Article
Assisted dying
Care
Comment
Death & life
Suffering
5 min read

Why end of life agony is not a good reason to allow death on demand

Assisted dying and the unintended consequences of compassion.

Graham is the Director of the Centre for Cultural Witness and a former Bishop of Kensington.

A open hand hold a pill.
Towfiqu Barbhuiya on Unsplash.

Those advocating Assisted Dying really have only one strong argument on their side – the argument from compassion. People who have seen relatives dying in extreme pain and discomfort understandably want to avoid that scenario. Surely the best way is to allow assisted dying as an early way out for such people to avoid the agony that such a death involves?  

Now it’s a powerful argument. To be honest I can’t say what I would feel if I faced such a death, or if I had to watch a loved one go through such an ordeal. All the same, there are good reasons to hold back from legalising assisted dying even in the face of distress at the prospect of enduring or having to watch a painful and agonising death.  

In any legislation, you have to bear in mind unintended consequences. A law may benefit one particular group, but have knock-on effects for another group, or wider social implications that are profoundly harmful. Few laws benefit everyone, so lawmakers have to make difficult decisions balancing the rights and benefits of different groups of people. 

It feels odd to be citing percentages and numbers faced with something so elemental and personal and death and suffering, but it is estimated that around two per cent of us will die in extreme pain and discomfort. Add in the 'safeguards' this bill proposes (a person must be suffering from a terminal disease with fewer than six months to live, capable of making such a decision, with two doctors and a judge to approve it) and the number of people this directly affects becomes really quite small. Much as we all sympathise and feel the force of stories of agonising suffering - and of course, every individual matters - to put it bluntly, is it right to entertain the knock-on effects on other groups in society and to make such a fundamental shift in our moral landscape, for the sake of the small number of us who will face this dreadful prospect? Reading the personal stories of those who have endured extreme pain as they approached death, or those who have to watch over ones do so is heart-rending - yet are they enough on their own to sanction a change to the law? 

Much has been made of the subtle pressure put upon elderly or disabled people to end it all, to stop being a burden on others. I have argued elsewhere on Seen and Unseen that that numerous elderly people will feel a moral obligation to safeguard the family inheritance by choosing an early death rather than spend the family fortune on end of life care, or turning their kids into carers for their elderly parents. Individual choice for those who face end of life pain unintentionally  lands an unenviable and unfair choice on many more vulnerable people in our society. Giles Fraser describes the indirect pressure well: 

“You can say “think of the children” with the tiniest inflection of the voice, make the subtlest of reference to money worries. We communicate with each other, often most powerfully, through almost imperceptible gestures of body language and facial expression. No legal safeguard on earth can detect such subliminal messaging.” 

There is also plenty of testimony that suggests that even with constant pain, life is still worth living. Michelle Anna-Moffatt writes movingly  of her brush with assisted suicide and why she pulled back from it, despite living life in constant pain.  

Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder. 

Despite the safeguards mentioned above, the move towards death on the NHS is bound to lead to a slippery slope – extending the right to die to wider groups with lesser obvious needs. As I wrote in The Times recently, given the grounds on which the case for change is being made – the priority of individual choice – there are no logical grounds for denying the right to die of anyone who chooses that option, regardless of their reasons. If a teenager going through a bout of depression, or a homeless person who cannot see a way out of their situation chooses to end it all, and their choice is absolute, on what grounds could we stop them? Once we have based our ethics on this territory, the slippery slope is not just likely, it is inevitable.  

Then there is the radical shift to our moral landscape. A disabled campaigner argues that asking for someone to help her to die “is no different for me than asking my caregiver to help me on the toilet, or to give me a shower, or a drink, or to help me to eat.” Sorry - but it is different, and we know it. Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder.  

In Canada, many doctors refuse, or don’t have time to administer the fatal dose so companies have sprung up, offering ‘medical professionals’ to come round with the syringe to finish you off. In other words, companies make money out of killing people. It is the commodification of death. When we have got to that point, you know we have wandered from the path somewhere.  

You would have to be stony-hearted indeed not to feel the force of the argument to avoid pain-filled deaths. Yet is a change to benefit such people worth the radical shift of moral value, the knock-on effects on vulnerable people who will come under pressure to die before their time, the move towards death on demand?  

