Article
Assisted dying
Care
Comment
Death & life
Suffering
5 min read

Why end of life agony is not a good reason to allow death on demand

Assisted dying and the unintended consequences of compassion.

Graham is the Director of the Centre for Cultural Witness and a former Bishop of Kensington.

A open hand hold a pill.
Towfiqu Barbhuiya on Unsplash.

Those advocating Assisted Dying really have only one strong argument on their side – the argument from compassion. People who have seen relatives dying in extreme pain and discomfort understandably want to avoid that scenario. Surely the best way is to allow assisted dying as an early way out for such people to avoid the agony that such a death involves?  

Now it’s a powerful argument. To be honest I can’t say what I would feel if I faced such a death, or if I had to watch a loved one go through such an ordeal. All the same, there are good reasons to hold back from legalising assisted dying even in the face of distress at the prospect of enduring or having to watch a painful and agonising death.  

In any legislation, you have to bear in mind unintended consequences. A law may benefit one particular group, but have knock-on effects for another group, or wider social implications that are profoundly harmful. Few laws benefit everyone, so lawmakers have to make difficult decisions balancing the rights and benefits of different groups of people. 

It feels odd to be citing percentages and numbers faced with something so elemental and personal and death and suffering, but it is estimated that around two per cent of us will die in extreme pain and discomfort. Add in the 'safeguards' this bill proposes (a person must be suffering from a terminal disease with fewer than six months to live, capable of making such a decision, with two doctors and a judge to approve it) and the number of people this directly affects becomes really quite small. Much as we all sympathise and feel the force of stories of agonising suffering - and of course, every individual matters - to put it bluntly, is it right to entertain the knock-on effects on other groups in society and to make such a fundamental shift in our moral landscape, for the sake of the small number of us who will face this dreadful prospect? Reading the personal stories of those who have endured extreme pain as they approached death, or those who have to watch over ones do so is heart-rending - yet are they enough on their own to sanction a change to the law? 

Much has been made of the subtle pressure put upon elderly or disabled people to end it all, to stop being a burden on others. I have argued elsewhere on Seen and Unseen that that numerous elderly people will feel a moral obligation to safeguard the family inheritance by choosing an early death rather than spend the family fortune on end of life care, or turning their kids into carers for their elderly parents. Individual choice for those who face end of life pain unintentionally  lands an unenviable and unfair choice on many more vulnerable people in our society. Giles Fraser describes the indirect pressure well: 

“You can say “think of the children” with the tiniest inflection of the voice, make the subtlest of reference to money worries. We communicate with each other, often most powerfully, through almost imperceptible gestures of body language and facial expression. No legal safeguard on earth can detect such subliminal messaging.” 

There is also plenty of testimony that suggests that even with constant pain, life is still worth living. Michelle Anna-Moffatt writes movingly  of her brush with assisted suicide and why she pulled back from it, despite living life in constant pain.  

Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder. 

Despite the safeguards mentioned above, the move towards death on the NHS is bound to lead to a slippery slope – extending the right to die to wider groups with lesser obvious needs. As I wrote in The Times recently, given the grounds on which the case for change is being made – the priority of individual choice – there are no logical grounds for denying the right to die of anyone who chooses that option, regardless of their reasons. If a teenager going through a bout of depression, or a homeless person who cannot see a way out of their situation chooses to end it all, and their choice is absolute, on what grounds could we stop them? Once we have based our ethics on this territory, the slippery slope is not just likely, it is inevitable.  

Then there is the radical shift to our moral landscape. A disabled campaigner argues that asking for someone to help her to die “is no different for me than asking my caregiver to help me on the toilet, or to give me a shower, or a drink, or to help me to eat.” Sorry - but it is different, and we know it. Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder.  

In Canada, many doctors refuse, or don’t have time to administer the fatal dose so companies have sprung up, offering ‘medical professionals’ to come round with the syringe to finish you off. In other words, companies make money out of killing people. It is the commodification of death. When we have got to that point, you know we have wandered from the path somewhere.  

You would have to be stony-hearted indeed not to feel the force of the argument to avoid pain-filled deaths. Yet is a change to benefit such people worth the radical shift of moral value, the knock-on effects on vulnerable people who will come under pressure to die before their time, the move towards death on demand?  

Surely there are better ways to approach this? Doctors can decide to cease treatment to enable a natural death to take its course, or increase painkillers that will may hasten death - that is humane and falls on the right side of the line of treatment as it is done primarily to relieve pain, not to kill. Christian faith does not argue that life is to be preserved at any cost – our belief in martyrdom gives the lie to that. More importantly, a renewed effort to invest in palliative care and improved anaesthetics will surely reduce such deaths in the longer term. These approaches are surely much wiser and less impactful on the large numbers of vulnerable people in our society than the drastic step of legalising killing on the NHS. 

