Interview
Change
Freedom
Freedom of Belief
Middle East
5 min read

Freedom of belief: The harsh scars of lived experience in Iran

Belle Tindal meets Dabrina, an Iranian contemporary, and compares their experience of living – from cars to believing.

Belle is the staff writer at Seen & Unseen and co-host of its Re-enchanting podcast.

A somewat beaten white car parked on the side of a street.
An Iranian street scene.
Foroozan Faraji on Unsplash.

‘Blessed are those who are persecuted because of righteousness, 
for theirs is the kingdom of heaven. 

Blessed are you when people insult you, persecute you and falsely say all kinds of evil against you because of me…’ 

Those are Jesus’ words. You may well recognise them, they’re among his most famous. Probably because they’re so darn bewildering, fairly uncomfortable too. At least, they are to me.  

You see, I’ve only ever read these words. I’ve never actually lived them.  

I read them on Wednesday morning, in fact. And there was nothing inspired, intentional or special about that. Nearly all of my days begin the exact same way - tucked up in bed with a cup of tea and an allocated chunk of Bible to read through – and, on Wednesday, it just so happened to be this chunk. It was a fairly mundane affair, business as usual. Except, on this particular Wednesday, which incidentally started with these particular words, I met someone for whom these words have been lived, not merely read.   

Someone for whom these words hold memories and scars, for whom they are as precious in their truth as they are painful.  

Someone who does not have the privilege of regarding these words as bewildering or uncomfortable, as I do.  

On Wednesday, I met Dabrina.  

I was fending off deadlines and 9am lectures. Dabrina was fending off sexual threats from the guards and physical assault at the hands of the interrogators. 

Dabrina is from Iran, the ninth most dangerous country to be a Christian in the world. And on a bitterly cold January evening, she stood behind a podium in the Houses of Parliament, a place which has Bible verses etched into its very walls, and told us of her country, a place where belief in those very same verses is a punishable offense. With Christianity regarded as a conspiracy to undermine the Iranian government and Islamic law, much of the Christian way of life is illegal.  

Gathering in large groups, illegal. House churches, illegal. Evangelism (or, more accurately, anything that is perceived to be evangelism), illegal. Teaching children, illegal. Translating the Bible into their own languages, illegal.  

And not only that, but Christians are considered inherently ‘unclean’, second-class citizens in almost every way. A Christian in Iran could never be a doctor, a teacher, or a lawyer. They are also not allowed to touch food, meaning that they cannot work in retail or hospitality either. There are restrictions on what schools and universities they can attend, where they can go, and who they can socialise with. In short, they are persecuted. Christians in Iran are in danger, constantly.  

I learnt all of this from Dabrina’s speech that day; a speech that left me wondering how on earth we can have so much, and yet so little, in common.  

You see, both Dabrina and I believe that Jesus existed, and more than that, that he was and still is everything that he claimed to be - Son of God, light of the world, saviour to all – the whole thing. And we both try to live our lives accordingly. We have the same answers to the same questions, the same worldviews, the same God.  

But the parallels get more specific than that. 

Both of our parents led our local churches throughout our childhoods. But there’s a key difference; Dabrina grew up used to her father frequently disappearing with no explanation. Again and again, he would vanish, and she would be forced to anxiously await his return. I have never had to lay awake wondering if my dad was dead or alive.  

I spent my teenage years working in a local coffee shop, relishing the first hints of what an independent life might feel like. Dabrina tried to get a job as a waitress too, but it was illegal for her to touch food, so she was turned away.  

I spent my early twenties doing a theology degree and soaking up every moment of what I was told would be the most care-free years of my life. Dabrina spent her early twenties in an all-male prison.  

I had friends who would (good-naturedly) roll their eyes at my Christian faith, wondering why I would willingly choose to wake up so early on a Sunday morning. Dabrina had friends who were spying on her and reporting the details of her life to the government.  

I was fending off deadlines and 9am lectures. Dabrina was fending off sexual threats from the guards and physical assault at the hands of the interrogators.  

I remember buying my first car, Dabrina remembers hers being tampered with by the authorities – on three occasions.  

I live in the country I was born in. Dabrina has had to flee hers.  

