Article
Assisted dying
Care
Comment
Death & life
Suffering
5 min read

Why end of life agony is not a good reason to allow death on demand

Assisted dying and the unintended consequences of compassion.

Graham is the Director of the Centre for Cultural Witness and a former Bishop of Kensington.

A open hand hold a pill.
Towfiqu Barbhuiya on Unsplash.

Those advocating Assisted Dying really have only one strong argument on their side – the argument from compassion. People who have seen relatives dying in extreme pain and discomfort understandably want to avoid that scenario. Surely the best way is to allow assisted dying as an early way out for such people to avoid the agony that such a death involves?  

Now it’s a powerful argument. To be honest I can’t say what I would feel if I faced such a death, or if I had to watch a loved one go through such an ordeal. All the same, there are good reasons to hold back from legalising assisted dying even in the face of distress at the prospect of enduring or having to watch a painful and agonising death.  

In any legislation, you have to bear in mind unintended consequences. A law may benefit one particular group, but have knock-on effects for another group, or wider social implications that are profoundly harmful. Few laws benefit everyone, so lawmakers have to make difficult decisions balancing the rights and benefits of different groups of people. 

It feels odd to be citing percentages and numbers faced with something so elemental and personal and death and suffering, but it is estimated that around two per cent of us will die in extreme pain and discomfort. Add in the 'safeguards' this bill proposes (a person must be suffering from a terminal disease with fewer than six months to live, capable of making such a decision, with two doctors and a judge to approve it) and the number of people this directly affects becomes really quite small. Much as we all sympathise and feel the force of stories of agonising suffering - and of course, every individual matters - to put it bluntly, is it right to entertain the knock-on effects on other groups in society and to make such a fundamental shift in our moral landscape, for the sake of the small number of us who will face this dreadful prospect? Reading the personal stories of those who have endured extreme pain as they approached death, or those who have to watch over ones do so is heart-rending - yet are they enough on their own to sanction a change to the law? 

Much has been made of the subtle pressure put upon elderly or disabled people to end it all, to stop being a burden on others. I have argued elsewhere on Seen and Unseen that that numerous elderly people will feel a moral obligation to safeguard the family inheritance by choosing an early death rather than spend the family fortune on end of life care, or turning their kids into carers for their elderly parents. Individual choice for those who face end of life pain unintentionally  lands an unenviable and unfair choice on many more vulnerable people in our society. Giles Fraser describes the indirect pressure well: 

“You can say “think of the children” with the tiniest inflection of the voice, make the subtlest of reference to money worries. We communicate with each other, often most powerfully, through almost imperceptible gestures of body language and facial expression. No legal safeguard on earth can detect such subliminal messaging.” 

There is also plenty of testimony that suggests that even with constant pain, life is still worth living. Michelle Anna-Moffatt writes movingly  of her brush with assisted suicide and why she pulled back from it, despite living life in constant pain.  

Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder. 

Despite the safeguards mentioned above, the move towards death on the NHS is bound to lead to a slippery slope – extending the right to die to wider groups with lesser obvious needs. As I wrote in The Times recently, given the grounds on which the case for change is being made – the priority of individual choice – there are no logical grounds for denying the right to die of anyone who chooses that option, regardless of their reasons. If a teenager going through a bout of depression, or a homeless person who cannot see a way out of their situation chooses to end it all, and their choice is absolute, on what grounds could we stop them? Once we have based our ethics on this territory, the slippery slope is not just likely, it is inevitable.  

Then there is the radical shift to our moral landscape. A disabled campaigner argues that asking for someone to help her to die “is no different for me than asking my caregiver to help me on the toilet, or to give me a shower, or a drink, or to help me to eat.” Sorry - but it is different, and we know it. Once we have blurred the line between a carer offering a drink to relieve thirst and effectively killing them, a moral line has been crossed that should make us shudder.  

In Canada, many doctors refuse, or don’t have time to administer the fatal dose so companies have sprung up, offering ‘medical professionals’ to come round with the syringe to finish you off. In other words, companies make money out of killing people. It is the commodification of death. When we have got to that point, you know we have wandered from the path somewhere.  

You would have to be stony-hearted indeed not to feel the force of the argument to avoid pain-filled deaths. Yet is a change to benefit such people worth the radical shift of moral value, the knock-on effects on vulnerable people who will come under pressure to die before their time, the move towards death on demand?  

Surely there are better ways to approach this? Doctors can decide to cease treatment to enable a natural death to take its course, or increase painkillers that will may hasten death - that is humane and falls on the right side of the line of treatment as it is done primarily to relieve pain, not to kill. Christian faith does not argue that life is to be preserved at any cost – our belief in martyrdom gives the lie to that. More importantly, a renewed effort to invest in palliative care and improved anaesthetics will surely reduce such deaths in the longer term. These approaches are surely much wiser and less impactful on the large numbers of vulnerable people in our society than the drastic step of legalising killing on the NHS. 

Article
Books
Comment
Digital
Distraction
5 min read

Reading is the perfect act of rebellion in our screen society

A fortunate meeting with the right text works an unfathomable, transformative magic.

Rachel is a reader and writer, a coach, and an educator. 

