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Assisted dying
Care
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Easter
5 min read

I know who will be most affected by legalising assisted dying

Contemplating lent revives hard memories and raises fresh fears.

Ryan is an ordained Priest in the Church of England, currently serving in south London. 

A close up of a forehead bearing an ash cross marked on it.
Ahna Ziegler on Unsplash.

“What’s that - a face tattoo?” 

These were the words of one person as I walked past them on the streets on a recent Wednesday, with the ashes of last year’s burnt palm-branches placed across my forehead in the shape of the cross.  

The cross has been a symbol of hope for over two millennia; that even in the most painful of circumstances, darkness does not have the final say, including in death.  

As a society, we don’t really talk about death that much. Margot Robbie’s Barbie was the quintessential party-pooper when she pondered: 

 “do you guys ever think about dying?”. 

It’s no fun to dwell on death and dying, and for many of us, we put it off as long as we can. That all changed last year with the introduction of the assisted dying bill into the Houses of Parliament. Our national attention was, for a rare moment, captured by death.  

As a parish priest, I’ve seen the finality of burying someone into the ground. I’ve seen the sadness in the eyes of those trying to grieve. 

The words of Ash Wednesday, which remind us that we are ‘but dust, and to dust we shall return’ are echoed in the famous words that the priest recites in those last moments of burial, ‘ashes to ashes, dust to dust’. In that moment, amongst the bereaved, there is no escaping the inevitability of death. It is the ultimate statistic, 1 in 1 die. 

Whilst death is of course universal and will affect us all, the impact of this assisted dying bill could have consequences for some of the most vulnerable in society.  

As I reflect on my time as a Priest in East London, this is not abstract theory, but something I lived with each day. I served amongst a hugely diverse, vibrant, community in one of the poorest parts of the city. As I try to picture some the people I’ve walked alongside, I know it is these lives that will be most affected.  

One of the reasons I have concerns about the bill is the prospect of these people being coerced into ending their own lives prematurely, by a world that has already told them their lives are of little value. There are already huge disparities in access to the current provision of palliative care at the end of life, particularly amongst people of colour, the disabled and the poor.  

Of the 500,000 people who die each year, 100,000 do not access the care they need. This number is skewed towards ethnic minorities and those who come from poorer backgrounds.  

There is much confusion and misinformation about what end-of-life care even is. Research conducted by Marie Curie shows that 1 in 5 people from an ethnic minority background believe Palliative Care is actually Euthanasia.  

We only need to look at what has happened around the world when the ‘right to die’ becomes a duty to die. Even with the best of intentions, other jurisdictions show us that safeguards rapidly deteriorate and those who are already vulnerable become even more so.  

I worry that the way in which this bill is being handled - rushed through, little time being given to properly chew over the profound consequences it may have - reflects the wider way we view death. 

By trying to provide a ‘choice’ for a certain group of people, the consequence will be taking away real choice from those who already have little. 

Yet we know that for those who do access it, palliative care can be hugely effective in improving their quality of life, and for some, they can even outlive their prognosis. During Ash Wednesday’s service, I met an elderly gentleman who was diagnosed with stage four pancreatic cancer in 2019. He was told he had five months to live. He described every day of his six-year survival since as a ‘miracle’, his eyes filled with evident joy.  

Such a blessing stands in stark contrast to the lonely final days of my 96-year-old great grandmother. She was suddenly taken ill during the Covid-19 pandemic and was frantically rushed to a hospital. Amidst the chaos, exasperated by the restrictions against seeing family that were in place at the time, I distinctly remember confused conversations about placing her in a care home for her final days. It was clear she needed a lot of specialist attention, more than our family could provide ourselves.  As she was discharged to stay with our aunt, she never did reach that care home, as she died at home. She was buried in our local cemetery, with our family watching on Zoom.  

My final memory of my great-grandmother will be the FaceTime call we shared when she was taken to hospital, with the poor data connection and shaky picture. I am so grateful for the few family members who were able to be by her side when she died, but I’ve often wondered whether she fully received the care she actually needed during those final days, in the way she needed it.  

What my great-grandmother didn’t have a lot of at the end of her life was time.  

That’s also true for this bill. Concerns have been raised that only five hours of debate were given to this Bill in the chamber, comparatively short for a change in the law of this magnitude.  

I worry that the way in which this bill is being handled- rushed through, little time being given to properly chew over the profound consequences it may have- reflects the wider way we view death.  

Do we view death - and indeed the dying- as something to be shoved to one side, not spoken about in the hopes we can avoid its impact? Or do we view death as an important moment to review who and what matters most in life?  

