we know that, paradoxical as it may sound, God himself, in the person of Jesus Christ, knows what it is to pray for something and not get an answer. He has been there too. Somehow, mysteriously, he stands with Elizabeth Fritzl, with Israeli hostages, with Palestinians hungry for peace and food, and with us when we cry out and apparently get no answer. In those moments, we are not, in the end, alone.

And yet, there is more. Despite that fact that we cannot explain the tangled, dark mysteries of evil in the human heart, we have been captivated by a story that tells us it has been overcome. Yes, Jesus died. Yes, he felt abandoned by God his Father. Yet the way the story turned out, the evil done to him was not the last word. God overturned the worst that the human race could do, when the most remarkable thing happened - his cold, abused, bloodied and battered body stirred once more into life. Yet this was not a return to this weary life all over again, back into the maelstrom of suffering and pain that we know it to be, but through the other side into a form of life beyond the grave that cannot be destroyed. Jesus was not ultimately abandoned, even if he, like us, like Elizabeth Fritzl, felt like it at the time.

This is what we get – not a neat answer – for that we will have to wait – but the gift of hope that it will not always be like this, that the Resurrection of Jesus is a foretaste of the Resurrection of all things one day.

And what about what you called your ‘stupid’ little prayers about hair and boyfriends? Why did they get answered and others didn’t? Again, I have no idea. It does seem that from time to time, God does something weird, brings some unexpected healing, things turning out miraculously better than expected, an unforeseen delight. Yet these are just hints, small signs of the great miracle, the Resurrection and the defeat of death. They are hints that even though God will not unravel the moral fabric of the world by intervening every time we do something wrong, occasionally we are given a small sign that he has not given up on the world and will one day flood it with his presence. They are signs to remind you, me, that all the good things we receive each day - food, sunshine, rain, air to breathe – are not accidents but come from a God who gave them to us out of love, and that evil is the anomaly, not goodness. We are left with a question – would we rather a world where that kind of surprising & delightful event never happened? Or one where it occasionally did?

The Resurrection is the ultimate reason we believe. Not because we can explain evil. But because it tells us we are not alone in our suffering. Because it tells us that evil is real, but in the end, will be banished to the pit from which it came. And because the alternative, when we think about that deeply enough – a world where monsters like Josef Fritzl get the last word – where hope is whistling in the dark and evil wins - is intolerable.

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