So, you see – While I read Jesus’ words about persecution, Dabrina lives them. Dabrina, and 365 million others around the world.  

Talking to Dabrina was humbling, and astounding, and challenging - and a million other things too. The details of the trauma that she has gone through will undoubtedly continue to humble me for a long time yet, and I’m glad about that. But her answer to my final, and arguably ever-so-western, question left me utterly stunned. I asked why, after everything that she has been through and with every danger that it poses, is she still defiantly living a Jesus-shaped life. And her answer,  

‘When you encounter God, when you encounter Jesus, when you are healed, when you witness signs and wonders, when you encounter the love of God as your father, as your saviour, as your provider – how can you walk away from that? 

… When you’re in that much danger, you will cry out to God and he will meet you there.’ 

Here was a woman, for whom belief in Jesus has her caused physical harm, calling him a healer. A woman, whose faith in God has taken away her home and everything that she had built within it, calling him provider. A woman, whose Christian conviction has landed her in endless danger, calling God a saviour. A woman who told me that the Jesus I have got to know in comfort, she has seen show up in peril. A woman who told me stories of the underground church, which just so happens to be the fasting growing church in the world.  

 And in that moment, I thought about how much, and yet how little, I had in common with this incredible person before me.

And I thought about how mystifying it is that these 365 million people are hidden in plain sight, suffering under a blanket of silence, and how that surely cannot go on? And I pondered how so many people are being denied their freedom of belief, a basic human right, and yet we barely speak about it? And I felt indignant in a way that must infuriate those who have spent more than an evening engaging with this issue.  

And then I thought back to that bewildering sentence from Jesus – where he puts the words persecution and blessed together - and realised that it is a sentence that I shall likely spend my life pondering, while Dabrina knows it to be totally and concretely true.  

 

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Article
Ageing
Care
Change
Death & life
6 min read

A Tolkien poem helps a nurse understand the ravages of dementia

'Not all who wander are lost.'

Helen is a registered nurse and freelance writer, writing for audiences ranging from the general public to practitioners and scientists.

An elderly woman wearing headphone looks up and to the side with a big smile.
Playlist for Life

Not all who wander are lost.

Often written on a care home wall, on an inspirational poster, these words are usually set against a forest background, or compass, for added effect. They have also been used as the title of a conference paper discussing so-called smart trackers for people with dementia, whilst, Not all who wander need be lost is the title of a concise guide to navigating the heartbreaking challenges when a loved one is diagnosed with Alzheimer’s disease or other dementia.

As a care home nurse for more than ten years, I have seen residents wander - not lost but “walking with purpose”, as it is sometimes known in the caring community. “Nobody gets up and walks without a reason,” says Suzanne Mumford, Care UK's Head of Nursing, Care and Dementia; perhaps they are easing pain, or boredom, or looking for something that they can’t describe. I remember residents exploring, enquiring into self-made mysteries solvable only by themselves, examining everything from door handles to another resident’s buttons, even escaping with surprising speed. Walking with them, often in silence, can bring a sense of relief, comfort and companionship.  

What I didn’t know was that this is a quotation from a poem by JRR Tolkien, published in The Fellowship of the Ring seventy years ago. The actual line is - “Not all those who wander are lost”. 

All that is gold does not glitter, 
Not all those who wander are lost; 
The old that is strong does not wither, 
Deep roots are not reached by the frost. 
 
From the ashes a fire shall be woken, 
A light from the shadows shall spring; 
Renewed shall be blade that was broken, 
The crownless again shall be king.” 

We first hear this poem in Chapter Ten of Book One, as Frodo reads it in the postscript of a letter from Gandalf. As I read it, the imagery of being lost, withered, frost-bitten, in darkness, burned and broken, speaks something, in poetic picture language, of the ravages of dementia, the harrowing losses, the valley of tears. It brings to mind residents unaware of familiar objects or surroundings, looking straight through loved ones without a flicker of recognition, losing also language, continence, mobility and the ability to swallow. 

