Article
Assisted dying
Care
Comment
Death & life
Suffering
5 min read

Why end of life agony is not a good reason to allow death on demand

Assisted dying and the unintended consequences of compassion.

Graham is the Director of the Centre for Cultural Witness and a former Bishop of Kensington.

A open hand hold a pill.
Towfiqu Barbhuiya on Unsplash.

Those advocating Assisted Dying really have only one strong argument on their side – the argument from compassion. People who have seen relatives dying in extreme pain and discomfort understandably want to avoid that scenario. Surely the best way is to allow assisted dying as an early way out for such people to avoid the agony that such a death involves?  

Now it’s a powerful argument. To be honest I can’t say what I would feel if I faced such a death, or if I had to watch a loved one go through such an ordeal. All the same, there are good reasons to hold back from legalising assisted dying even in the face of distress at the prospect of enduring or having to watch a painful and agonising death.  

In any legislation, you have to bear in mind unintended consequences. A law may benefit one particular group, but have knock-on effects for another group, or wider social implications that are profoundly harmful. Few laws benefit everyone, so lawmakers have to make difficult decisions balancing the rights and benefits of different groups of people. 

It feels odd to be citing percentages and numbers faced with something so elemental and personal and death and suffering, but it is estimated that around two per cent of us will die in extreme pain and discomfort. Add in the 'safeguards' this bill proposes (a person must be suffering from a terminal disease with fewer than six months to live, capable of making such a decision, with two doctors and a judge to approve it) and the number of people this directly affects becomes really quite small. Much as we all sympathise and feel the force of stories of agonising suffering - and of course, every individual matters - to put it bluntly, is it right to entertain the knock-on effects on other groups in society and to make such a fundamental shift in our moral landscape, for the sake of the small number of us who will face this dreadful prospect? Reading the personal stories of those who have endured extreme pain as they approached death, or those who have to watch over ones do so is heart-rending - yet are they enough on their own to sanction a change to the law? 

Much has been made of the subtle pressure put upon elderly or disabled people to end it all, to stop being a burden on others. I have argued elsewhere on Seen and Unseen that that numerous elderly people will feel a moral obligation to safeguard the family inheritance by choosing an early death rather than spend the family fortune on end of life care, or turning their kids into carers for their elderly parents. Individual choice for those who face end of life pain unintentionally  lands an unenviable and unfair choice on many more vulnerable people in our society. Giles Fraser describes the indirect pressure well: 

“You can say “think of the children” with the tiniest inflection of the voice, make the subtlest of reference to money worries. We communicate with each other, often most powerfully, through almost imperceptible gestures of body language and facial expression. No legal safeguard on earth can detect such subliminal messaging.” 

There is also plenty of testimony that suggests that even with constant pain, life is still worth living. Michelle Anna-Moffatt writes movingly  of her brush with assisted suicide and why she pulled back from it, despite living life in constant pain.  

Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder. 

Despite the safeguards mentioned above, the move towards death on the NHS is bound to lead to a slippery slope – extending the right to die to wider groups with lesser obvious needs. As I wrote in The Times recently, given the grounds on which the case for change is being made – the priority of individual choice – there are no logical grounds for denying the right to die of anyone who chooses that option, regardless of their reasons. If a teenager going through a bout of depression, or a homeless person who cannot see a way out of their situation chooses to end it all, and their choice is absolute, on what grounds could we stop them? Once we have based our ethics on this territory, the slippery slope is not just likely, it is inevitable.  

Then there is the radical shift to our moral landscape. A disabled campaigner argues that asking for someone to help her to die “is no different for me than asking my caregiver to help me on the toilet, or to give me a shower, or a drink, or to help me to eat.” Sorry - but it is different, and we know it. Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder.  

In Canada, many doctors refuse, or don’t have time to administer the fatal dose so companies have sprung up, offering ‘medical professionals’ to come round with the syringe to finish you off. In other words, companies make money out of killing people. It is the commodification of death. When we have got to that point, you know we have wandered from the path somewhere.  

You would have to be stony-hearted indeed not to feel the force of the argument to avoid pain-filled deaths. Yet is a change to benefit such people worth the radical shift of moral value, the knock-on effects on vulnerable people who will come under pressure to die before their time, the move towards death on demand?  

Surely there are better ways to approach this? Doctors can decide to cease treatment to enable a natural death to take its course, or increase painkillers that will may hasten death - that is humane and falls on the right side of the line of treatment as it is done primarily to relieve pain, not to kill. Christian faith does not argue that life is to be preserved at any cost – our belief in martyrdom gives the lie to that. More importantly, a renewed effort to invest in palliative care and improved anaesthetics will surely reduce such deaths in the longer term. These approaches are surely much wiser and less impactful on the large numbers of vulnerable people in our society than the drastic step of legalising killing on the NHS. 