Article
Comment
Football
Identity
Sport
5 min read

How I came to love my new neighbours

Moving to Liverpool, home to the team he hated, challenges football supporter Sam Tomlin’s sense of belonging.

Sam Tomlin is a Salvation Army officer, leading a local church in Liverpool where he lives with his wife and children.

Silouhetted by red flare smoke, celebrating footballs wave red flags.
Liverpool football fans celebrate.
Fleur on Unsplash.

I was born in Exeter, England but my family moved to Oxford when I was two. I don’t remember Exeter at all. I am sometimes envious of people who proudly share how they were ‘born and bred’ in a city or town and trace their lineage there back generations. I profoundly identified with Nick Hornby in his brilliant book Fever Pitch when he describes being a white, middle-class, southern English man or woman as being ‘the most rootless creature on earth; we would rather belong to any other community in the world. Yorkshiremen, Lancastrians, Scots, the Irish… have something they can sit in pubs and bars and weep about, songs to sing, things they can grab for and squeeze hard when they feel like it, but we have nothing, or at least nothing we want.’ 

I began to love football and started attending games. My Dad, born in Bristol, took me to Oxford United and while I enjoyed going with my friends, I could tell he didn’t care as much when Oxford scored compared to when we went to Bristol City games when I would see a normally calm and controlled man hug random strangers and fall over seats. This is much more exciting – so I committed myself as a Bristol City fan which I am to this day. 

Growing up in a school in Oxford, however, it’s not particularly cool to say you support Bristol City, so if you supported a lower league team you also pick a Premier League team. Mine was Manchester United for the very unoriginal reason that they were the best. I had posters of Roy Keane – my hero on whom I modelled my playing style and I even travelled up to Old Trafford when a ticket very occasionally presented itself. They were my second team – and a very close second. 

Over the years I have come to deeply love the streets, landmarks and people who call this home as I have lived and served alongside them.

When you support a football team, you also commit to disliking other teams as part of the deal. Most teams have a local rival they enjoy hating, and while I certainly disliked Bristol Rovers, my particular ire was reserved for Liverpool, partly because they were Man Utd’s main rivals in the late 90’s and partly because some of my friends supported them (for the same reason I’ve always had an irrational dislike of QPR but that’s another story). I really disliked Liverpool – I didn’t quite have a poster of Michael Owen or Phil Babb to throw darts at but it wasn’t far off. Football rivalry is a serious business – in the 70’s and 80’s people lost their lives to football hooliganism and while this has thankfully decreased in recent decades, additional police presence is still required at local derbies as passions continue to run high. 

I feel quite vulnerable sharing this publicly because it’s something I’ve never shared with the congregation I’ve been leading with my wife for over seven years. The reason for this is that we now live in Liverpool. God, it seems, has a great sense of irony – we became Salvation Army officers and not choosing where we were sent, the letter we opened in 2016 telling us where we would be ‘appointed’ said: Liverpool! 

'The very first person you meet is the neighbour, whom you shall love… There is not a single person in the whole world who is as surely and as easily recognised as the neighbour.’ 

Søren Kierkegaard 

Jesus says that the greatest commandments are to love God with everything that you are, and to love your neighbour as yourself. In response to a question about ‘who’ our true neighbours are, he shares a story about a man on a journey far from home who is beaten up and left for dead. His compatriots walk on the other side of the road, but someone from another, distrusted and strange land comes and takes care of him. 

Søren Kierkegaard reflects on these stories and observes how humans like to abstract these commands to suit us better. We think our neighbours are those who look and sound like us as much as possible – this is the impulse of patriotism or love of country. But I have never been to Middleborough, Lincoln, or Dundee and while these people might be my compatriots, they are not really my neighbours – to some extent my love for them is an abstraction from reality. For Kierkegaard, ‘The very first person you meet is the neighbour, whom you shall love… There is not a single person in the whole world who is as surely and as easily recognised as the neighbour.’ In this regard, Kierkegaard suggests, Christian loyalty and love is more appropriately applied to a neighbourhood, town or city than it is to a nation or country (this essay by Stephen Backhouse explains more on this with reference to Kierkegaard). 

The people I meet every day, walking around the streets of Liverpool are my neighbours and as such I am commanded as a follower of Jesus to love them. This love of God has not only helped me fall in love with a city I once did not know, but even transform something as ingrained as football rivalry. The most fundamental and formative songs I sing are about Jesus, not of a city and the narrative I try and organise my life around is found in the Bible not the history of a city or football club. But we are embodied creatures, and God creates us in and calls us to particular places, where we live, breathe and encounter our neighbours. I don’t think I’d go as far as saying I have become a Liverpool fan! I would still want Liverpool to lose if they played Bristol City and Man Utd, but the God who is able to transform even the deepest hatred into love has softened the heart of this southern, middle-class boy into a love of his new city, its people and perhaps even one of its football teams I once intensely disliked.