Surely there are better ways to approach this? Doctors can decide to cease treatment to enable a natural death to take its course, or increase painkillers that will may hasten death - that is humane and falls on the right side of the line of treatment as it is done primarily to relieve pain, not to kill. Christian faith does not argue that life is to be preserved at any cost – our belief in martyrdom gives the lie to that. More importantly, a renewed effort to invest in palliative care and improved anaesthetics will surely reduce such deaths in the longer term. These approaches are surely much wiser and less impactful on the large numbers of vulnerable people in our society than the drastic step of legalising killing on the NHS. 

Article
Belief
Comment
Leading
4 min read

Here’s what Pope Leo really needs, and it’s not our speculation

What the media analysis misses when projecting on to the new pope.
Pope Leo waves to the crowd.
Vatican Media.

If memory serves, there was a very positive feeling about Pope Francis when he was elected in 2013. Mind you, I had just started my first year at university and was passionately atheistic - I had flunked my ‘General Studies’ A-Level essay purely because I had nothing to say in favour of the proposal that heaven exists. It was plain enough to me that it was all unscientific wish-fulfilment - so a requirement to give balance had to be jettisoned. 

But the late Pope was so adept at doing things that sent a message, that even in my sphere it became commonly agreed that he was a breath of fresh air. Anyone would tell you that he was very down-to-earth. PR types can only dream of that kind of cache among those who have zero interest in what the company is selling.  

The less ostentatious popemobile!  

The refusal to live in the official papal apartments!  

Here was a man clearly wanting to step back from pomp, and the wealth (all that Vatican gold!). 

It is only now that, as a Catholic, I have an inside track perspective on how more complicated this all actually was. Some in the Church found some of the public piety unsettling. All churches have a trade-off to make between the gospel directive to not value treasure on earth, as well as a gospel directive to give honour to God using all of our humanity, which might involve using our sense of beauty.  

But I am not saying I agree or disagree with any of this. Francis was making a point, and it was well made. I am rather saying that there is a tendency sometimes to think of a pontiff in ill-fitting terms - often political ones. As an atheist, I crammed things into a binary of ‘good, stripped-down rationalisation’ versus ‘bad, mythological and weird’. Especially in secular media, there is a tendency to make popes answers to questions that the media have asked, and not the ones of the Church. The story is always more intricate than ‘liberal’ versus ‘conservative’. Francis was not, in the end, the moderniser some commentariat hoped for, but only because he demonstrated what should have already been obvious: that that the Pope is not ‘in charge of’ the Catholic Faith like that. 

At any rate, speculation of a similar kind is already booming around the new Pope, Leo XIV. Everyone is trying to read into every micro-detail we have. What is the significance of his being an American? Is this the conclave’s attempt to create a counter-Trump? Why did Leo come out in traditional garb (which Francis made a point of eschewing)? Why ‘Leo’?  

Rumours have already abounded that this new Pope likes to do his private masses in the old Latin; others have pointed out that he ran with Francis’ crowd - and even his opening speech touched on the late Pope’s theme of ‘synodality.’ Synodality, depending on who you ask, is either a noble attempt at decentralisation and listening to the full range of voices in the Church - or an attempt to sneak doctrinal change under the guise of being pastoral. 

My advice is to stay well away from it all. Perhaps I’m bringing my own personal journey in too much here - but people change their minds all the time. I wouldn’t want someone to judge me on that General Studies essay now, let me tell you. People especially change when given such a task as Robert Prevost has been given. Even on a purely natural view, being handed responsibility for over a billion Catholics is likely to have a sobering effect, and make one hyper-aware of every move one is about to make. 

But, more importantly, on a supernatural lens, Catholics will want to say that this Pope has been, at the very least, permitted by the Holy Spirit. Benedict XVI put it as dismally as this, in 1997:  

"Probably the only assurance [the Holy Spirit] offers is that the thing cannot be totally ruined.”  

Pope Leo’s ability to shepherd the Church is not a power he enjoys on his own - it comes, as the official teaching has it, “by virtue of his office.” He gets it purely from God, and by existing in relationship to a bigger thing, the Church. It is a difficult thing to make sense of, but the Catholic view of the Pope is not really a statement about human power. It is the belief that, at some very foundational level of analysis, Jesus has agreed not to abandon those who follow him; agreed not to “leave us as orphans." The Pope has come to be seen, in time, as that foundation; as that ‘rock’. But he should always be seen within the bigger picture of God’s promises to us. 

For the meantime, the Pope needs not analysis, second-guessing, or projections. He needs prayers.  

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