Article
Assisted dying
Care
Comment
Death & life
Suffering
5 min read

Why end of life agony is not a good reason to allow death on demand

Assisted dying and the unintended consequences of compassion.

Graham is the Director of the Centre for Cultural Witness and a former Bishop of Kensington.

A open hand hold a pill.
Towfiqu Barbhuiya on Unsplash.

Those advocating Assisted Dying really have only one strong argument on their side – the argument from compassion. People who have seen relatives dying in extreme pain and discomfort understandably want to avoid that scenario. Surely the best way is to allow assisted dying as an early way out for such people to avoid the agony that such a death involves?  

Now it’s a powerful argument. To be honest I can’t say what I would feel if I faced such a death, or if I had to watch a loved one go through such an ordeal. All the same, there are good reasons to hold back from legalising assisted dying even in the face of distress at the prospect of enduring or having to watch a painful and agonising death.  

In any legislation, you have to bear in mind unintended consequences. A law may benefit one particular group, but have knock-on effects for another group, or wider social implications that are profoundly harmful. Few laws benefit everyone, so lawmakers have to make difficult decisions balancing the rights and benefits of different groups of people. 

It feels odd to be citing percentages and numbers faced with something so elemental and personal and death and suffering, but it is estimated that around two per cent of us will die in extreme pain and discomfort. Add in the 'safeguards' this bill proposes (a person must be suffering from a terminal disease with fewer than six months to live, capable of making such a decision, with two doctors and a judge to approve it) and the number of people this directly affects becomes really quite small. Much as we all sympathise and feel the force of stories of agonising suffering - and of course, every individual matters - to put it bluntly, is it right to entertain the knock-on effects on other groups in society and to make such a fundamental shift in our moral landscape, for the sake of the small number of us who will face this dreadful prospect? Reading the personal stories of those who have endured extreme pain as they approached death, or those who have to watch over ones do so is heart-rending - yet are they enough on their own to sanction a change to the law? 

Much has been made of the subtle pressure put upon elderly or disabled people to end it all, to stop being a burden on others. I have argued elsewhere on Seen and Unseen that that numerous elderly people will feel a moral obligation to safeguard the family inheritance by choosing an early death rather than spend the family fortune on end of life care, or turning their kids into carers for their elderly parents. Individual choice for those who face end of life pain unintentionally  lands an unenviable and unfair choice on many more vulnerable people in our society. Giles Fraser describes the indirect pressure well: 

“You can say “think of the children” with the tiniest inflection of the voice, make the subtlest of reference to money worries. We communicate with each other, often most powerfully, through almost imperceptible gestures of body language and facial expression. No legal safeguard on earth can detect such subliminal messaging.” 

There is also plenty of testimony that suggests that even with constant pain, life is still worth living. Michelle Anna-Moffatt writes movingly  of her brush with assisted suicide and why she pulled back from it, despite living life in constant pain.  

Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder. 

Despite the safeguards mentioned above, the move towards death on the NHS is bound to lead to a slippery slope – extending the right to die to wider groups with lesser obvious needs. As I wrote in The Times recently, given the grounds on which the case for change is being made – the priority of individual choice – there are no logical grounds for denying the right to die of anyone who chooses that option, regardless of their reasons. If a teenager going through a bout of depression, or a homeless person who cannot see a way out of their situation chooses to end it all, and their choice is absolute, on what grounds could we stop them? Once we have based our ethics on this territory, the slippery slope is not just likely, it is inevitable.  

Then there is the radical shift to our moral landscape. A disabled campaigner argues that asking for someone to help her to die “is no different for me than asking my caregiver to help me on the toilet, or to give me a shower, or a drink, or to help me to eat.” Sorry - but it is different, and we know it. Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder.  

In Canada, many doctors refuse, or don’t have time to administer the fatal dose so companies have sprung up, offering ‘medical professionals’ to come round with the syringe to finish you off. In other words, companies make money out of killing people. It is the commodification of death. When we have got to that point, you know we have wandered from the path somewhere.  

You would have to be stony-hearted indeed not to feel the force of the argument to avoid pain-filled deaths. Yet is a change to benefit such people worth the radical shift of moral value, the knock-on effects on vulnerable people who will come under pressure to die before their time, the move towards death on demand?  

