Article
Assisted dying
Care
Comment
Death & life
Suffering
5 min read

Why end of life agony is not a good reason to allow death on demand

Assisted dying and the unintended consequences of compassion.

Graham is the Director of the Centre for Cultural Witness and a former Bishop of Kensington.

A open hand hold a pill.
Towfiqu Barbhuiya on Unsplash.

Those advocating Assisted Dying really have only one strong argument on their side – the argument from compassion. People who have seen relatives dying in extreme pain and discomfort understandably want to avoid that scenario. Surely the best way is to allow assisted dying as an early way out for such people to avoid the agony that such a death involves?  

Now it’s a powerful argument. To be honest I can’t say what I would feel if I faced such a death, or if I had to watch a loved one go through such an ordeal. All the same, there are good reasons to hold back from legalising assisted dying even in the face of distress at the prospect of enduring or having to watch a painful and agonising death.  

In any legislation, you have to bear in mind unintended consequences. A law may benefit one particular group, but have knock-on effects for another group, or wider social implications that are profoundly harmful. Few laws benefit everyone, so lawmakers have to make difficult decisions balancing the rights and benefits of different groups of people. 

It feels odd to be citing percentages and numbers faced with something so elemental and personal and death and suffering, but it is estimated that around two per cent of us will die in extreme pain and discomfort. Add in the 'safeguards' this bill proposes (a person must be suffering from a terminal disease with fewer than six months to live, capable of making such a decision, with two doctors and a judge to approve it) and the number of people this directly affects becomes really quite small. Much as we all sympathise and feel the force of stories of agonising suffering - and of course, every individual matters - to put it bluntly, is it right to entertain the knock-on effects on other groups in society and to make such a fundamental shift in our moral landscape, for the sake of the small number of us who will face this dreadful prospect? Reading the personal stories of those who have endured extreme pain as they approached death, or those who have to watch over ones do so is heart-rending - yet are they enough on their own to sanction a change to the law? 

Much has been made of the subtle pressure put upon elderly or disabled people to end it all, to stop being a burden on others. I have argued elsewhere on Seen and Unseen that that numerous elderly people will feel a moral obligation to safeguard the family inheritance by choosing an early death rather than spend the family fortune on end of life care, or turning their kids into carers for their elderly parents. Individual choice for those who face end of life pain unintentionally  lands an unenviable and unfair choice on many more vulnerable people in our society. Giles Fraser describes the indirect pressure well: 

“You can say “think of the children” with the tiniest inflection of the voice, make the subtlest of reference to money worries. We communicate with each other, often most powerfully, through almost imperceptible gestures of body language and facial expression. No legal safeguard on earth can detect such subliminal messaging.” 

There is also plenty of testimony that suggests that even with constant pain, life is still worth living. Michelle Anna-Moffatt writes movingly  of her brush with assisted suicide and why she pulled back from it, despite living life in constant pain.  

Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder. 

Despite the safeguards mentioned above, the move towards death on the NHS is bound to lead to a slippery slope – extending the right to die to wider groups with lesser obvious needs. As I wrote in The Times recently, given the grounds on which the case for change is being made – the priority of individual choice – there are no logical grounds for denying the right to die of anyone who chooses that option, regardless of their reasons. If a teenager going through a bout of depression, or a homeless person who cannot see a way out of their situation chooses to end it all, and their choice is absolute, on what grounds could we stop them? Once we have based our ethics on this territory, the slippery slope is not just likely, it is inevitable.  

Then there is the radical shift to our moral landscape. A disabled campaigner argues that asking for someone to help her to die “is no different for me than asking my caregiver to help me on the toilet, or to give me a shower, or a drink, or to help me to eat.” Sorry - but it is different, and we know it. Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder.  

In Canada, many doctors refuse, or don’t have time to administer the fatal dose so companies have sprung up, offering ‘medical professionals’ to come round with the syringe to finish you off. In other words, companies make money out of killing people. It is the commodification of death. When we have got to that point, you know we have wandered from the path somewhere.  

You would have to be stony-hearted indeed not to feel the force of the argument to avoid pain-filled deaths. Yet is a change to benefit such people worth the radical shift of moral value, the knock-on effects on vulnerable people who will come under pressure to die before their time, the move towards death on demand?  

Surely there are better ways to approach this? Doctors can decide to cease treatment to enable a natural death to take its course, or increase painkillers that will may hasten death - that is humane and falls on the right side of the line of treatment as it is done primarily to relieve pain, not to kill. Christian faith does not argue that life is to be preserved at any cost – our belief in martyrdom gives the lie to that. More importantly, a renewed effort to invest in palliative care and improved anaesthetics will surely reduce such deaths in the longer term. These approaches are surely much wiser and less impactful on the large numbers of vulnerable people in our society than the drastic step of legalising killing on the NHS. 

