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Assisted dying
Care
Comment
Easter
5 min read

I know who will be most affected by legalising assisted dying

Contemplating lent revives hard memories and raises fresh fears.

Ryan is an ordained Priest in the Church of England, currently serving in south London. 

A close up of a forehead bearing an ash cross marked on it.
Ahna Ziegler on Unsplash.

“What’s that - a face tattoo?” 

These were the words of one person as I walked past them on the streets on a recent Wednesday, with the ashes of last year’s burnt palm-branches placed across my forehead in the shape of the cross.  

The cross has been a symbol of hope for over two millennia; that even in the most painful of circumstances, darkness does not have the final say, including in death.  

As a society, we don’t really talk about death that much. Margot Robbie’s Barbie was the quintessential party-pooper when she pondered: 

 “do you guys ever think about dying?”. 

It’s no fun to dwell on death and dying, and for many of us, we put it off as long as we can. That all changed last year with the introduction of the assisted dying bill into the Houses of Parliament. Our national attention was, for a rare moment, captured by death.  

As a parish priest, I’ve seen the finality of burying someone into the ground. I’ve seen the sadness in the eyes of those trying to grieve. 

The words of Ash Wednesday, which remind us that we are ‘but dust, and to dust we shall return’ are echoed in the famous words that the priest recites in those last moments of burial, ‘ashes to ashes, dust to dust’. In that moment, amongst the bereaved, there is no escaping the inevitability of death. It is the ultimate statistic, 1 in 1 die. 

Whilst death is of course universal and will affect us all, the impact of this assisted dying bill could have consequences for some of the most vulnerable in society.  

As I reflect on my time as a Priest in East London, this is not abstract theory, but something I lived with each day. I served amongst a hugely diverse, vibrant, community in one of the poorest parts of the city. As I try to picture some the people I’ve walked alongside, I know it is these lives that will be most affected.  

One of the reasons I have concerns about the bill is the prospect of these people being coerced into ending their own lives prematurely, by a world that has already told them their lives are of little value. There are already huge disparities in access to the current provision of palliative care at the end of life, particularly amongst people of colour, the disabled and the poor.  

Of the 500,000 people who die each year, 100,000 do not access the care they need. This number is skewed towards ethnic minorities and those who come from poorer backgrounds.  

There is much confusion and misinformation about what end-of-life care even is. Research conducted by Marie Curie shows that 1 in 5 people from an ethnic minority background believe Palliative Care is actually Euthanasia.  

We only need to look at what has happened around the world when the ‘right to die’ becomes a duty to die. Even with the best of intentions, other jurisdictions show us that safeguards rapidly deteriorate and those who are already vulnerable become even more so.  

I worry that the way in which this bill is being handled - rushed through, little time being given to properly chew over the profound consequences it may have - reflects the wider way we view death. 

By trying to provide a ‘choice’ for a certain group of people, the consequence will be taking away real choice from those who already have little. 

Yet we know that for those who do access it, palliative care can be hugely effective in improving their quality of life, and for some, they can even outlive their prognosis. During Ash Wednesday’s service, I met an elderly gentleman who was diagnosed with stage four pancreatic cancer in 2019. He was told he had five months to live. He described every day of his six-year survival since as a ‘miracle’, his eyes filled with evident joy.  

Such a blessing stands in stark contrast to the lonely final days of my 96-year-old great grandmother. She was suddenly taken ill during the Covid-19 pandemic and was frantically rushed to a hospital. Amidst the chaos, exasperated by the restrictions against seeing family that were in place at the time, I distinctly remember confused conversations about placing her in a care home for her final days. It was clear she needed a lot of specialist attention, more than our family could provide ourselves.  As she was discharged to stay with our aunt, she never did reach that care home, as she died at home. She was buried in our local cemetery, with our family watching on Zoom.  

My final memory of my great-grandmother will be the FaceTime call we shared when she was taken to hospital, with the poor data connection and shaky picture. I am so grateful for the few family members who were able to be by her side when she died, but I’ve often wondered whether she fully received the care she actually needed during those final days, in the way she needed it.  

What my great-grandmother didn’t have a lot of at the end of her life was time.  

That’s also true for this bill. Concerns have been raised that only five hours of debate were given to this Bill in the chamber, comparatively short for a change in the law of this magnitude.  

I worry that the way in which this bill is being handled- rushed through, little time being given to properly chew over the profound consequences it may have- reflects the wider way we view death.  

Do we view death - and indeed the dying- as something to be shoved to one side, not spoken about in the hopes we can avoid its impact? Or do we view death as an important moment to review who and what matters most in life?  

Perhaps for some, the fact that Christians devote a period of 40 days to dwell on death may be one of the mysteries of faith. However, perhaps it’s not such a bad idea after all.  Death may bring with it fear, grief and pain and so we tend to avoid it. But do we risk missing out on much more? As we head into Easter, the cross still serves as a powerful reminder that, especially in death, Hope can be found, that Good has triumphed over evil, and Light shines even in the darkest of places.  

