Article
Assisted dying
Care
Comment
Death & life
Suffering
5 min read

Why end of life agony is not a good reason to allow death on demand

Assisted dying and the unintended consequences of compassion.

Graham is the Director of the Centre for Cultural Witness and a former Bishop of Kensington.

A open hand hold a pill.
Towfiqu Barbhuiya on Unsplash.

Those advocating Assisted Dying really have only one strong argument on their side – the argument from compassion. People who have seen relatives dying in extreme pain and discomfort understandably want to avoid that scenario. Surely the best way is to allow assisted dying as an early way out for such people to avoid the agony that such a death involves?  

Now it’s a powerful argument. To be honest I can’t say what I would feel if I faced such a death, or if I had to watch a loved one go through such an ordeal. All the same, there are good reasons to hold back from legalising assisted dying even in the face of distress at the prospect of enduring or having to watch a painful and agonising death.  

In any legislation, you have to bear in mind unintended consequences. A law may benefit one particular group, but have knock-on effects for another group, or wider social implications that are profoundly harmful. Few laws benefit everyone, so lawmakers have to make difficult decisions balancing the rights and benefits of different groups of people. 

It feels odd to be citing percentages and numbers faced with something so elemental and personal and death and suffering, but it is estimated that around two per cent of us will die in extreme pain and discomfort. Add in the 'safeguards' this bill proposes (a person must be suffering from a terminal disease with fewer than six months to live, capable of making such a decision, with two doctors and a judge to approve it) and the number of people this directly affects becomes really quite small. Much as we all sympathise and feel the force of stories of agonising suffering - and of course, every individual matters - to put it bluntly, is it right to entertain the knock-on effects on other groups in society and to make such a fundamental shift in our moral landscape, for the sake of the small number of us who will face this dreadful prospect? Reading the personal stories of those who have endured extreme pain as they approached death, or those who have to watch over ones do so is heart-rending - yet are they enough on their own to sanction a change to the law? 

Much has been made of the subtle pressure put upon elderly or disabled people to end it all, to stop being a burden on others. I have argued elsewhere on Seen and Unseen that that numerous elderly people will feel a moral obligation to safeguard the family inheritance by choosing an early death rather than spend the family fortune on end of life care, or turning their kids into carers for their elderly parents. Individual choice for those who face end of life pain unintentionally  lands an unenviable and unfair choice on many more vulnerable people in our society. Giles Fraser describes the indirect pressure well: 

“You can say “think of the children” with the tiniest inflection of the voice, make the subtlest of reference to money worries. We communicate with each other, often most powerfully, through almost imperceptible gestures of body language and facial expression. No legal safeguard on earth can detect such subliminal messaging.” 

There is also plenty of testimony that suggests that even with constant pain, life is still worth living. Michelle Anna-Moffatt writes movingly  of her brush with assisted suicide and why she pulled back from it, despite living life in constant pain.  

Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder. 

Despite the safeguards mentioned above, the move towards death on the NHS is bound to lead to a slippery slope – extending the right to die to wider groups with lesser obvious needs. As I wrote in The Times recently, given the grounds on which the case for change is being made – the priority of individual choice – there are no logical grounds for denying the right to die of anyone who chooses that option, regardless of their reasons. If a teenager going through a bout of depression, or a homeless person who cannot see a way out of their situation chooses to end it all, and their choice is absolute, on what grounds could we stop them? Once we have based our ethics on this territory, the slippery slope is not just likely, it is inevitable.  

Then there is the radical shift to our moral landscape. A disabled campaigner argues that asking for someone to help her to die “is no different for me than asking my caregiver to help me on the toilet, or to give me a shower, or a drink, or to help me to eat.” Sorry - but it is different, and we know it. Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder.  

In Canada, many doctors refuse, or don’t have time to administer the fatal dose so companies have sprung up, offering ‘medical professionals’ to come round with the syringe to finish you off. In other words, companies make money out of killing people. It is the commodification of death. When we have got to that point, you know we have wandered from the path somewhere.  

You would have to be stony-hearted indeed not to feel the force of the argument to avoid pain-filled deaths. Yet is a change to benefit such people worth the radical shift of moral value, the knock-on effects on vulnerable people who will come under pressure to die before their time, the move towards death on demand?  

Surely there are better ways to approach this? Doctors can decide to cease treatment to enable a natural death to take its course, or increase painkillers that will may hasten death - that is humane and falls on the right side of the line of treatment as it is done primarily to relieve pain, not to kill. Christian faith does not argue that life is to be preserved at any cost – our belief in martyrdom gives the lie to that. More importantly, a renewed effort to invest in palliative care and improved anaesthetics will surely reduce such deaths in the longer term. These approaches are surely much wiser and less impactful on the large numbers of vulnerable people in our society than the drastic step of legalising killing on the NHS. 

