Article
Assisted dying
Care
Comment
Death & life
Suffering
5 min read

Why end of life agony is not a good reason to allow death on demand

Assisted dying and the unintended consequences of compassion.

Graham is the Director of the Centre for Cultural Witness and a former Bishop of Kensington.

A open hand hold a pill.
Towfiqu Barbhuiya on Unsplash.

Those advocating Assisted Dying really have only one strong argument on their side – the argument from compassion. People who have seen relatives dying in extreme pain and discomfort understandably want to avoid that scenario. Surely the best way is to allow assisted dying as an early way out for such people to avoid the agony that such a death involves?  

Now it’s a powerful argument. To be honest I can’t say what I would feel if I faced such a death, or if I had to watch a loved one go through such an ordeal. All the same, there are good reasons to hold back from legalising assisted dying even in the face of distress at the prospect of enduring or having to watch a painful and agonising death.  

In any legislation, you have to bear in mind unintended consequences. A law may benefit one particular group, but have knock-on effects for another group, or wider social implications that are profoundly harmful. Few laws benefit everyone, so lawmakers have to make difficult decisions balancing the rights and benefits of different groups of people. 

It feels odd to be citing percentages and numbers faced with something so elemental and personal and death and suffering, but it is estimated that around two per cent of us will die in extreme pain and discomfort. Add in the 'safeguards' this bill proposes (a person must be suffering from a terminal disease with fewer than six months to live, capable of making such a decision, with two doctors and a judge to approve it) and the number of people this directly affects becomes really quite small. Much as we all sympathise and feel the force of stories of agonising suffering - and of course, every individual matters - to put it bluntly, is it right to entertain the knock-on effects on other groups in society and to make such a fundamental shift in our moral landscape, for the sake of the small number of us who will face this dreadful prospect? Reading the personal stories of those who have endured extreme pain as they approached death, or those who have to watch over ones do so is heart-rending - yet are they enough on their own to sanction a change to the law? 

Much has been made of the subtle pressure put upon elderly or disabled people to end it all, to stop being a burden on others. I have argued elsewhere on Seen and Unseen that that numerous elderly people will feel a moral obligation to safeguard the family inheritance by choosing an early death rather than spend the family fortune on end of life care, or turning their kids into carers for their elderly parents. Individual choice for those who face end of life pain unintentionally  lands an unenviable and unfair choice on many more vulnerable people in our society. Giles Fraser describes the indirect pressure well: 

“You can say “think of the children” with the tiniest inflection of the voice, make the subtlest of reference to money worries. We communicate with each other, often most powerfully, through almost imperceptible gestures of body language and facial expression. No legal safeguard on earth can detect such subliminal messaging.” 

There is also plenty of testimony that suggests that even with constant pain, life is still worth living. Michelle Anna-Moffatt writes movingly  of her brush with assisted suicide and why she pulled back from it, despite living life in constant pain.  

Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder. 

Despite the safeguards mentioned above, the move towards death on the NHS is bound to lead to a slippery slope – extending the right to die to wider groups with lesser obvious needs. As I wrote in The Times recently, given the grounds on which the case for change is being made – the priority of individual choice – there are no logical grounds for denying the right to die of anyone who chooses that option, regardless of their reasons. If a teenager going through a bout of depression, or a homeless person who cannot see a way out of their situation chooses to end it all, and their choice is absolute, on what grounds could we stop them? Once we have based our ethics on this territory, the slippery slope is not just likely, it is inevitable.  

Then there is the radical shift to our moral landscape. A disabled campaigner argues that asking for someone to help her to die “is no different for me than asking my caregiver to help me on the toilet, or to give me a shower, or a drink, or to help me to eat.” Sorry - but it is different, and we know it. Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder.  

In Canada, many doctors refuse, or don’t have time to administer the fatal dose so companies have sprung up, offering ‘medical professionals’ to come round with the syringe to finish you off. In other words, companies make money out of killing people. It is the commodification of death. When we have got to that point, you know we have wandered from the path somewhere.  

You would have to be stony-hearted indeed not to feel the force of the argument to avoid pain-filled deaths. Yet is a change to benefit such people worth the radical shift of moral value, the knock-on effects on vulnerable people who will come under pressure to die before their time, the move towards death on demand?  

Surely there are better ways to approach this? Doctors can decide to cease treatment to enable a natural death to take its course, or increase painkillers that will may hasten death - that is humane and falls on the right side of the line of treatment as it is done primarily to relieve pain, not to kill. Christian faith does not argue that life is to be preserved at any cost – our belief in martyrdom gives the lie to that. More importantly, a renewed effort to invest in palliative care and improved anaesthetics will surely reduce such deaths in the longer term. These approaches are surely much wiser and less impactful on the large numbers of vulnerable people in our society than the drastic step of legalising killing on the NHS. 

Essay
Comment
Film & TV
Weirdness
5 min read

Disney: 100 years of waiting for Prince Charming

Reflecting on the Disney centenary, Lauren Windle finds herself dis-enchanted with Prince Charming and reflecting on what might be a better kind of attraction.

Lauren Windle is an author, journalist, presenter and public speaker.

A plastic wind-up Snow White toy stands to the right of the photo, with hands clasped waiting
Photo by King Lip on Unsplash.

