Article
Assisted dying
Care
Comment
Death & life
Suffering
5 min read

Why end of life agony is not a good reason to allow death on demand

Assisted dying and the unintended consequences of compassion.

Graham is the Director of the Centre for Cultural Witness and a former Bishop of Kensington.

A open hand hold a pill.
Towfiqu Barbhuiya on Unsplash.

Those advocating Assisted Dying really have only one strong argument on their side – the argument from compassion. People who have seen relatives dying in extreme pain and discomfort understandably want to avoid that scenario. Surely the best way is to allow assisted dying as an early way out for such people to avoid the agony that such a death involves?  

Now it’s a powerful argument. To be honest I can’t say what I would feel if I faced such a death, or if I had to watch a loved one go through such an ordeal. All the same, there are good reasons to hold back from legalising assisted dying even in the face of distress at the prospect of enduring or having to watch a painful and agonising death.  

In any legislation, you have to bear in mind unintended consequences. A law may benefit one particular group, but have knock-on effects for another group, or wider social implications that are profoundly harmful. Few laws benefit everyone, so lawmakers have to make difficult decisions balancing the rights and benefits of different groups of people. 

It feels odd to be citing percentages and numbers faced with something so elemental and personal and death and suffering, but it is estimated that around two per cent of us will die in extreme pain and discomfort. Add in the 'safeguards' this bill proposes (a person must be suffering from a terminal disease with fewer than six months to live, capable of making such a decision, with two doctors and a judge to approve it) and the number of people this directly affects becomes really quite small. Much as we all sympathise and feel the force of stories of agonising suffering - and of course, every individual matters - to put it bluntly, is it right to entertain the knock-on effects on other groups in society and to make such a fundamental shift in our moral landscape, for the sake of the small number of us who will face this dreadful prospect? Reading the personal stories of those who have endured extreme pain as they approached death, or those who have to watch over ones do so is heart-rending - yet are they enough on their own to sanction a change to the law? 

Much has been made of the subtle pressure put upon elderly or disabled people to end it all, to stop being a burden on others. I have argued elsewhere on Seen and Unseen that that numerous elderly people will feel a moral obligation to safeguard the family inheritance by choosing an early death rather than spend the family fortune on end of life care, or turning their kids into carers for their elderly parents. Individual choice for those who face end of life pain unintentionally  lands an unenviable and unfair choice on many more vulnerable people in our society. Giles Fraser describes the indirect pressure well: 

“You can say “think of the children” with the tiniest inflection of the voice, make the subtlest of reference to money worries. We communicate with each other, often most powerfully, through almost imperceptible gestures of body language and facial expression. No legal safeguard on earth can detect such subliminal messaging.” 

There is also plenty of testimony that suggests that even with constant pain, life is still worth living. Michelle Anna-Moffatt writes movingly  of her brush with assisted suicide and why she pulled back from it, despite living life in constant pain.  

Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder. 

Despite the safeguards mentioned above, the move towards death on the NHS is bound to lead to a slippery slope – extending the right to die to wider groups with lesser obvious needs. As I wrote in The Times recently, given the grounds on which the case for change is being made – the priority of individual choice – there are no logical grounds for denying the right to die of anyone who chooses that option, regardless of their reasons. If a teenager going through a bout of depression, or a homeless person who cannot see a way out of their situation chooses to end it all, and their choice is absolute, on what grounds could we stop them? Once we have based our ethics on this territory, the slippery slope is not just likely, it is inevitable.  

Then there is the radical shift to our moral landscape. A disabled campaigner argues that asking for someone to help her to die “is no different for me than asking my caregiver to help me on the toilet, or to give me a shower, or a drink, or to help me to eat.” Sorry - but it is different, and we know it. Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder.  

In Canada, many doctors refuse, or don’t have time to administer the fatal dose so companies have sprung up, offering ‘medical professionals’ to come round with the syringe to finish you off. In other words, companies make money out of killing people. It is the commodification of death. When we have got to that point, you know we have wandered from the path somewhere.  

You would have to be stony-hearted indeed not to feel the force of the argument to avoid pain-filled deaths. Yet is a change to benefit such people worth the radical shift of moral value, the knock-on effects on vulnerable people who will come under pressure to die before their time, the move towards death on demand?  