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Article
Books
Comment
Language
5 min read

Reading Don Quixote is making me a better person

Learning from Cervantes’ mistakes
Statues of Don Quixote and Sancho Panza point toward a windmill
Don Quixote and Sancho Panza statues, Tandil, Argentina.
Alena Grebneva, CC BY-SA 4.0, via Wikimedia Commons.

I love reading, but I’m not very well read. As is often the case, a curmudgeonly teacher quashed any interest I had in literature in my last few years of school; the increasing creep of technology and social media into my life means my diminishing attention span often makes reading seem a herculean task. It’s a long time to sit still and not doomscroll.  

It’s only in recent years that I’ve rediscovered a love of reading. As part of this, I’m trying to right some literary wrongs.  

Okay, confession time: I’ve never read anything by Jane Austin, the Bronte sisters, George Elliot, Tolstoy, or Proust. I haven’t read The Lord of the Rings or Moby Dick nor To The Lighthouse or Heart of Darkness. I know. Bad, isn’t it? I could go on, too … 

I love reading, but I’m not very well read.  

And so I’m making an effort to read some of the Great Books of the canon. At the moment, I’m reading Don Quixote by Miguel de Cervantes. Crucially, I’m reading Edith Grossman’s 2003 translation of the novel. It is an absolute joy.  

I had heard that it was deeply funny, and a work of genius; neither aspect of the text has been a surprise to me. But there’s something about Grossman’s translation in particular that has caught me off guard: the mistakes.   

Not any mistakes by Grossman. I know nothing whatsoever about Spanish, let alone 17th Century Spanish (another dream crushed by another teacher), but the English text is a marvel. Eminently readable and funny without compromising the occasional complexity of Cervantes’ prose.  

No: I mean the mistakes by Cervantes himself. Early on, a footnote from Grossman points out that Sancho Panza (Don Quixote’s long-suffering squire) refers to his wife using several different names throughout the text. Without Grossman’s footnotes, I’m sure I would have overthought this. What is the author trying to say about Sancho Panza? Is it a comment on his intelligence? Or the character’s view of women, perhaps? Am I just too dense to understand what’s going on here? 

Grossman’s assessment? It’s just “an oversight”. A mistake. And quite a basic one, at that. Later on, Cervantes divides up his chapters, using those brief sentences summarising their contents that are common in this period (“Chapter III, In which …”). But they’re all wrong. Things are said to happen in Chapter X that don’t actually happen until Chapter XV; the chapter summaries are a mess, frankly.  

One of the things that made me reluctant to read Great Books for so long is that they’re intimidating. They are certified Works of Genius and therefore probably a bit much for my little brain to digest. Many of the archetypical Great Books compound this by being incredibly long, too: think Dostoevsky, Tolstoy, Proust, or even more recent candidates like David Foster Wallace’s Infinite Jest or Olga Tokarczuk’s The Books of Jacob. Don Quixote itself runs to nearly 1,000 pages long; it carries a literal and literary heft to it. 

But there it is. Full of mistakes. 

It turns out to have been quite an opportune moment for me to read Don Quixote. I’m in the final stages of preparing for my second book to come out. (It’s an academic Christian theology book, so will probably sell slightly less than Don Quixote but will certainly cost much more to buy). This means it’s been quite a stressful season for me, as I try to catch any lingering mistakes that might have somehow slipped through the myriad rounds of copyediting, or find myself wondering if the book isn’t just so bad that I’m going to be forced to return my PhD, leave academia forever, and by sued by my publisher for besmirching their good name by association.  

This has also been a time of being deeply frustrated with my own humanity. Why aren’t I a better writer? Why can’t I spell properly? Why aren’t I more creative? Why aren’t I better at this? Why am I so … limited

As an academic, imposter syndrome never really goes away. You just learn to cope with it. And reading Don Quixote and seeing these mistakes in the text has helped me reframe who I am, and my own limitations. Here is a text that is human; completely and utterly human. And so, naturally, here is a text with mistakes; text that is imperfect and flawed. And therein lies its part of its charm. It is rough and coarse, and I love it for that. The mistakes in Don Quixote haven’t detracted from my enjoyment of the text, they’ve enhanced it. They’ve underscored the beautiful humanity that is so evident in Cervantes’ work.  

The Christian Bible is at pains to tell me that I am “fearfully and wonderfully made,” as the Psalmist puts it. I can be so quick to forget this when I focus all my attention on my limitations, and flaws, and missteps. This is why I’m so grateful for Grossman’s translation of Don Quixote. Above all else, I’m grateful for its mistakes. Like me, it is utterly human. Like me, this means it is utterly flawed. Like me, that makes it a work of utter beauty. 

Don Quixote is helping me to recognise the inherent beauty of my limitations as a creature. In doing so, it’s helping me to recognise the inherent beauty of the One who created me. It’s helping me to fall more in love with the God who sent His Son to Earth to become human like me, to revel in and live alongside me in my humanity. Warts and all. 

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