Article
Comment
War & peace
4 min read

When to stand up in an increasingly insecure world

When war is ‘othering’ by other means, the brutal realities of our world can be overwhelming. Ziya Meral contemplates what it means to take a stand.

Dr Ziya Meral is a researcher, advisor and programmes director specialising on global trends shaping defence and security, politics and foreign policies. He is a Senior Associate Fellow of the Royal United Services Institute.

Anti-aircraft shells firing out of gun

Recently, I found myself sitting quietly at a cathedral buzzing with tourists, reflecting on demanding global developments and uttering a few words of prayers, not for world peace, but for guidance on how I should live my own life amidst all these.  

Today’s world is a brutal reminder of timeless truths about the human condition, about continuum of violence and aggression in human affairs, about exclusion and marginalisation of the ‘other’ amidst economic downturns, about how fragile peace and prosperity are, and how the future might not always be better than the past.  

There is a bitter realisation that there is no clear end ahead of us in the near future to this war of choice by Russia. 

As I write these lines, Russian forces continue their brutal invasion of Ukraine, killing tens of thousands, forcing millions out of their homes, destroying town after town, and intentionally pursuing a scourge earth policy to destroy the habitability of towns and cities and sustainability of life. Ukrainians continue to bravely advance their counter offensive to push Russian forces as much as possible, while NATO leaders gear up for a summit in Lithuania in July, which will assess and discuss future support to Ukraine. There is a bitter realisation that there is no clear end ahead of us in the near future to this war of choice by Russia. Some sort of ‘frozen’ peace might be achieved by stopping or reducing violence, but no matter what Ukraine needs our prolonged support to ensure it does not face yet another wave of invasion a few years down the line. This is why even President Macron, who has been cynical about NATO, is now talking about Ukraine’s membership to the alliance as lesser of all of the risks ahead of us.  

We have entered a new era, that is not simply just about Ukraine. For the last decade we have seen a major shift in global affairs as not only world’s two major powers, US and China, increasingly saw each other as a competitor and threat against national interests, a long list of medium-sized powers actively used force in invading other countries, or pursuing proxy wars and meddling into politics of other countries. From cyberwarfare to a new era of espionage to attempts at influencing other nations and altering trajectories of their politics, investments into a new generation of nuclear weapons and increasing of nuclear stocks to major investments into defence, most states in the world are gearing towards a decade of instability ahead of us.  

Thus, it is not surprising that Sweden and Finland gave up historic policies of neutrality and decided to join NATO, or that Japan is pursuing a historic investment into its defence in a break away from its historic stand, or that China is going to double (or more) its nuclear stocks by 2030, or that even France is about to undertake a historic level of investment in its defence. The list goes on. All of these happen within a context of genuine existential risks to our existence. Like climate change, there are the domino effects of conflicts into our lives from faraway places. From energy prices, to food shortages, to disruption of trade and electronic parts, to new technologies like AI raising all sorts of ethical and practical questions and risks. There are hundreds of millions of human beings living in geographies and countries that are not able to care, provide and protect and give them a sustainable and meaningful life. Irregular migration, named ‘illegal’ in today’s tabloid language, is only increasing across the world, with only a small percentage ever making it to UK or Europe. Human beings do not simply leave their lives behind and take clear risks if they do not feel they have to.  

We are far from being the first-generation processing news of wars and conflicts. 

All of these are overwhelming realities, ones that we cannot simply ignore. It is normal for us to feel guilty as our daily lives continue in relative peace and property compared to millions of others out there, and it is normal for us to feel helpless and at times despair about all these developments that are clearly out of anyone’s control.  

But as I sat there in the cathedral, I could not help but think that this is not the first time the world has gone through such a convergence of insecurities, and unlikely to be the last time, and that we are far from being the first-generation processing news of wars and conflicts and seeing nations take aggressive postures against one another. I thought about so many heroic figures across history that stood up for truth, for peace, for reconciliation, for justice in such moments and so many heroes that gave their lives to defend us against those seeking to harm us. Their legacies remind us that we all have a decision to make, a stand to take and a role to play in such historic moments. On my part, I am all aware of my limitations, and at times feeble attempts to be part of conversations that point towards solutions. I am also all aware of the deep darkness out there, but also as a Christian, a gentle hope that lies within it. The light shines into the darkness, and the darkness has not overcome it. The promise I find in the figure of Christ on the Cross is not an escape to another world, but embracing of the only one we have here and now, in prayer that all of our efforts could together amount to something much bigger than we realise. As TS Eliot put it, for us there is only trying, the rest is not our business!