Column
Comment
9 min read

From the barber’s chair: the friendships that open us up

Adrian and Neal recall and recount tales of friendships and what made them work so well.
Three men walk down a path, the middle one talking and gesturing while the others listen.
Centre for Ageing Better on Unsplash.

Adrian

As life moves on, I began to realize how important my friendships are. Half the people that I grew up with are now married with kids and the other half are still living their life independently. We all have our own paths in life, and I believe whichever path you take, those whom you consider friends will support you and your decisions no matter what. 

As I went through my issues in 2019, I had nothing but support from my family and 

friends. It wasn't easy for me to be open with my struggles because I felt that everyone would look at me differently. I received nothing but support from everyone then and when I returned to work. They were all there, waiting to book their next cuts with me. From the beginning of my return I knew, then, how important my clients were to me. I wasn't just their barber; I was their friend whom they continued to support even during one of the craziest times in my life.  

Trying to stay afloat during a global pandemic was not easy; honestly it was one of the hardest things I’ve had to deal with. I knew I had to be as strong as I could be so I could help my loved ones stay positive and their heads held high. 

During these times, I worked as much as possible. At every appointment with a client, they showed support and always checked in with how I was. I used all these opportunities to help myself by speaking what was on my mind. Sometimes they would even open up to me and share what was going on in their lives, positive or negative. These times were much needed therapy sessions at every appointment. Being vulnerable helped me so much and it also helped my friends share what was on their minds; they opened up to me. 

When I finally felt right to open up about this incident it was with people who shared the same struggles. They understood and never once judged me. 

Growing up we were taught never to show any fear or emotion. I grew up in a rough area where if you showed weakness, you could be the next target to get bullied. I didn't realize until about four years ago how that way of living was wrong. That way of living haunted me for years.  

Going back to my childhood, there was an incident that shaped my teens and early 

adulthood. I was touched inappropriately by a member of my family and thankfully someone came home so it didn't go further than it did. I never spoke about this incident because I didn't realize the severity of the situation as a young boy and how it would affect me in my later life. You would never think a family member would do anything to put you or harm you in any way. Even as an adult I never said anything because I did not want to get judged or have people put a label on me that wasn't true. When I finally felt right to open up about this incident it was with people who shared the same struggles. They understood and never once judged me. 

These were people who I just met but I felt like I had known them for years. I opened up to them more than I had opened up to my childhood friends and family.  

This is where I discovered the meaning of friendship. I was never judged and looked at differently. I was the same person to them, and I was accepted no matter what. What a great feeling. I began to hold my friendships close as I had the confidence to share so much with everyone. One of the first clients whom I felt comfortable with opening up with was my friend Neal. I remember going over to cut Neal’s and his sons’ hair and I always left feeling purified. I can honestly say that Neal is one-of-a-kind and I'm so lucky to have him by my side. Neal has seen me at my lowest and never once has he ever judged me. 

He and his family have shown nothing but support and just truly care for our friendship. This is where I discovered the meaning of friendship. To me, the meaning of friendship is endless love no matter what the person or persons are going through. You never judge but try to point your friend or loved one in the right direction. Always support and be there when you can. We can take for granted those friendships and lose sight that they are the ones that would be there with a simple phone call or text. 

Today I cherish all my friendships and I'm there for those who were there for me when I was at my lowest. I will do anything in my power because I know my friends and family would do the same for me. 

Neal

Thirty years ago, there were a little over 600 websites, two years after the World Wide Web debuted on the global stage. Today, there are a little over two billion websites. Yet, with all of our connectivity, loneliness is endemic. The social isolation that ensued during COVID-19 only exacerbated what was latent in our body politic. Yet, whether pre-, peri-, or post-COVID, the level and depth of loneliness is staggering. While many people have social media accounts, and the ubiquity of smart devices keep us all connected 24/7, one’s number of “likes,” “friends,” “followers” belie what is experienced in silence: we live, and move, and have our being in lonesome existence. We seek to be known and loved, but our career pursuits and dreams of having families leave us feeling alone.  

They desired someone or a few who could understand them, who desired to understand them, to love them.  And to love them not for a quid pro quo, but just to love them for who they are. 

