Article
Assisted dying
Care
Comment
Death & life
6 min read

What do you make of Esther?

A campaigner’s call to change an assisted dying law got family calling MND sufferer Michael Wenham. Here he shares why such legalisation will increase people’s fear of dying.
An image of a woman wearing formal clothing is overlaid by a BBC logo, a programme logo, a sound wave illustration and a caption.
Today Programme post about Esther Rantzen's comments.
BBC.

"What do you make of Esther Rantzen?" asked my brother. 

I knew what he was talking about, as no doubt all listeners of Radio 4's Today Programme would have done. Clearly the advocates of assisted dying, or specifically suicide, have launched the next round of their campaign, even enlisting the late Diana Rigg, whose resemblance to my wife was once commented on by an old welsh policemen, as a witness. The Today Programme devoted a great deal of airtime to the subject over a number of days.  

My reply to my brother was that I thought it was a good thing if we were more open about the subject of death and dying. After all they are events everyone without exception will come in contact with at some point or another. So, the sooner we stop treating it as a taboo subject the better. However, the dangers of legalising assisted suicide, are proved by places like Canada and Belgium. 

I don’t see any way to protect us from such coercion, internal or external, except to demonstrate through legislation that every life, however tenuous, is equally important.

In January this year I made a submission to the Parliamentary Health and Social Care Committee consultation on assisted dying/assisted suicide. Here’s some of that submission. 

“I am writing as an individual who was diagnosed with a rare form of Motor Neurone Disease (MND) twenty-two years ago and who has experienced the condition’s relentless deterioration since then. There are a number of my contemporaries who have survived that long. That, and witnessing the ravages of the disease on friends in our local MNDA branch plus an Ethics qualification from Oxford, is the extent of my expertise.” 

“My first observation is how positively my contemporaries, with short or longer prognoses, with the disease seize hold of life. Clearly there are some who, like Rob Burrows, devote themselves to fund-raising and creating awareness; while others enjoy the opportunities of life that come their way. What might have seemed a death sentence has proved a challenge to live. 

"Secondly, I have recently discovered myself how expert professional care can enhance what is often portrayed as undignified dependence. Good caring can in fact add to quality of life. The sad thing however is that it is not something which the state will normally provide. Along with terminal palliative care, domestic social care must surely be a spending priority for any government that cares about the well-being of all its citizens. I’m fortunate to live an area of excellent MND provision and good, though not abundant, palliative care. But I understand that this is not equally spread through the country. If it were, I suspect it would reduce the fear of dying which must be a major motivator for assistance to ending one’s life. 

"Ironically, in MND, according to the Association’s information sheet, How will I die?, those fears are greatly exaggerated: 

In reality, most people with MND have a peaceful death. The final stages of MND will usually involve gradual weakening of the breathing muscles and increasing sleepiness. This is usually the cause of death, either because of an infection or because the muscles stop working. 

Specialist palliative care supports quality of life through symptom control. practical help, medication to ease symptoms and emotional support for you and your family. 

When breathing becomes weaker, you may feel breathless and this can be distressing. However, your health care professionals can provide support to reduce anxiety. 

You can also receive medication to ease symptoms throughout the course of the disease, not just in the later stages. If you have any concerns about the way medication will affect you, ask the professionals who are supporting you for guidance. 

Further weakening of the muscles involved in breathing will cause tiredness and increasing sleepiness. Over a period of time, which can be hours, days or weeks, your breathing is likely to become shallower. This usually leads to reduced consciousness, so that death comes peacefully as breathing slowly reduces and eventually stops.

"So, this is a third and subtle danger of legalising assisted dying/suicide. It would increase people’s fear of the inevitable fact of death and dying. I think this can be one factor in explaining why, in jurisdictions which have introduced it, we see it being extended beyond the first strict limits. It is held out as an answer to this fearful fact, death, whereas in fact death and dying should be talked about in realistic terms, as normal, as concisely outlined by Dr Kathryn Mannix. As she says, normally dying isn’t as bad as we think

If the government should be doing anything, the first thing it might well do, is to promote informed education about dying of the sort exemplified by specialists such as Dr Mannix, as well as adequately funding her former specialism of palliative care. It should start with schools’ curricula. After all every child will have encountered death at some stage. 

Finally, the dangers of coercion, in my experience, are not so much external as internal. It’s often rightly observed that prolonged pain is worse for the engaged spectator than for the sufferer. If you care for someone, seeing them struggling is barely tolerable. You may wish to see their struggle over, but underlying that wish is your own desire to be spared more of your own horror show. The person who is ‘suffering’ however has that strong survival instinct, common to all humans, and is more concentrated on living than dying. Having said that, when you are depressed, as might be natural, that instinct gets temporarily eclipsed. Then you need protection from your own dark sky. It is at such times that your other inner demons emerge: your sense of being a burden - to your family, to your friends (if you have any), to the NHS and to the state purse; your fear of losing your savings and of leaving nothing to your loved ones; your fear of pain and of dying (exaggerated by popular mythology), and your sense of suffering, heightened by your depression.  

"For most of us with long incurable diseases, it’s these internal perceptions that are most coercive, although they can be easily compounded or even exploited from outside. I don’t see any way to protect us from such coercion, internal or external, except to demonstrate through legislation that every life, however tenuous, is equally important to our society and worth caring for. ‘Any man’s death diminishes me...’ and so we will value it to the end." 