Article
Culture
Suffering
5 min read

Protection from evil shouldn’t rely on a blue glass bead

Faith goes beyond culture in my beloved Türkiye

Becky is a a writer living in Istanbul.

Blue evil eye charms hang among a jewellery display
Vik Walker, CC BY 2.0, via Wikimedia Commons

‘Mashallah, your baby is so ugly!’. 

The elderly ‘auntie’ stopped me in the street, exclaiming over my 3-month-old baby, who was strapped to my front, and before I could translate in my mind what she’d said, quick as lightning, she had safety-pinned a teeny tiny glass blue eyeball to the sling.  

I had just moved to Türkiye from the UK and was waist-deep in culture shock. My new friend explained to me that she had pinned the ‘nazar’, a little blue bead in the shape of an eye, on my baby to protect him from evil spirits or anyone's jealousy that would cause them to wish him harm. Mashallah means ‘God wills it’, and calling the baby ‘ugly’ was also for double protection, to distract the evil eye from the fact that he was cute (he was!). 

This belief in an evil eye dates back to ancient Greek and Roman times. The little blue nazar represents both the evil eye itself - a widely-feared, dangerous power that could harm others, including their crops or livelihood – and at the time offers protection against it. From Azerbaijan to Pakistan, multiple countries in central Asia and the Middle East believe in the nazar or a variation of it.  

Today, the nazar is such a deeply ingrained cultural thread of life here in Türkiye that, nine years later, I hardly notice it anymore. Nazars are the country’s unofficial brand logo, and the bright azure blue with a white iris and black pupil is the colour palette for Türkiye. 

Wherever I go, little blue eyeballs stare at me. From crinkly-faced kind teyzes (aunties) to the young influencer girls on Instagram, nazar necklaces are everywhere. Glass blue nazars decorate walls, tables, and trees. 

Just yesterday, I was at a friend's clothes studio; for her grand opening, all the gifts from well-wishing friends for her new business were nazar-themed: a tray, a paperweight, and earrings.  

So how does ‘nazar’ work? If someone compliments you or anything about you, it's believed that it can attract the evil eye with a harmful curse against you or your possessions. To cancel out the curse, there's a selection of phrases you can say, including ‘mashallah,’ or ‘Allah korusun’ (may God protect you).  

Other ways you can ward off the unwanted attention of the evil eye include avoiding staring at children in the eyes for too long, spitting on the ground, and, of course, the most popular, hanging a blue glass evil eye bead wherever you can (there is even a huge one embedded on the front door threshold of our apartment.) 

A close friend always tells me to pray a special nazar prayer over my youngest son because he has bright blue eyes, which she believes makes him more susceptible to the evil eye's powers. I respectfully tell her that I have a different belief, and I pray for my family for protection from Jesus. (Whom Muslims revere as a prophet, so this is acceptable to her). 

As a woman of faith who has lived in Türkiye for nine years, there is so much of the beautiful Turkish culture that has become mine, and for that, I am so grateful. Living cross-culturally is a little like having a heart transplant - there's no going back. My views on health, parenting, family, and community are now all so broadened and different. But the nazar trend is something I haven't adopted. When I go shopping with my girlfriends, and they browse stunning gold necklaces with a tiny ‘nazar’ embedded in the pendant, I won’t buy one for myself.  

Because faith goes one step beyond culture. 

The evil eye is based on a superstition about jealousy that has malice at its core. It wants to wreak harm on others. Now, we don’t need to look far to see that we humans are pretty good at being selfish and greedy and hurting others to get what we want. Scroll through the news for five minutes, and we’re convinced of the presence of evil in our world.  

But superstitious belief in the powers of nazar is not the way to ward it off. 

The dictionary definition of superstition is: ‘a belief or way of behaving that is based on fear of the unknown and faith in magic or luck: a belief that certain events or things will bring good or bad luck. 'Both superstition and faith are about believing in things that can’t be seen. Superstition puts it all on you to follow some rules to avoid bad luck or evil. But that’s a bit like shooting in the dark. Believing in the nazar means you can obey all the rules of the system and hang blue beads everywhere… and you can still experience evil and suffering. A loved one gets sick. Problems at work. Whatever it might be. So, either the nazar didn’t work, or you didn’t do it right. 

Faith, by contrast, still means you can experience evil and suffering – but the difference this time is, the outcome isn’t attached to a physical action you took. It's about a relationship with someone who cares about our fears rather than trusting in a blind action that may or may not work. And if we want protection from evil, we can we simply ask for it. No blue beads necessary.

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