Explainer
Addiction
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6 min read

Eden in the East End

Belle Tindall writes of her afternoon in an East End kind of Eden, and tells the stories of how, through All Hallow’s Church, Christianity is being lived out in Bow.

Belle is the staff writer at Seen & Unseen and co-host of its Re-enchanting podcast.

A neo-Romanesque church sits at the acute corner of two roads. To its side a tower block rises over a row of low-rise flats.
All Hallows,Bow. 'Ahaba' is an old Hebrew and Arabic word for love.
Google.

Feeling increasingly restless in the comfortable confines of West London, Rev. Cris and Beki Rogers, along with their family and seven others, decided to take on All Hallows Church and make Bow their home.  

Fast forward thirteen years, and here’s Cris, sat with a coffee on the corner of an intersection in the heart of London’s East End, flanked on every side by blocks of flats and talking over the sound of heavy traffic: this is Cris Rogers’ Eden.  

I love this place’, Cris delightedly declares, ‘I love the sounds, I love the smells, I love the people’.

And why wouldn’t he? This is the place where Clara Grant, the infamous ‘Bundle Woman of Bow', founded the Fern Street Settlement in 1907, ensuring that thousands of children were warm, fed, taught and loved.  

It is where, in 1913, Sylvia Pankhurst established the East London Federation of Suffragettes, fighting for the rights of working women.  

It is where, in 1985, the profoundly influential grime music artist, Dylan Kwabena Mills (perhaps better known as Dizzee Rascal) was born and subsequently raised.  

It’s not hard to see why Cris describes his home as a place of profound justice, of resilient compassion, of innovative creativity and of rich community. In ways that we’re likely to be unaware of, we exist in the cultural ripple effect of places such as Bow. We owe them a great debt. And yet, there is, of course, another way to perceive and speak of Bow; a perception which places its focus upon slightly different identity markers.  

It is, according to the Government’s Deprivation Indices, one of the most deprived communities in the UK. It has an above average crime rate, with a particularly high number of home break-ins. The percentage of home ownership in the area is 17 per cent, which is dramatically lower than the national average of 65.8 per cent. It is also a community that, because of the establishment and closure of St. Clements Mental Health Hospital, has an increased number of residents who live with mental illness and addiction.  

It is true, in many ways, Bow struggles.  

And it’s not that Cris and the community at All Hallows ignore these facts. On the contrary, they’re on a crusade against poverty in the area, working to eradicate it entirely. They’re also relentlessly pursuing justice and offering support to those in their community who need it most.  

No, ignorance is not the source of Cris’ perspective - Jesus is.  

I’m aware that such a sentence is in serious danger of sounding eye-rolling-ly twee, so allow me a moment or two to explain further.  

The playwright himself took the stage, the author jumped inside the page, the architect inhabited the plans. Admittedly, it’s downright strange. 

John, one of Jesus’ four biographers, opens his work with a prologue of epic proportions. Nestled into this prologue is this line –  

‘The Word (that’s Jesus) became flesh and made his dwelling among us’.  

In John’s original Greek writing, the words ‘made his dwelling’ can be more literally translated as ‘tabernacled‘, or rather, ‘pitched his tent among ours’. Author Eugene Peterson subsequently paraphrases it this way:  

‘The Word became flesh and blood, and moved into the neighbourhood.’ 

The belief that God squeezed himself into the confines of humanity is certainly one of the more mystic elements of Christianity. The premise is that the playwright himself took the stage, the author jumped inside the page, the architect inhabited the plans. Admittedly, it’s downright strange.  

And yet, this is the bedrock of what theologians call Incarnational Theology, a theology of Jesus’ embodied presence on the earth. Or, what Cris Rogers would call ‘moving in and living deep’. It's the astonishing idea that Jesus is present amongst, he is present alongside.  

If the Incarnation happened, as Christians believe that it did, if Jesus really did pitch his tent next to ours – in that, he literally entered into time and place – then the implications of such aren’t only spiritual. The gospel (for want of a less Christian-ese word) is also a physical encounter, it is intent on changing one’s day, one’s week, one’s life, in tangible and practical ways. It must still be found in time and place. The church (as in, the people, not only the building) is one of the most obvious ways through which this could happen, as they take their lead from the one they represent and they themselves ‘move in and live deep’.    

So, with that in mind, back to Bow. 

For the residents of Bow, this thing called ‘Christianity’ is not a set of ideas that floats in the ether. On the contrary, it’s the people that teach them to speak, read, and write English in their ESOL lessons. It’s as tangible as the presence of the food banks, as obvious as the building on the intersection, as relentless as the recovery courses that run week after week.   