I'm grateful that when I received my 'motor neurone disorder' diagnosis, which was initially frightening, I couldn't be tempted to opt for an early death. Instead of one Christmas with my family (as I warned them), I've enjoyed 22 more Christmases. That was the law against suicide fulfilling its safeguarding function, protecting the vulnerable, as I was then. Contrary to my preconceptions, my form of MND (PLS) is very gradual and I've been able to live a full if increasingly limited life, thanks to my wife, Jane, who cares for me 100 per cent. 24 hours a day, seven days a week.  

My view is still that legalising assisted dying/suicide has more cons than pros. The better choice is to invest in hospice and palliative care, so that everyone may have access to pain and symptom care in the last years of their life. 

Article
Comment
Freedom of Belief
5 min read

These stubborn stories from Nigeria’s killing fields are still lodged in my head

Last year’s victims are joined by many more

Belle is the staff writer at Seen & Unseen and co-host of its Re-enchanting podcast.

A burnt out motor cycle and car stand amid charred debris in a dusty compound.
Burned vehicles after Good Friday raid on April 7, 2023, in Ngban, Benue state, Nigeria.
Justice, Development, and Peace Commission.

Last summer, I spent some time in Northern Nigeria.  

I went there because terror is having its way and nobody seems to be talking about it. I said it last year, and it still seems to be the case now - the violence that is being carried inflicted is out of sight and, therefore, tragically out of mind. 

While there, I met many people that had their lives violently turned upside down - their families torn apart, their villages burnt to the ground, their homes and livelihoods pulled out from underneath them, their loved ones ‘butchered’ before their eyes. The people I met were targeted, it seems, largely because of their Christian identities.  

I wrote about them for Seen and Unseen this time last year, feeling the pull to memorialise their stories; to point toward them, to look their tragedy in the eye for a little longer. 

Every person that I met has had a lasting impact on me, how could they not? Before I met them, the only reference point I had for such violence was apocalyptic movies. A year on, my brain still resists accepting what my ears have heard and my eyes have seen. I dwell on it all, the whole experience, often.  

But there are two stories that have gotten stubbornly lodged in my mind, taking up slightly more real-estate in my thoughts. They’re the stories of two girls, one around my own age and one much younger. I’d like to re-point you to their stories now.  

The first woman, she was incredibly gentle and kind, and told her story with a composure that’s hard to fathom. She was working on her land along with her husband and mother-in-law, a totally run-of-the-mill day. They were so engrossed with the task at hand, they didn’t notice that their village was being attacked by armed ‘Fulani’ militants (the majority of the violence being carried out in Northern Nigeria is at the hands of Islamic extremist groups such as Fulani militants, Boko Haram and ISWAP - Islamic State in West African Province). She looked up to find herself face-to-face with two attackers and despite their command for her to surrender to them, she ran, as did her husband and mother-in-law. While she was running, she could hear bullets flying past her head and the screams of her mother-in-law. Making it to a neighbouring village, she gathered help and eventually went back to find her husband and mother-in-law. Both of whom were stabbed and killed that day.   

The Fulani militants now have control over her village, and she told us how she’s been praying that she would be able to forgive these men for what they’d done, as she is now forced to live alongside them. And so, she felt proud because she had recently been able to respond to one of the men as they greeted her.     

The other story, that of a heart-wrenchingly-young girl told us how, while she sleeping – she was awoken by her father who told her that they needed to run, they were under attack. She ran, hand in hand with her father, while her mother carried her younger brother. While they were fleeing, her dad was shot and killed. Her mother pried her hand out of her father’s and buried both her and her brother in sand, instructing them to stay hidden. The next day, they found that their house, their crops, their entire village had been burnt down.   

This rampant violence is not caught in a freeze-frame, it’s not last year’s story, it is still happening. Despite Nigeria having greater religious freedoms than other countries, it is still the seventh most dangerous country in the world for Christians to live, it is still the case that more Christians are killed for their faith in Nigeria than the rest of the world combined.    

2025 has seen wave after wave of attacks, some of which were prompted by outrage over the testimony of Bishop Wilfred Anagbe, who spoke of the horror and terror being inflicted on Christian communities in front of the US Congress. As a result of Bishop Wilfred’s words, his Nigerian diocese was subject to mass shootings, killing forty people. So, people’s voices, their pleas for help - or even simply recognition of the violence - brings a threat to their lives.  

Just weeks later, 24 members of a Methodist church were shot in the middle of the night, days later nine further people were killed while mourning those who had already been shot dead. 

In the month of June alone, 218 Christians were killed, and a further 6,000 were displaced after a spate of attacks carried out on mostly Christian villages. Open Doors note that ‘dozens of Christians are said to be trapped in forests and mountain hideouts, unable to escape as the militants continue to roam through the villages’.  

And in July, Pastor Emmanuel Na’allah, a Christian pastor and convert from Islam, was shot and killed during a worship service. A friend of his, Samaila Gidan Taro, was also shot, and a woman was abducted.   

Again, Open Doors explains that ‘These murders and abductions are sadly increasingly common in Nigeria… large-scale attacks are the most visible. Attacks such as this one occur daily, so frequently that they do not make the headlines. It is clear that Christians are suffering a relentless onslaught, with government agencies, international bodies and official observers struggling to even document each incident.’ 

As I wrote last year, while we are not seeing this violence, the people of Nigeria are not seeing an end to it.    

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