Surely there are better ways to approach this? Doctors can decide to cease treatment to enable a natural death to take its course, or increase painkillers that will may hasten death - that is humane and falls on the right side of the line of treatment as it is done primarily to relieve pain, not to kill. Christian faith does not argue that life is to be preserved at any cost – our belief in martyrdom gives the lie to that. More importantly, a renewed effort to invest in palliative care and improved anaesthetics will surely reduce such deaths in the longer term. These approaches are surely much wiser and less impactful on the large numbers of vulnerable people in our society than the drastic step of legalising killing on the NHS. 

Snippet
Character
Comment
Leading
Trauma
3 min read

Could I strike a deal after a public humiliation?

How to come back from setback after setback.

Jean is a consultant working with financial and Christian organisations. She also writes and broadcasts.

President Zelensky speaks and a caption reads ' on the economic partnership with the United States.
The art of the deal.
x.com/ZelenskyyUa

‘USA and Ukraine sign a minerals deal.’  

Two months ago, this headline looked impossible. The world watched in horror as President Zelensky was mistreated in the Oval Office and then appeared to be booted out of the White House before scheduled negotiations for the deal could begin. Zelensky left Washington having been publicly humiliated by the most powerful leader in the world.  

Whether he was blindsided, underprepared, badly briefed, misguided, disrespected, the victim of bullying or some combination of all of the above, the stakes for both him and Ukraine were as high as it could possibly get.  

These sort of political bust-ups if they happen, happen behind the scenes. But this was in the open, on air, for all the world to see. Not only then but it is available to view online in perpetuality.   

Now for just one minute, put yourself in President Zelensky’s shoes, what would be your next move? Me, I am probably going to cry, check my socials, go to sleep and say I am going home. I am done for the day. So many thoughts would be going through my mind. In all honesty, I would probably be going through all the stages of grief!  

Denial – ‘I can’t believe that just happened. Did they really just throw us out?’  

Anger – ‘What was J.D. Vance doing? Why did they gang up on me? I thought we were allies. I am not coming back here ever again.’ 

Bargaining – ‘Let’s get them on the phone. Does anyone have a contact we can reach out to? Can someone try to call the Secretary of State, Marco Rubio on private number?’ 

Depression – ‘What have I done? I have made things infinitely worse for my people and our country. Will we ever win this war? Will I be responsible for the surrender and end of Ukraine? Maybe I should resign and we hold elections?’ 

Acceptance – ‘It has happened now. No use crying over spilt milk.’ 

At this point I would say, ‘I am going to bed. Let’s start again in the morning’ (I think you can see why I am not a political leader).  

When I put myself in President Zelensky’s shoes and I think back to that day in February, (putting the war itself aside) and contrast it with his recent meeting with President Trump at Pope Francis’ funeral alongside the minerals deal, I am reminded of old wisdom found in an old book - the Bible.  

'Even if good people fall seven times, they will get back up.' 

Public humiliation, shame, disappointment and failure are often times when we give up and disqualify ourselves. Rather than view it as a moment in time, we tend to claim our failure, mistake or mishap as part of our identity. This often causes us to walk away from good opportunities and hold ourselves to an unattainable standard. My Christian faith teaches me to place my identity not in anything I do but in what Jesus Christ did for me when he died on the cross for my mistakes. Jesus like Zelensky, faced public humiliation and shame. He is the ultimate example of how I ought to respond in the face of opposition. Jesus did not respond to his accusers and remained focus on his mission to save not just a one nation but an entirely broken world.   Every so often I need to be reminded of this.  

Very few of us, if any of us, will ever face the level of public humiliation or as high stakes as President Zelensky did on that day (even if it feels otherwise). Things will go wrong, we will make mistakes, people will cause us embarrassment, but it will only be for a moment in time. This new minerals deal is a reminder that things can and will get better. Our mistakes or bad circumstances do not define us, we can and will recover if we are able to get up and try again. 

Celebrate our 2nd birthday!

Since Spring 2023, our readers have enjoyed over 1,000 articles. All for free. 
This is made possible through the generosity of our amazing community of supporters.

If you enjoy Seen & Unseen, would you consider making a gift towards our work?

Do so by joining Behind The Seen. Alongside other benefits, you’ll receive an extra fortnightly email from me sharing my reading and reflections on the ideas that are shaping our times.

Graham Tomlin
Editor-in-Chief