Article
Assisted dying
Care
Creed
Death & life
5 min read

“Shortening death” sidesteps the real battle

We need to do more than protest bad deaths, we need to protest death itself, it's more than biological.

Tom has a PhD in Theology and works as a hospital physician.

A hand drapes over the side of an object out of shot.
Michael Schaffler on Unsplash.

What is “death”? It’s surprising the term has received little attention in the assisted dying discussion so far, because more hangs on the answer than one might expect. At a press briefing, Kim Leadbeater MP stated that the assisted dying bill she is proposing is about “shortening death, not ending life.” 

But what meaning does “death” have here? 

The current bill defines neither “death” nor “dying.” Granted, it implies a biological definition. The bill speaks of administering approved substances to “cause that person’s death” and of capacity and decision-making around “ending life.” These fit the understanding of death with which the medical profession operates—death is the point in time when the combined functions required for human life cease. It is a one-time event, the end of physiology, and so is recognised by a combination of physical signs.  

Death, then, is a diagnosis. 

So, too, “dying”—though here the waters are murkier. Setting aside sudden deaths, medical talk of dying takes us out of binary territory. Dying speaks of a process, of the “terminal phase.” Within medicine a diagnosis of dying heralds the expectation that a person’s death will occur within hours or days. And so, the focus shifts. The task of care is no longer the coordinated work of investigation, preserving life, and treating symptoms. Now attention is on bringing relief to the process of dying. 

The bill seems wise to much of this. Though definitions of death and dying are absent, the bill does define terminal illness—“an inevitably progressive condition which cannot be reversed by treatment” and from which the event of death “can reasonably be expected within 6 months.” And so, it clearly distinguishes terminal illness from biological death and, implicitly, from dying. 

Of course, terminal illness and biological death are related. Terminal illness is irreversible, and where terminal illness leads is death. Or, you might say, it leads to the end of life. Apart from the timescale of six months, the same may be said of ageing: ageing is irreversible, and where ageing leads is death. This is why Kim Leadbeater’s comment was puzzling to me. I suspect what she really meant was “shortening terminal illness.” If so, this is confusing because, within the framework of the bill, “shortening terminal illness” and “ending life” are identical. It seems she was getting at something else.

“It seems odd that in the name of eliminating suffering, we eliminate the sufferer.” 

Stanley Hauerwas

I suspect Kim Leadbeater was echoing a conviction at home in the Christian faith. That is, try as we might to keep death at a distance and restrict it to a faraway frontier, the life of human beings involves death. I don’t simply mean the biological death we witness—the deaths of friends, relatives, or even strangers. I mean death intrudes upon the way we experience life. Death is more than simply biological. 

The fear of death belongs in this category. For some, the impending loss of relationships and joys casts a shadow over life, giving birth to apprehension. Death is not simply a factual matter but something that exerts power and influence. Or take disease and illness. Built into the notion of terminal illness is the idea that the sickness borne by a human body will ultimately bring about that body’s death. That body already speaks of its death. Death is making itself felt in advance. 

And so, death is more than a biological event. Even living things can bear the marks of death. 

This is no novel claim. The creation account recorded in the Bible says that in the beginning, there was good. But an intruder appears. In the wake of humanity’s choice to go its own way rather than the way of its Maker, death arrives on the scene. And death is an imposter—not simply a physiological fact at the end of the road, but a destructive and alien presence in God’s good world. 

Understood in this way, death is not something that God intends humans simply submit to. Death is something to protest. This is why Kim Leadbeater’s comment gets at something important: this kind of death should be protested. The marks of death should not be accommodated, because they do not belong to the goodness of what God has made. 

At the heart of the Christian faith is God’s own ultimate protest against the force of death. Christians celebrate that God himself came in the man Jesus to “destroy death.” This is plainly more than biological. Jesus came to free humanity from the entirety of death’s grip. Hence why, when Jesus speaks of “eternal life” he means more than endless biological existence. He means liberation from all the havoc that death brings to bear within God’s world. To the Christian imagination, the power of death must be protested because God protested it first. 

The question is how to protest death. Within the framework of the bill, shortening death or terminal illness is identical with ending life. This is the only form protesting death can take. 

But the Christian faith makes a far more radical claim: God alone overcame death by dying. This is the point: Jesus was the one—the only one—who emerged resurrected victor in the contest with the power of death. In seeing his death and resurrection, an unshakeable hope emerges. Death is not the victor. And this hope stands above our present experience of death—in whatever form—and, at the same time, calls us to join the protest. 

