Article
Assisted dying
Care
Comment
Death & life
Suffering
5 min read

Why end of life agony is not a good reason to allow death on demand

Assisted dying and the unintended consequences of compassion.

Graham is the Director of the Centre for Cultural Witness and a former Bishop of Kensington.

A open hand hold a pill.
Towfiqu Barbhuiya on Unsplash.

Those advocating Assisted Dying really have only one strong argument on their side – the argument from compassion. People who have seen relatives dying in extreme pain and discomfort understandably want to avoid that scenario. Surely the best way is to allow assisted dying as an early way out for such people to avoid the agony that such a death involves?  

Now it’s a powerful argument. To be honest I can’t say what I would feel if I faced such a death, or if I had to watch a loved one go through such an ordeal. All the same, there are good reasons to hold back from legalising assisted dying even in the face of distress at the prospect of enduring or having to watch a painful and agonising death.  

In any legislation, you have to bear in mind unintended consequences. A law may benefit one particular group, but have knock-on effects for another group, or wider social implications that are profoundly harmful. Few laws benefit everyone, so lawmakers have to make difficult decisions balancing the rights and benefits of different groups of people. 

It feels odd to be citing percentages and numbers faced with something so elemental and personal and death and suffering, but it is estimated that around two per cent of us will die in extreme pain and discomfort. Add in the 'safeguards' this bill proposes (a person must be suffering from a terminal disease with fewer than six months to live, capable of making such a decision, with two doctors and a judge to approve it) and the number of people this directly affects becomes really quite small. Much as we all sympathise and feel the force of stories of agonising suffering - and of course, every individual matters - to put it bluntly, is it right to entertain the knock-on effects on other groups in society and to make such a fundamental shift in our moral landscape, for the sake of the small number of us who will face this dreadful prospect? Reading the personal stories of those who have endured extreme pain as they approached death, or those who have to watch over ones do so is heart-rending - yet are they enough on their own to sanction a change to the law? 

Much has been made of the subtle pressure put upon elderly or disabled people to end it all, to stop being a burden on others. I have argued elsewhere on Seen and Unseen that that numerous elderly people will feel a moral obligation to safeguard the family inheritance by choosing an early death rather than spend the family fortune on end of life care, or turning their kids into carers for their elderly parents. Individual choice for those who face end of life pain unintentionally  lands an unenviable and unfair choice on many more vulnerable people in our society. Giles Fraser describes the indirect pressure well: 

“You can say “think of the children” with the tiniest inflection of the voice, make the subtlest of reference to money worries. We communicate with each other, often most powerfully, through almost imperceptible gestures of body language and facial expression. No legal safeguard on earth can detect such subliminal messaging.” 

There is also plenty of testimony that suggests that even with constant pain, life is still worth living. Michelle Anna-Moffatt writes movingly  of her brush with assisted suicide and why she pulled back from it, despite living life in constant pain.  

Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder. 

Despite the safeguards mentioned above, the move towards death on the NHS is bound to lead to a slippery slope – extending the right to die to wider groups with lesser obvious needs. As I wrote in The Times recently, given the grounds on which the case for change is being made – the priority of individual choice – there are no logical grounds for denying the right to die of anyone who chooses that option, regardless of their reasons. If a teenager going through a bout of depression, or a homeless person who cannot see a way out of their situation chooses to end it all, and their choice is absolute, on what grounds could we stop them? Once we have based our ethics on this territory, the slippery slope is not just likely, it is inevitable.  

Then there is the radical shift to our moral landscape. A disabled campaigner argues that asking for someone to help her to die “is no different for me than asking my caregiver to help me on the toilet, or to give me a shower, or a drink, or to help me to eat.” Sorry - but it is different, and we know it. Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder.  

In Canada, many doctors refuse, or don’t have time to administer the fatal dose so companies have sprung up, offering ‘medical professionals’ to come round with the syringe to finish you off. In other words, companies make money out of killing people. It is the commodification of death. When we have got to that point, you know we have wandered from the path somewhere.  

You would have to be stony-hearted indeed not to feel the force of the argument to avoid pain-filled deaths. Yet is a change to benefit such people worth the radical shift of moral value, the knock-on effects on vulnerable people who will come under pressure to die before their time, the move towards death on demand?  

Surely there are better ways to approach this? Doctors can decide to cease treatment to enable a natural death to take its course, or increase painkillers that will may hasten death - that is humane and falls on the right side of the line of treatment as it is done primarily to relieve pain, not to kill. Christian faith does not argue that life is to be preserved at any cost – our belief in martyrdom gives the lie to that. More importantly, a renewed effort to invest in palliative care and improved anaesthetics will surely reduce such deaths in the longer term. These approaches are surely much wiser and less impactful on the large numbers of vulnerable people in our society than the drastic step of legalising killing on the NHS. 

Article
Comment
Digital
5 min read

Browsing our bias

Should we curate our feeds for community or for challenge?