For eight years I served an affluent congregation in one of America’s most affluent ZIP codes. Business acumen, political gravitas, excellence in duty, and elegance in program execution were the values and expectations of the community and congregational context. It was a wonderful ministry, where I learned much and where I had to engage my gifts and skills in deeper ways. God opened up spaces for me to minister within, love and be loved by people who were successful in their industry.  

When that ministry concluded, two separate congregants asked to meet for a meal. Each of them shared that they appreciated my season of pastoral ministry and they hoped that we would continue staying in touch, perhaps become close friends. They realized that they had spent decades forging business relationships, raising a family (for one of them, navigating a divorce of a second failed marriage), and having careers. Now in their mid-/late fifties they looked around and saw the absence of relationships of any meaningful depth. Sure, there were the business lunches, dinners with friends and cocktails with other couples. But in their mid-life, they sought authentic friendships. They desired someone or a few who could understand them, who desired to understand them, to love them.  And to love them not for a quid pro quo, but just to love them for who they are. They said that they experienced a semblance of that in my eight-year ministry with the congregation.  

What was I to do with their request? I had already left the employment of the church by then. They and I had to part ways as I was no longer their pastor. If anything, we were friends, and would remain so, but I could not commit to the level of depth they desired. I told each of them, gently and pastorally, that two decades ago, when I was newly married and starting my pastoral vocation, I intentionally forged a wide network of friendships. Not just for my work but for emotional and spiritual support.  But among this network, there was that small few whom I can count on one hand who are the A-Team of friendships. Those friendships were cultivated over many years – a couple of them over two decades – as we have been intentional about being in each other’s lives. We would stay in touch and would find opportunities to see each other, carving out precious times wherever we were in the world and whatever demands were on our plate.  That intentional commitment meant being willing to be vulnerable. It meant taking the risk early on to open up my heart with guys I deeply trusted and who entrusted their hearts to me. 

The Message version of the Old Testament wisdom sayings of Proverbs says: “Friends come and friends go, but a true friend sticks by you like family.” 

It’s that quality of friendship that is most needed more than ever. It’s the God-shaped heart that takes the risk to love and be loved. It’s the kind where you can whisper to your friend the sacred longings, hopes, dreams, and fears of your heart 

I didn’t want to deflate the spirits of my two former congregants. But neither did I want to over-promise, to commit myself to investing the time and energy in cultivating the depth of friendship they sought. I told them let’s stay in touch and we left it that. It’s been over a year since those sacred conversations and there’s radio silence.  

In reflecting upon those conversations, and in similar conversations with many pastor colleagues and fellow dads who are not pastors, loneliness is, indeed, endemic. It’s tragic and it’s sad. As we can’t be deep friends with everyone, there is a yearning and longing for the depth of friendships that my former congregants sought. People seek that authentic depth of desiring to be known, of being listened to, of being received and welcomed into one’s heart without having to prove anything.  

As Jesus was nearing the end of his time with his friends (his disciples), he emphasized how important it is to love one another. He even washes their feet to demonstrate that even the Son of God will humble himself because he loves his friends. He teaches them what he means when he calls them friends, when he regards us as his friends, and not as servants. This is what Jesus our friend said,  

“I do not call you servants any longer, because the servant does not know what the master is doing, but I have called you friends, because I have made known to you everything that I have heard from my Father” 

The late Earl Palmer, an American Presbyterian pastor, taught from this passage. Palmer observed that Jesus regards us as his friend by virtue of the fact that Jesus allows us to be in the company of him and the heavenly Father as they have a conversation about the secrets of God’s heart. In other words, only to his friends will Jesus whisper the Father’s heart because to do so is to entrust the treasure of the One who loves him into our own heart. That by doing so, we are let into the heart of God. 

It’s that quality of friendship that is most needed more than ever. It’s the God-shaped heart that takes the risk to love and be loved. It’s the kind where you can whisper to your friend the sacred longings, hopes, dreams, and fears of your heart. It’s, likewise, receiving from your friend the same: being entrusted with the treasure of their heart. And it’s also experiencing joy and delight in being with each other, even through online technology, whether it be for a 15-minute coffee or for a whole day at the tennis courts or sharing corny jokes that no one else appreciates but they do.  

Friendships are gifts of God and gifts from God. The ability to open up our hearts and lives to others is a gift of and from God as well. In doing so, we reflect a bit on what Jesus shows us what love is about, what it takes to love, and what it means to be loved.  

The wise words of philosopher and poet, Henri-Frédéric Amiel, encapsulate well what is needed more than ever:  

“Life is short. We have but little time to gladden the hearts of those who walk this way with us. So we swift to love, make haste to be kind.”