Of the people who flow through All Hallows Church 40 per cent are in varying stages of recovery from addiction. It’s not surprising, therefore, that a major focus of Cris’ team is helping people through those often-complicated stages. Whether that be through the AA/NA courses (including one delivered in Russian), or visits to Pentonville Prison when addiction has taken hold once again and paved the way for behavioural mistakes to be made. After all, recovery from addiction is anything but linear.  

And then there’s the recovery service. Every Tuesday evening the building hosts around 40 people who attend a specifically recovery-oriented service, held by Raf, the curate at All Hallows – who himself is ten years clean and sober. This service combines the twelve step programme with the Bible, week after week after week, building a community upon the power of these two liberating texts.  

Moving in and living deep means that the team at All Hallows can take Jesus’ instruction to ‘love their neighbour’ completely literally. Even when that neighbour is breaking into their church’s coffee shop for the fourth time. It means that, together, those neighbours can love their home well and refute the notion that someone has made it when they finally have the means to move out of it. It means that Cris was right where he needed to be when someone walked past their church building on the way to take their own life, and decided to ask for help instead.   

This is what incarnational theology looks like on the ground. This is how Christianity makes itself known in Bow. As Cris says, ‘we are called to love the hell out of our estates as no one else can’.  

An East End kind of Eden   

I’m telling this story through the vehicle of Cris, his family and his team, but this piece really isn’t about him or them; it is about Bow. A beautiful place filled with beautiful people. It’s a story of a group of people living in and learning from a community they know and adore. It’s a story of the mystic nature of incarnational theology looking like a Russian recovery course. It’s a story of being enchanted with one’s home.  

I say this because, as Cris has observed, words matter. The story you tell about a place matters. This is the reason that they have re-written the words to a hymn from 1885, the third verse of which goes like this:  

When through the woods and forest glades I wander 

And hear the birds sing sweetly in the trees. 

When I look down, from lofty mountain grandeur 

And see the brook, and feel the gentle breeze. 

Then sings my soul, My Saviour God to Thee, 

How great Thou art, how great Thou art.

Beautiful as these words are, the story they tell to residents of places such as Bow, is that beauty is elsewhere, that God is more present, and somehow easier to find, in places that look nothing like their home. In order to counter that, these are the words that ring out from All Hallows on a Sunday morning:  

When through the estate and shaded parks I wander 

And see the shops and people in the streets 

When I look up and see the tower blocks’ grandeur 

And hear the cars and the sound of dancing beats.  

Then sings my soul, My Saviour God, to Thee,  

How great Thou art, How great Thou art. 

There is a kind of Eden in the East End, in fact, there are numerous. And while I can’t speak for them all, I can say that Bow is one of the most special places I’ve ever found myself (with some of the best coffee).  

Article
Ageing
Care
Change
Death & life
6 min read

A Tolkien poem helps a nurse understand the ravages of dementia

'Not all who wander are lost.'

Helen is a registered nurse and freelance writer, writing for audiences ranging from the general public to practitioners and scientists.

An elderly woman wearing headphone looks up and to the side with a big smile.
Playlist for Life

Not all who wander are lost.

Often written on a care home wall, on an inspirational poster, these words are usually set against a forest background, or compass, for added effect. They have also been used as the title of a conference paper discussing so-called smart trackers for people with dementia, whilst, Not all who wander need be lost is the title of a concise guide to navigating the heartbreaking challenges when a loved one is diagnosed with Alzheimer’s disease or other dementia.

As a care home nurse for more than ten years, I have seen residents wander - not lost but “walking with purpose”, as it is sometimes known in the caring community. “Nobody gets up and walks without a reason,” says Suzanne Mumford, Care UK's Head of Nursing, Care and Dementia; perhaps they are easing pain, or boredom, or looking for something that they can’t describe. I remember residents exploring, enquiring into self-made mysteries solvable only by themselves, examining everything from door handles to another resident’s buttons, even escaping with surprising speed. Walking with them, often in silence, can bring a sense of relief, comfort and companionship.  

What I didn’t know was that this is a quotation from a poem by JRR Tolkien, published in The Fellowship of the Ring seventy years ago. The actual line is - “Not all those who wander are lost”. 

All that is gold does not glitter, 
Not all those who wander are lost; 
The old that is strong does not wither, 
Deep roots are not reached by the frost. 
 
From the ashes a fire shall be woken, 
A light from the shadows shall spring; 
Renewed shall be blade that was broken, 
The crownless again shall be king.” 