A young boy pores over a book tracing the lines with a finger.
Michael Parzuchowksi on Unsplash.

Every year out of the 22 years that I have been teaching, there has been at least one child, increasingly several, who lay down the gauntlet in September. They steady their feet and ball their fists before sizing up to inform me that they hate reading, they always will, no matter what I do, so there!  

I likely raise an eyebrow and one side of my mouth; I don’t rub my hands together but the flame inside me leaps as I accept this familiar challenge. I’ve faced it so many times before and have almost always emerged the victor come July.  

The secret is knowing great books, knowing the individual reader and knowing how to make that perfect match.  

To read or not to read? That is the perplexing and troublesome question bothering many a teacher and (in my opinion) not enough parents in the present day. Need convincing? Though numerous research studies have evidenced significant benefits to cognitive function, brain health, physical longevity, mental health, stress relief, empathy, intelligence and sleep patterns, the National Literacy Trust's 2024 survey of over 76,000 children found that reading for pleasure saw an 8.8 per cent drop in just one year from 43.4 per cent to a worryingly low 34.6 per cent. This represents the lowest percentage since records began in 2005. Furthermore, trends are much the same throughout the adult population. It’s perhaps not hard to work out why picking up a book has declined in popularity. In our high-speed world of fleeting concentration, where bright, moving images flicker and fade, the monochrome, demanding, inanimate pages of a book can seem dull by comparison.  

But a little effort can be hugely rewarding. Indeed, imaginatively creating, rather than consuming digital images, is the perfect act of rebellion in an utterly conformist, screen-based society. It is counter-cultural and subversive to sit awhile and demand that you bring your undivided attention to an effortful activity. To switch off devices and work your way into the unexplored possibilities of your own mind through the pages of a good book.   

Teaching this to children has been my mission through 22 years of teaching English. I consider myself one of the stalwart guardians of the flame. The responsibility weighs heavy, urgent, and terrifying as resistance increases year on year. I obsess over it, feeling rationally afraid that if I stop breathing onto those embers for even one moment, the opportunity for revival will be lost…forever.  

So, what of these books? What are we guarding? What is this paper-based treasure? 

Imagine, for a moment, the sensational day when some tech billionaire creates a functioning portal or time machine, facilitating transportation back to the Tudors or the Trenches at the touch of a button.  

Consider the mindless jostling to board a new rocket destined for a dystopian future not too distant or dissimilar from the present. Picture the frantic rush to buy personal transportation devices to enable visits to the rainforests of Guatemala, the Arctic glaciers or tropical island shores at a moment’s notice.  

Imagine the insatiable sales of holograms masquerading as friends next to whom we could sink into an armchair creating free access to the minds of the rich and famous.  

There would be jostling, posturing and frantic networking to get in on the action. That billionaire could set his price. Millions would be hastily spent to gain access. 

But when that experience can be easily bought for somewhere in the region of £7.99 and comes in a 20x13cm rectangular paper format with monochrome printed pages, the levels of sensation and desirability dramatically drop through the floor.  

In a world of fakery, a written encounter with truth transforms. Where empathy and compassion are eroded, accessing the imagination redeposits. 

We fail to see that our books are indeed those time machines, transportation devices and conversations with wise giants. We were gifted such possibilities at the time of the printing press. A well-chosen book should never leave you the same at its last word as you were when encountering the first. Between those two covers was a moment in time when you were profoundly and fundamentally changed for eternity. You acquired new knowledge, encountered new people and places, travelled through time, experienced ranging emotions and developed thoughts and ideas in conversation with the greats. Something within you was transformed for good or for ill with your choice of book. If nothing happened, you need help choosing. 

Content matters also. We should feed our minds as carefully as we should feed our bodies.  

In a world of fakery, a written encounter with truth transforms. Where empathy and compassion are eroded, accessing the imagination redeposits. Where loneliness and depression devour, explorations of good character and relationship will nourish. Where fame and power corrupt, examples of service and humility will heal.  

Good books will always nourish the soul. 

Whatever is true, noble, right, pure, lovely, admirable, excellent or praiseworthy – we should think on such things. This is why running our eyes over good words and filling our ears with exemplary voices is essential.  

It is nothing short of a miracle that I can consult the wisdom of C.S. Lewis, the brave imagination of Katherine Rundell, the compassion of Maya Angelou and the teaching of Tom Wright in the silent space surrounding my armchair. I can equally learn from those who knew Frederick Douglass and those who knew Jesus not as figures in history but as a friend and teacher, a person of flesh and bone, in their literal time and space. They saw his face, they heard his voice, they felt the warmth of his hands on their skin, and I can know about it from their contemporary writings. I can consult equally with the writer of those ancient songs of wisdom that are the Psalms and the writer to the citizens of Philippi and know that between the words on those pages lies a moment when I am profoundly and fundamentally changed for all eternity.   

Wise words are powerful, and they endure. They outlive a lifetime. They are miraculous and accessible. The world needs them. 

So, to read or not read? The question is significant. It defines humanity. We guardians know that those last glowing embers must never be allowed to die. To read is a gift. It is noble work. It is a powerful and necessary act of rebellion in a world so out of touch with the Word. 

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Graham Tomlin
Editor-in-Chief