Picture the scene: you’re outside running an errand; maybe you’re taking the bins out or cleaning your car in the street. The sun is blazing and you’re in a great mood. Bolstered by the good weather, you start to sing to yourself. Maybe you’ve got Spotify on or the car radio’s playing. Just as you’re getting your groove on to Gaga, someone comes up behind you, about a foot away and joins in with the song . . . Startled, you stop singing and swing round to see the other half of your unsolicited duet.  

The other person also stops and says: ‘Hello, did I frighten you?’ Clearly concerned, you back away towards your house. The person continues: ‘Wait, wait, please don’t run away.’ As you dash through the front door and slam it behind you, you hear your uninvited singing partner pick up the song where the two of you left off in an attempt to serenade you as you flee. 

They never made a Snow White 2. Maybe that’s because watching the slow and agonizing breakdown of a relationship that was entered into prematurely isn’t very ‘Disney’. 

Menacing, right? No one’s stopping to swap numbers with the creepy crooner. Except this is the exact interaction between Snow White and Prince Charming in the Disney film (1937). Word for word. I sat through it to check. Did she call the police? Was she embarrassed and uncomfortable with his invasion of her personal space? Did she drop a message to the other princesses to tell them to watch out for the crackpot future king? None of the above. The next time we hear her speak about the prince, Snow White is talking to the seven dwarfs and explaining that she’s ‘in love with him’, he’s ‘the only one’ for her and ‘there’s nobody like him anywhere at all’. Those are actual quotes.  

When the prince and Snow White are finally reunited, she is woken from her unconsciousness by his kiss and he leads her away, wordlessly, into the sunset. In the whole film Snow White doesn’t say a word directly to the prince. 

They never made a Snow White 2. Maybe that’s because watching the slow and agonizing breakdown of a relationship that was entered into prematurely isn’t very ‘Disney’. I, for one, would pay to watch as Snow White grows to realize that marrying someone who looms up on young women and breaks into song isn’t all it’s cracked up to be; and as the prince gets fed up with all the woodland creatures leaving their droppings as they traipse through the house to help with all the various daily chores. 

Now this is key so listen up: there is no ‘the one’ and you do not have a ‘soulmate’. 

The relationships we saw as children to model our hopes and dreams on were fundamentally flawed and Disney was at the heart of what I will be calling from here on in ‘The Great Deception’. In our treasured childhood films feelings of love didn’t grow from a deep and mutual understanding of who the other was. It was an encounter that sparked love at first sight, followed by some questionable courtship practices. It’s a sinister day in the magical kingdom when you realise Belle was a hostage with Stockholm syndrome; Ariel changed her species and gave up her voice in order to gain favour with the prince; and Sleeping Beauty was given a non-consensual kiss while unconscious. 

We know all these are fairy stories, but the material we surround ourselves with has a tendency to stick, no matter how impervious we believe ourselves to be. Somewhere between Cinderella’s pre-midnight Waltz and Aladdin and Jasmine’s market stall encounter we fell for the idea that instant attraction is preferable to that which builds and develops more slowly over a longer period of time. The reality is that some of the best, most fulfilling relationships don’t kick off with irrepressible feelings of chemistry. In some cases, that chemistry wanes over time and in others it develops with greater engagement. 

That said, those of us who are conscious that a pretty face or a banging body aren’t all they’re cracked up to be when contributing to a lifetime-length relationship, do forget that attraction is still important. The best depiction of a healthy attraction I’ve heard is Will van der Hart’s on The Dating Course. He compares a relationship to a church candle – one of those fat pillar ones. The attraction is the wick; you need it to get the thing going. But if you’re all wick, you’ll burn out quickly. The wax is the substance, the friendship, the deeper understanding of each other, the experiences you share. But if you’re all wax, you can’t get the flame going. However, if you have both, you’ve got a candle that will burn brightly and for a long time. 

Another glug of Kool-Aid that Snow White had guzzled down was this idea of ‘the one’. Now this is key so listen up: there is no ‘the one’ and you do not have a ‘soulmate’. Neither of those things exist. Mr/Mrs Right is not out there. Get on with your life. 

The entertainment conglomerate has done its best in recent years to repent for the generations of young girls with unrealistic romantic expectations. 

Back in the ancient days of Athens, Plato shared some questionable insight into the origin of humans. Turns out, way back when, people had four legs, four arms and a head with two faces. Zeus, despite being king of the gods, was afraid of what these eight-appendaged, double-faced people could do, so he split them down the middle. Humans, now incomplete, walked the earth pining for their other half, throwing their arms around each other and intertwining their bodies in an attempt to grow together. In summary, the idea of a missing person to complete you is not founded on any scientific or biblical truth. It’s misinformation from Plato and Jerry Maguire. It is not a great premise to build your life and expectations on. It’s a waste of time. 

What someone should have told Walt was that there are a number of people Snow White would meet in her life who would be a suitable marriage partner for her. She would have a different but fulfilling life with each. A person would become ‘the one’ when she chose to commit to them, because she would be making a promise to them to eliminate all others from the equation. Leaving just one. 

The entertainment conglomerate has done its best in recent years to repent for the generations of young girls with unrealistic romantic expectations. They’ve produced a slew of powerful and sassy women, out for adventure with no love interest in sight; see Moana and Raya and the Last Dragon. But for myself and my millennial peers, the stage has already been set. If he doesn’t rock up on a valiant steed, quite frankly, we’re not interested.