Ethicist Stanley Hauerwas once wrote: “it seems odd that in the name of eliminating suffering, we eliminate the sufferer.” I have deliberately avoided discussing suffering, not least because it would take me too far afield. Yet Hauerwas has put his finger on what I’m getting at. Protesting death—in the big sense—belongs to the Christian faith. Protesting suffering and pain, economic and racial injustice, fractured relationships and broken societies, are all part of this protest. But can eliminating those who live within the shadow of death be part of this protest? I think not. The Christian faith believes there is only one who can overcome death in this way, and that is God himself—who has already done it.

Article
Creed
Identity
Nationalism
4 min read

Born in Wales, made for more

Does where we are born matter?

Rachel is a reader and writer, a coach, and an educator. 

A boat rests on a mud bank of a river, hills are in the background.
River Loughor, near Llanelli, Wales.
Sean Alabaster on Unsplash.

I know someone who drove his labouring wife several hours, in the middle of the night, to cross the English border so that their child would be born in Wales.  

Though my passport states that I am British, people (especially my sister) tell me that I am unequivocally Welsh. I was indeed born and raised in Wales, a gentle but obvious accent remains as testament, but I have lived in Oxford for almost 30 years compared with only 18 lived in Llanelli.  

What does this mean? Is my identity staunchly based on where I was born? I’m not so sure. 

The same sister is angered by my disinterest in rugby as a Welsh mother of two English sons. One of her first gifts to my newborns was a pint-sized Welsh rugby jersey followed by larger unused versions as they have grown. Whilst watching a match she will unfailingly urge them to participate by sending photos of her two dogs in their Welsh rugby jerseys.  

My sons prefer rowing, climbing and swimming – I am an apparent disgrace!  

It’s not that I am not proud to be Welsh; I am entirely neutral on the matter. I love many things about Wales as well as I love many things about England. In all honesty, I love significantly more about Norway than either of these, even though I have no reason to live there or claim it as part of my identity. If a place were an accurate reflection of a person, Norway would be much closer to the mark for so many reasons.  

There are many things that are particularly special about my birthplace – the countryside is beautiful, without doubt. I cannot tell you how much I miss mountains and hillsides from where you can sit and enjoy all the twinkling lights of a town of an evening. Oxford has its beauty, but mountains are not part of it.  

Wales is truly a place of music and song. Everybody sings and the songs come from deep inside your bones. It’s a very pure and primal sound as mellifluous and unadulterated as honey straight from the comb.  

And then there is the language which is funny and complicated in equal measure. Where else will you find both golff and Llanfairpwllgwyngyllgogerychwyrndrobwllllantysiliogogogoch? 

This brings me to the inspiration for these particular ramblings, which is the word, ‘hiraeth’ (pronounced hee-rye-th).  

It is one of those special words almost impossible to translate. It expresses a particular longing or yearning for a time and place that can never be returned to fully. It includes, but is insufficient, to think about nostalgia. It is a soul word: transcendental.  

Though my childhood was far from easy, there are things for which I feel intense hiraeth – moments with important people; the encouragement of my music teacher; the shovel-sized hands of my grandfather and the belly rock of his silent chuckles; days out cycling with my friend, Paul, and picking out the millions of bones from my mouth as I ate countless impromptu dinners offered by his lovely, generous mother made from the trout that his father had invariably caught a few days earlier.  

Those days will forever be feelings fully alive in me but invisible to others until I share them like this. I wish I could replay them on old cinefilm for others to understand but, you just had to be there to know.  

I have the same hiraeth for so many days shared with my husband and sons, not least the precious days surrounding their births. They’re not tied to places; they’re all bound with love.  

Love has nothing whatsoever to do with my passport because there is no official stamp that says, ‘Child of God’ and yet, if it did how might we each identify? Would nationality matter? Would where we were born be of any consequence at all ? I hope not.  

Sometimes, perhaps often, my hiraeth is for a time gone - before the internet, smartphones and AI, a world without guns and nuclear weapons, where, like William Morris, we had nothing in our homes that were not either useful or beautiful, an era where we ate seasonally and lived in harmony with nature… 

I wish that my children could experience that existence but, despite my longings, I must accept they are made for a different time and place. 

In his writings, C.S. Lewis uses the German word ‘sehnsucht’ to express a similar sense of longing. As ever, I find that his words explain things to me in a way that provides great comfort and challenge as I ponder:  

“If I find in myself desires which nothing in this world can satisfy, the only logical explanation is that I was made for another world.”  

So, perhaps, the best I can say is that I was born in Wales, matured in England, but made for something more.  

How about you? 

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