We first hear this poem in Chapter Ten of Book One, as Frodo reads it in the postscript of a letter from Gandalf. As I read it, the imagery of being lost, withered, frost-bitten, in darkness, burned and broken, speaks something, in poetic picture language, of the ravages of dementia, the harrowing losses, the valley of tears. It brings to mind residents unaware of familiar objects or surroundings, looking straight through loved ones without a flicker of recognition, losing also language, continence, mobility and the ability to swallow. 

The TV presenter Fiona Philips recalled an agonising decline in her mother as she succumbed to Alzheimer’s, describing how, in the final stages, her mother “spent whole chunks of time just sitting and staring ahead, only able to give out a series of sounds”. Fiona herself now lives with dementia. “'It’s devastated my family and it’s the biggest health and social care challenge we face as a country,” she says. 

I once interviewed retired doctor Jennifer Bute, who lives with dementia. She talked of time travel (perceiving herself as living in a time from her past); disorientation to place and person; frightening hallucinations when old memories are seemingly ‘unlocked’; and ‘emotional unzipping’ when agitation and anxiety increase, often in the late afternoon or evening in something poorly understood as a symptom, known as ‘sundowning’. 

Yet there is something more to this poem – each of the pains has a promise – not all who wander are lost; the old that is strong does not wither; and, most poignantly, deep roots are not touched by the frost. In dementia, it is true that deep roots are untouched, that an enduring aspect of a person’s identity never truly withers, though it may be mostly unseen. Something remains. Oliver Sacks the famous neurologist emphasised that, even in the late stages of Alzheimer’s, the person is still ‘alive inside’ (the inspiring documentary with this title is recommended). In stunning real-life stories, he has shown how music appears to ‘call back the self’, awakening moods, memories and thoughts that had seemingly been lost. He refers to music’s extraordinary ‘neural robustness’ and describes one man, unable to tie his tie or find his way to the stage, yet able to perform a perfect piano solo. In one life-affirming, must-watch, tear-jerking video, gospel music was shown to enliven, calm, focus and engage a man simply known as Henry.    

Watch Henry

Singing can “provide islands of arousal and awareness like nothing else can”, according to Alicia Clair, Professor of Music Therapy. I’ve seen singing bring the person into the present for a passing moment, illuminating a face that seemed far away. One otherwise-silent lady completed the chorus of ‘Daisy, Daisy’ before descending into dementia again. Others have laughed, clapped, danced, embraced and even shed a silent tear during music therapy sessions, when music elicits memory. Doll therapy meanwhile has sometimes restored and revealed a sense of nurture, purpose, care and pride, with residents feeding their new friend before accepting their own food, folding its clothes and taking care of it cradled in their arms. Though it divides opinion, a doll can preserve dignity if it de-escalates agitation or engagement in physical or verbal abuse; a sense of dignity also comes from the person being able momentarily to give care rather than receive it. 

“From the ashes a fire shall be woken, A light from the shadows shall spring; Renewed shall be blade that was broken,” continues Tolkien's poem, and, though not the original intention, these powerful images of renewal and restoration paint a picture of something known as “paradoxical lucidity”, or unexpected cognitive lucidity and communication in some patients with severe dementia, especially around the time of death (though sometimes long before).  

Anecdotes are recorded of “unexpected, spontaneous, meaningful, and relevant communication or connectedness in a patient who is assumed to have permanently lost the capacity for coherent verbal or behavioral interaction due to a progressive and pathophysiologic dementing process”.  Some scientists are seeing them as a paradigm shift in the understanding and perhaps even treatment of dementia. I will never forget when a woman in the late stages of dementia, with little spoken language, was brought back to the nursing home weeks after hospital admission; she had been perilously ill. With bright eyes, she took my arm and, as if the mist had cleared for a moment, spoke warmest words of thanks to me for helping her on the day she collapsed. In another fleeting and irreproducible moment, a lady wished me happy birthday, before continuing her silent walk around the home. Witnessing such an event is ethically and emotionally transformative. 

The concept of remaining ‘alive inside’ even when abilities, language and memory are eroded by dementia is taken to the next level in Christianity, which teaches that life continues even after death itself. The Bible speaks of new life beyond the grave; the fire shall be woken, a light shall spring. And there will be a crown (and the gold will glitter). The Crown of Life is referred to, being bestowed upon "those who persevere under trials." Dementia is one of life’s severest trials; a cross to bear. In the 1912 hymn “The Old Rugged Cross”, another cross is spoken of, being the cross of Christ at his crucifixion. Clinging to that cross, living out a Christian life, the hymnwriter wrote of “exchanging the cross for a crown” at life’s end. After ashes, hope awaits the Christian. 

 

Playlist for Life is a charity encouraging people to create playlists for people living with dementia.