Article
Assisted dying
Care
Comment
Death & life
Suffering
5 min read

Why end of life agony is not a good reason to allow death on demand

Assisted dying and the unintended consequences of compassion.

Graham is the Director of the Centre for Cultural Witness and a former Bishop of Kensington.

A open hand hold a pill.
Towfiqu Barbhuiya on Unsplash.

Those advocating Assisted Dying really have only one strong argument on their side – the argument from compassion. People who have seen relatives dying in extreme pain and discomfort understandably want to avoid that scenario. Surely the best way is to allow assisted dying as an early way out for such people to avoid the agony that such a death involves?  

Now it’s a powerful argument. To be honest I can’t say what I would feel if I faced such a death, or if I had to watch a loved one go through such an ordeal. All the same, there are good reasons to hold back from legalising assisted dying even in the face of distress at the prospect of enduring or having to watch a painful and agonising death.  

In any legislation, you have to bear in mind unintended consequences. A law may benefit one particular group, but have knock-on effects for another group, or wider social implications that are profoundly harmful. Few laws benefit everyone, so lawmakers have to make difficult decisions balancing the rights and benefits of different groups of people. 

It feels odd to be citing percentages and numbers faced with something so elemental and personal and death and suffering, but it is estimated that around two per cent of us will die in extreme pain and discomfort. Add in the 'safeguards' this bill proposes (a person must be suffering from a terminal disease with fewer than six months to live, capable of making such a decision, with two doctors and a judge to approve it) and the number of people this directly affects becomes really quite small. Much as we all sympathise and feel the force of stories of agonising suffering - and of course, every individual matters - to put it bluntly, is it right to entertain the knock-on effects on other groups in society and to make such a fundamental shift in our moral landscape, for the sake of the small number of us who will face this dreadful prospect? Reading the personal stories of those who have endured extreme pain as they approached death, or those who have to watch over ones do so is heart-rending - yet are they enough on their own to sanction a change to the law? 

Much has been made of the subtle pressure put upon elderly or disabled people to end it all, to stop being a burden on others. I have argued elsewhere on Seen and Unseen that that numerous elderly people will feel a moral obligation to safeguard the family inheritance by choosing an early death rather than spend the family fortune on end of life care, or turning their kids into carers for their elderly parents. Individual choice for those who face end of life pain unintentionally  lands an unenviable and unfair choice on many more vulnerable people in our society. Giles Fraser describes the indirect pressure well: 

“You can say “think of the children” with the tiniest inflection of the voice, make the subtlest of reference to money worries. We communicate with each other, often most powerfully, through almost imperceptible gestures of body language and facial expression. No legal safeguard on earth can detect such subliminal messaging.” 

There is also plenty of testimony that suggests that even with constant pain, life is still worth living. Michelle Anna-Moffatt writes movingly  of her brush with assisted suicide and why she pulled back from it, despite living life in constant pain.  

Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder. 

Despite the safeguards mentioned above, the move towards death on the NHS is bound to lead to a slippery slope – extending the right to die to wider groups with lesser obvious needs. As I wrote in The Times recently, given the grounds on which the case for change is being made – the priority of individual choice – there are no logical grounds for denying the right to die of anyone who chooses that option, regardless of their reasons. If a teenager going through a bout of depression, or a homeless person who cannot see a way out of their situation chooses to end it all, and their choice is absolute, on what grounds could we stop them? Once we have based our ethics on this territory, the slippery slope is not just likely, it is inevitable.  

Then there is the radical shift to our moral landscape. A disabled campaigner argues that asking for someone to help her to die “is no different for me than asking my caregiver to help me on the toilet, or to give me a shower, or a drink, or to help me to eat.” Sorry - but it is different, and we know it. Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder.  

In Canada, many doctors refuse, or don’t have time to administer the fatal dose so companies have sprung up, offering ‘medical professionals’ to come round with the syringe to finish you off. In other words, companies make money out of killing people. It is the commodification of death. When we have got to that point, you know we have wandered from the path somewhere.  

You would have to be stony-hearted indeed not to feel the force of the argument to avoid pain-filled deaths. Yet is a change to benefit such people worth the radical shift of moral value, the knock-on effects on vulnerable people who will come under pressure to die before their time, the move towards death on demand?  

Surely there are better ways to approach this? Doctors can decide to cease treatment to enable a natural death to take its course, or increase painkillers that will may hasten death - that is humane and falls on the right side of the line of treatment as it is done primarily to relieve pain, not to kill. Christian faith does not argue that life is to be preserved at any cost – our belief in martyrdom gives the lie to that. More importantly, a renewed effort to invest in palliative care and improved anaesthetics will surely reduce such deaths in the longer term. These approaches are surely much wiser and less impactful on the large numbers of vulnerable people in our society than the drastic step of legalising killing on the NHS. 