The TV presenter Fiona Philips recalled an agonising decline in her mother as she succumbed to Alzheimer’s, describing how, in the final stages, her mother “spent whole chunks of time just sitting and staring ahead, only able to give out a series of sounds”. Fiona herself now lives with dementia. “'It’s devastated my family and it’s the biggest health and social care challenge we face as a country,” she says. 

I once interviewed retired doctor Jennifer Bute, who lives with dementia. She talked of time travel (perceiving herself as living in a time from her past); disorientation to place and person; frightening hallucinations when old memories are seemingly ‘unlocked’; and ‘emotional unzipping’ when agitation and anxiety increase, often in the late afternoon or evening in something poorly understood as a symptom, known as ‘sundowning’. 

Yet there is something more to this poem – each of the pains has a promise – not all who wander are lost; the old that is strong does not wither; and, most poignantly, deep roots are not touched by the frost. In dementia, it is true that deep roots are untouched, that an enduring aspect of a person’s identity never truly withers, though it may be mostly unseen. Something remains. Oliver Sacks the famous neurologist emphasised that, even in the late stages of Alzheimer’s, the person is still ‘alive inside’ (the inspiring documentary with this title is recommended). In stunning real-life stories, he has shown how music appears to ‘call back the self’, awakening moods, memories and thoughts that had seemingly been lost. He refers to music’s extraordinary ‘neural robustness’ and describes one man, unable to tie his tie or find his way to the stage, yet able to perform a perfect piano solo. In one life-affirming, must-watch, tear-jerking video, gospel music was shown to enliven, calm, focus and engage a man simply known as Henry.    

Watch Henry

Singing can “provide islands of arousal and awareness like nothing else can”, according to Alicia Clair, Professor of Music Therapy. I’ve seen singing bring the person into the present for a passing moment, illuminating a face that seemed far away. One otherwise-silent lady completed the chorus of ‘Daisy, Daisy’ before descending into dementia again. Others have laughed, clapped, danced, embraced and even shed a silent tear during music therapy sessions, when music elicits memory. Doll therapy meanwhile has sometimes restored and revealed a sense of nurture, purpose, care and pride, with residents feeding their new friend before accepting their own food, folding its clothes and taking care of it cradled in their arms. Though it divides opinion, a doll can preserve dignity if it de-escalates agitation or engagement in physical or verbal abuse; a sense of dignity also comes from the person being able momentarily to give care rather than receive it. 

“From the ashes a fire shall be woken, A light from the shadows shall spring; Renewed shall be blade that was broken,” continues Tolkien's poem, and, though not the original intention, these powerful images of renewal and restoration paint a picture of something known as “paradoxical lucidity”, or unexpected cognitive lucidity and communication in some patients with severe dementia, especially around the time of death (though sometimes long before).  

Anecdotes are recorded of “unexpected, spontaneous, meaningful, and relevant communication or connectedness in a patient who is assumed to have permanently lost the capacity for coherent verbal or behavioral interaction due to a progressive and pathophysiologic dementing process”.  Some scientists are seeing them as a paradigm shift in the understanding and perhaps even treatment of dementia. I will never forget when a woman in the late stages of dementia, with little spoken language, was brought back to the nursing home weeks after hospital admission; she had been perilously ill. With bright eyes, she took my arm and, as if the mist had cleared for a moment, spoke warmest words of thanks to me for helping her on the day she collapsed. In another fleeting and irreproducible moment, a lady wished me happy birthday, before continuing her silent walk around the home. Witnessing such an event is ethically and emotionally transformative. 

The concept of remaining ‘alive inside’ even when abilities, language and memory are eroded by dementia is taken to the next level in Christianity, which teaches that life continues even after death itself. The Bible speaks of new life beyond the grave; the fire shall be woken, a light shall spring. And there will be a crown (and the gold will glitter). The Crown of Life is referred to, being bestowed upon "those who persevere under trials." Dementia is one of life’s severest trials; a cross to bear. In the 1912 hymn “The Old Rugged Cross”, another cross is spoken of, being the cross of Christ at his crucifixion. Clinging to that cross, living out a Christian life, the hymnwriter wrote of “exchanging the cross for a crown” at life’s end. After ashes, hope awaits the Christian. 

 

Playlist for Life is a charity encouraging people to create playlists for people living with dementia.