Perhaps for some, the fact that Christians devote a period of 40 days to dwell on death may be one of the mysteries of faith. However, perhaps it’s not such a bad idea after all.  Death may bring with it fear, grief and pain and so we tend to avoid it. But do we risk missing out on much more? As we head into Easter, the cross still serves as a powerful reminder that, especially in death, Hope can be found, that Good has triumphed over evil, and Light shines even in the darkest of places.  

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Politics
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3 min read

Who’d be an MP today?

A vulnerable vocation that we should all consider

Jamie is Vicar of St Michael's Chester Square, London.

MPs sit and stand in a crowded parliament.
The House of Commons sits, and stands.
Houses of Parliament.

Last year, 132 Members of Parliament headed for the exit. Of course, the reasons for this vary, but the unsustainable nature of the role must be factored in. As the Westminster Parliament returns for another session, who on earth would want to be an MP in today's day and age?  

Most starkly, we saw the murders of Jo Cox and Sir David Amess, with the latter writing in 2020 that the fear of attacks "rather spoilt the great British tradition of the people openly meeting their elected politicians". Herein lies much of the issue of being an MP today: accessibility. They might be highly insulated within the Palace of Westminster, but within their phones and outside of those gates they are always available, and always on, with slings and arrows that are verbal and violent. 

The combination of abuse and accessibility is a potent force. It's not limited to the MPs themselves. Dr Ashley Weinberg, an occupational psychologist from the University of Salford, said that 49.5 per cent of MPs' staff suffering from distress was double the level experienced by the general population. Those in vocation-based work need some boundaries as capes don't come with the parliamentary pass.  

And if the exit sign is so alluring, how do we remove barriers to entry? In Why We Get the Wrong Politicians, Isabel Hardman writes that seeking a seat is 'the most expensive and time-consuming job interview on earth'. Only to be met by remuneration that doesn't quite make up for the package deal. Of course, there's the uber-keen. Morgan Jones, writing in The New Statesman, notes 'People who want to be MPs really want to be MPs. They are willing to try and try again: in the footnotes of the careers of many now-prominent politicians, one finds unsuccessful first tilts at parliament.'  

Being adopted, working class, a mum, a carer, and a cancer survivor didn't stop Conservative MP Katherine Fletcher from standing as an MP. In fact, it all contributed to it: 'You stand on a podium and say, "Vote for me please!" To do it properly you have to bring your whole self.' The sense of calling to a vocation comes from a frustration, where she found herself yelling at the TV, intersecting with our core experiences and values. 

Even with five-year terms, there's an inherent reactivity in the daily nature of being an MP. Where is the space to think? To really reflect. In a plaintive but not totally despairing summer article, Andrew Marr, the veteran observer of politics, wrote more broadly about British society: 'What is new and disorientating is that we have so few storytellers to shake us or point a way ahead… This means that we push our anxieties, our frustrated hopes and our confusion even more on to the shoulders of political leaders who are entirely unsuited to bearing the weight.' As we lack imaginative drive, 'The fault is not in our stars but in ourselves.'  

We need everyone from poets to plumbers to make this society work. And there's the question of vocation: where does my gifting and passion meet the needs of our society that solves problems or inspires others to? 

We rightly have high expectations of our leaders, and project our hopes and fears onto their blank canvases. But their canvasses aren't blank. They are crammed with the urgent and important. We can't expect our politicians to do and be everything - and we all need to play our part. Our blame-and-shame culture finds hysterical, theatrical representation at Prime Minister's Questions. Sir Tony Blair said that 'A private secretary would come in and say: "Well, Prime Minister, a grateful nation awaits." I would follow him out feeling as if I was going to my execution.' The agonistic, antagonistic design of the House of Commons, where one side is pitted against the other, has ripples in our society with an increasingly antagonistic public discourse.  

In pointing the finger we have three pointing back at ourselves. As Jesus famously said, 'Why do you look at the speck of sawdust in your brother’s eye and pay no attention to the plank in your own eye?' 

Our vote at the ballot box may be our exercise of judgement. But before scathing our members of parliament, it's worth us first asking 'what have I done as a member of the public?' 

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Since Spring 2023, our readers have enjoyed over 1,500 articles. All for free. 
This is made possible through the generosity of our amazing community of supporters.

If you enjoy Seen & Unseen, would you consider making a gift towards our work?
 
Do so by joining Behind The Seen. Alongside other benefits, you’ll receive an extra fortnightly email from me sharing my reading and reflections on the ideas that are shaping our times.

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