Article
Culture
General Election 24
Politics
4 min read

Ultra-processed politics fails to satisfy

No-hope manifestos, full of ugly policies, leave us craving something better.
Three piles of ready-meals sit on a shelf. One stack is blue, the next yellow and the third red.
Party food.
Nick Jones/Midjourney.ai

There are now less than two weeks to go before polling day, and the nation appears to have simultaneously reached the highest fever pitch of emotion and the absolute nadir of political scruple. The Tory campaign has been comically, awfully inept - announcements in the rain, D-Day, gambling fraud. The Labour campaign has been an odd blend of quasi-Confucian aphorisms (‘Stability is Change’…what is that!?) and a blank refusal to give much detail on any future plans and actions - almost offensive from a party that seems guaranteed to win a majority that would give it little resistance. The Lib Dem campaign has resembled a Centre Parks holiday, and I’m here for it!  

The recent Question Time of political leaders perfectly encapsulated the grim reality of this election campaign. The anger towards Rishi Sunak was palpable, and his pathological inability to not be defensive and snippy shone through. A total lack of any emotion was shown towards Kier Starmer (a void that again was filled with more anger towards Rishi Sunak), and his militantly practiced refusal to actually say anything of substance. Ed Davey was quite charming actually; but not enough to make the whole viewing process anything but depressing. 

Yet… 

This is our situation, and we must deal with it. This is OUR election, and WE MUST engage with it. Alastair Campbell - one half of the most listened to political podcast in the UK - regularly calls for compulsory voting. The ad campaign reminding people (especially young people) to register to vote has been incessant. Even the Archbishop of York has written an open letter in the Sunday Express encouraging everyone to register and to exercise their democratic duty. Why? What for? I find the entire cadre unappealing to the point of being odious. Reading the manifestos I was struck by two realisations: the space between so many of the policies was miniscule, and they were so bloody ‘ugly’.  

I don’t mean ugly like the loveless, jingoistic, cruel ramblings of Reform. The two main parties have produced manifestos that inspire no hope. They equate the fullness and completeness of the human social condition to the subtle movements of financial resources from one area to another. They are each proposing a almost identical economic foundation, with a few nods to the fact that ‘society’ and ‘human relations’ exist, like a Potemkin village designed to impress the visiting dignitary, ‘the voter’. Not only do they read like they were written by someone who cannot think five, maybe ten, years ahead; they read like they were written by someone who has a cold indifference to the transcendental concepts of ‘TRUTH’, ‘BEAUTY’, ‘GOOD’. The whole tenor of our political culture and conversation is the same three riffs on post-modern liberalism, played with dexterity and enthusiasm of a corpse. 

If you feel passionately about your community, and you know the issues, and you have a candidate you believe in, vote. If none of this applies, don’t worry, and don’t let anyone shame you. 

And yet I MUST vote? What for? Why must I be shamed into preforming the perfunctory routine of soul-destroying civic duty? Why must I be bullied into giving the correct sacrifice to the great and terrible God of ‘DEMOCRACY’ in the vain hope that this vicious, nihilistic titan of bureaucratic ineptitude might yet again bless the polis with five more years of alienation and sublimated resentment. 

The Christian message, the Gospel, is not antithetical to politics. The Gospel of Christ is about one’s whole life - body, spirit, soul, relationships, friends, family, enemies, strangers, work, play, sickness, death - and so it cannot be divorced from politics, because as people who live in a society we must encounter the ‘political’ every day. However, the Kingdom of God is a Kingdom and not a Republic. Jesus does not answer the devious questions of the Pharisees with a markedly uninformative screed on updating tax legislation, he says to ‘Render therefore unto Cæsar the things which are Cæsar’s; and unto God the things that are God’s.’ He speaks to the people about radical charity, freedom from worry and stress about today, about a community of absolute loving relationship where everyone is a mother, and sister, and brother to everyone else.  

I am called - just like I believe all people, as beloved creatures who’s end is being united with God in all eternity - to keep my eyes on the horizon of the absolute, the beautiful and peaceful Kingdom of Christ which is not for this world. This does not mean apathy towards politics or even to the current election. It does, however, mean that I cannot and will not be persuaded that finding this pathetic display of ineptitude, silence, exaggeration, and unpleasant divisiveness which we call a campaign, anything other than a waste of my time and energy. If you feel passionately about your community, and you know the issues, and you have a candidate you believe in, vote. If none of this applies, don’t worry, and don’t let anyone shame you. The Kingdom of God will not be built by the winner of the General Election. It will be built by Christ working through the love and relationships that form a community of charity and service…and you can’t legislate for that.