Surely there are better ways to approach this? Doctors can decide to cease treatment to enable a natural death to take its course, or increase painkillers that will may hasten death - that is humane and falls on the right side of the line of treatment as it is done primarily to relieve pain, not to kill. Christian faith does not argue that life is to be preserved at any cost – our belief in martyrdom gives the lie to that. More importantly, a renewed effort to invest in palliative care and improved anaesthetics will surely reduce such deaths in the longer term. These approaches are surely much wiser and less impactful on the large numbers of vulnerable people in our society than the drastic step of legalising killing on the NHS. 

Article
Comment
Development
War & peace
3 min read

South Sudan is on the brink, but it can pull back

The UK can join local peacemakers in preventing a new civil war.

James Wani is Christian Aid’s South Sudan’s Country Director.

A Sudanese woman walks across the ashes of a burnt out street market.
A burnt-out market place in South Sudan.
Christian Aid.

It’s been two years since Sudan slid into a brutal power struggle between the army and its former ally, the paramilitary Rapid Support Forces (RSF). Despite its size and savagery, blink and you might miss it as the world media remains mesmerised by the White House tariffs.  

Sudan’s people have suffered on a scale that’s almost impossible to take in. It is the world's biggest humanitarian crisis. More than 12.5 million people have been forced from their homes. Some estimates suggest up to 150,000 people had been killed so far in the conflict.  

The ensuing chaos has spilled into neighbouring countries like South Sudan where I live. Over the last year almost a million refugees and returnees have crossed the border to escape horrific war crimes, violence and rape. 

Neither are they escaping into a land of peace and stability. Resources are stretched as South Sudan grapples with long-standing challenges like floods and droughts from climate change and our own fragile peace process.  

Those crossing from the north have added a crisis on top of the existing crises. Nine million people here need humanitarian assistance - three quarters of South Sudan’s population.  

Christian Aid and its local partners are doing what they can to support this huge influx from Sudan by providing cash, emergency supplies and access to water and sanitation to more than 100,000 people.   

But even these attempts at relief might be short-lived. Fears are growing that South Sudan may follow Sudan and topple into civil war. 400,000 people died over five years in the last one. Ominous signs are there for a renewed conflict.  

Late last year in Juba there was an outbreak of violence between the President’s military forces and armed groups connected to the former head of the National Security Agency. The country’s first ever elections keep on being postponed. Tensions escalated in February. An unelected Reconstituted Transitional National Assembly was not called back from recess to discuss this.  

Now the country's First Vice-President Riek Machar is under house arrest. South Sudan's President Salva Kiir accused Machar of stirring up a new revolt. Last month, the US ordered all its non-emergency staff in South Sudan to leave as fighting broke out in one part of the country.  

Just this month, the UN mission’s plane was shot down, killing staff and a wounded armed forces general, allegedly by groups allied to the Vice-President. Uganda has sent its army to support the President and airstrikes on civilian areas and opposition compounds in four states are now nearing the capital.   

South Sudan might be on the brink, but this isn’t a doctrine of despair. The country can pull back.  

Christian Aid doesn’t just provide humanitarian support - we are in the business of hope. by working hand in hand with local activists, like the South Sudan Council of Churches (SSCC), to help the country’s government establish and implement the 2018 peace agreement.   

Respected church leaders have, and are, playing a key role in building trust and confidence:  brokering peace deals at local level, undertaking shuttle diplomacy in South Sudan’s states, talking to armed groups to urge them to get behind the peace agreement and to the President and Vice-President to return to honouring their agreement. The new elected head of SSCC, Rev. Tut Kony Nyang Kon, said their role was to bring the country around a unity of purpose.   

He said South Sudan’s leaders need to present a reinvigorated plan for free and fair elections in two years to reassure people, rally the peacemakers and deter those who may see an opportunity to undermine the peace gains made so far.  

But they need diplomatic support too.   

The UK, along with the USA and Norway, is part of the influential “Troika” that must make a serious diplomatic investment in the national and international peace processes to ensure that the existing peace agreement holds and deter other states from providing financial or military support that can fuel conflict and violence.  

The UK government needs to show it means what it says when it promised the UN Security Council last November that it would champion the protection of civilians and double aid for those fleeing the conflict in Sudan.  

2025 should be a leadership moment for the UK and the international community to increase support for the region and get behind South Sudan’s peacemakers to avoid another catastrophic conflict in Africa.