Paula Duncan is a PhD candidate at the University of Aberdeen, researching OCD and faith.

A woman stands between two table, one of friends and the other more argumentative.
Nick Jones/Midjourney.ai.

 “Would you like to continue using this app?” 

I stare at the question on my phone screen. It’s there by design – I have it set to prompt me every five minutes so that I don’t fall into the trap of endless scrolling. Often, it’s enough to make me close the app and move on with my day.  

Today, however, I’ve been doomscrolling - endlessly flicking through the discussions around the General Election. I have already told my phone I’d like to keep this social media app for another five minutes, and another five minutes, and another. I didn’t open X with any real hope of finding answers to my many questions about the upcoming election (the crucial one being: “who should I vote for?!”). From there, I’ve fallen down a rabbit hole. There is simply too much information, and I can’t always tell what is real or true. I can’t make it more than two or three posts before I stumble across yet another logical fallacy or false equivalency. 

When my phone prompts me again to close the app, I pause. I have suddenly realised that I’m upset. It has taken the pop-up box on my phone to make me pause and notice that that I’m overwhelmed and helpless but I still feel like I need to speak, say something, anything useful. But maybe there is just nothing I can say. Maybe I can’t usefully add to this debate. Or perhaps I can’t usefully discuss it in this format.  

There is little nuance in the discussion – people are simply yelling at one another. 

I close the app to leave this angry space.  

I’m not sure I have gained any real insight into the debate from this experience. I can’t help but think that many people are here only to assert their opinion. Nobody is here to listen. Nobody is here to learn. This sort of platform encourages us to speak, to be seen speaking, but doesn’t promote discussion and debate in a way that is constructive. Let alone create a safe well-lit space for it. It doesn’t take long to find someone supposedly invalidating another’s argument by pointing out a grammatical mistake. There is no grace here.  

I’m wary of following or subscribing to users who have completely different viewpoints from my own because I am concerned about my own digital image. 

I find this online space a difficult one to occupy. My feed is mostly friends and a couple of carefully chosen pages. There’s nothing that is going to particularly challenge me there. I don’t particularly want social media to challenge me. It’s comforting, more than anything – a way of staying in touch with friends and family (particularly during the pandemic) and keeping up to date with organisations I’m involved in.  

I don’t tend to go on social media to engage in discussions or debates. I know that this leads to something of a confirmation bias. If I get all of my information from the same sources, and from the same people all the time, I’m not going to learn about other perspectives. If I follow the trade union that supports my workplace, it’s obvious that I will only receive information supporting one particular party. If the only people I follow are people who share similar views as mine, I will simply find myself with my own opinions and feelings being validated.  

It’s also worth noting that, perhaps shamefully, I’m wary of following or subscribing to users who have completely different viewpoints from my own because I am concerned about my own digital image. I worry about someone opening my page and making assumptions about my views simply based on those I follow online. I know others share this concern. Public social media accounts are sometimes a delicate exercise in personal branding. I am likely confirming someone else’s bias with my social media presence. I’m almost definitely part of that cycle.  

I find myself torn between wanting to use social media more effectively to learn from other people and wanting to make it literally a pastime. 

There are certainly arguments to be made about whether this approach to social media is good or bad. It’s certainly comforting though. At the end of a long day, a video of my friend’s dog is going to improve my day just a little bit more than trying to pick apart the truth from the lies in social media and in politics more generally. It’s important that I remain conscious that this is the way I have chosen to use social media. I can’t be complacent.  

If I engage with other perspectives and debates, I have to do so more consciously and deliberately. I try and drop in and out of those spaces through the news tabs, tags, searching specific people who I know hold different viewpoints, or looking up specific topics. It always runs the risk of falling into the trap I’ve found myself in today – scrolling through seemingly endless perspectives that I don’t agree with, people wishing harm on another for having a different perspective, a vicious “us and them” narrative that follows through every other post. I need to learn where I can find the most accurate and reliable information. More importantly, perhaps, I need to learn how to close apps when I find myself in angry spaces where debate cannot flourish (and I’m almost never going to find that in a comment section.) 

Ultimately, I don’t think I’ll stop carefully curating my social media feeds – mainly as an act of self-perseveration. It’s not that I don’t care – it is never that I don’t care. Just that the 24-hour news cycle becomes too much when there is little that I can do. I’m not going to figure out who to vote for my scrolling arguments on X or Facebook.  

I find myself torn between wanting to use social media more effectively to learn from other people and wanting to make it literally a pastime. There is certainly potential for learning - I can access real-time perspectives on almost anything. On the flipside, it is becoming increasingly difficult to discern what is real and what is fake news, or simply AI generated. On the flip side, sometimes I just want to find out if anyone else was as confused by the answer to a TV quiz show as I was or just see a picture of a friend’s cat sunbathing on a windowsill.  

How might we find this balance? Sadly, it seems that this is a conversation that’s now only worth having offline.