The dying decision: choice, coercion and community

A Japanese drama about medical assistance in dying, Plan 75, reveals a lot about our relationlessness.

Sian Brookes

Sian Brookes is studying for a Doctorate at Aberdeen University. Her research focuses on developing a theological understanding of old age. She studied English and Theology at Cambridge University.

In a retirement home, a older person sings karaoke while the person behind waves a hand.

Chieko Baishô plays Michi.

Happinet.

“Being able to choose when my life will end provided me with peace of mind. With no feelings of doubt. She led a good life on her terms, people will say”.

In Chie Hayakawa’s 2023 dystopian drama Plan 75, these are the words of a silver-haired, wrinkled woman in a promotional video for the eponymous plan – a government scheme which offers all over 75-year-olds the option of a pain-free death at the time of their choosing.

And yet for Michi, an older lady toying with the decisions around Plan 75 it doesn’t really feel like it is her choice which matters at all. Whether it is the $1,000 grant offered as an incentive to die, the luxury amenities on offer at the Plan 75 facility promoted in leaflets and magazines, or the young person employed to gently guide the candidates towards their death (but whose real job it is to make sure they follow through with it), this is a world which has a clear agenda – to rid society of older people. Indeed, it is clear that this is a vision of a world which believes it is better for old people to die than to put financial burdens on the economy or their families, and this is a culture willing to subtly coerce individuals to accept and act on that belief.

Plan 75 reveals an interesting point at the heart of the MAID (Medical Assistance in Dying) debate. One of the primary reasons that MAID is so attractive is the ability to take back control of one’s life and death, yet what happens when that seeming control isn’t really within the individual’s own control at all? For Plan 75, what is marketed as giving control back to older people, is really just a twist on a more sinister political policy to pressure individuals to sacrifice their “burdensome” lives for the greater good. Of course, this is a common argument for rejection of assisted suicide. This is the dangerous ‘slippery slope’, where MAID begins as an option only for those who desperately need it to relieve intense physical suffering. Yet it quickly becomes a tool to remove people whose lives no longer seem worth living due to societal expectations and opinions, rather than any objective reality.

Do we ever truly choose to die totally independent of the expectations of those around us?

For many, this problem can be appeased through strict legal controls over MAID – as long as the powers that be are regulated, MAID is still OK. As long as it is the individual who maintains control over their own death (and not the state), the goal of personal autonomy is maintained and all is well. And yet this perspective fails to ask the question - is such control over our own death ever actually possible? Do we ever truly choose to die totally independent of the expectations of those around us? In a world which places so little value on old age, can older people really make choices unaffected by that (deeply flawed and inhumane) logic? And, indeed - the elephant in the room – no matter how much we try to control death, in the end is it not death that ultimately controls us? As fundamentally finite beings we can never escape it completely – it will always find us one way or another. Ultimately, we will all have to face the reality of death when it comes to us. Complete control and autonomy are never truly possible.

In light of this unveiling, the possibility that complete choice and autonomy around death isn’t really an attainable goal, what better options might we pursue?

Where previously we would find comfort and hope in being loved, known and held by others in our death, now all too often this isn’t the case.

One thing is clear in Plan 75, the isolation and loneliness of older people in a society that has rejected them is deeply problematic. The movie primarily follows the stories of Michi, who lives alone with no family and Yukio Okabe, an older man totally estranged from his remaining family. Both face life, and are facing death, alone. We live in a world where increasingly we are forced to face death alone. When our final days and hours rarely happen in the family home, surrounded by our loved ones, but in faceless institutions devoid of lifelong meaningful relationship the sense that we are no longer doing death together as a society is acute. Where previously we would find comfort and hope in being loved, known and held by others in our death, now all too often this isn’t the case.

At the same time, there is no doubt that our modern world is unceasingly committed to the ideal of individual personal agency and autonomy – “She led a good life on her terms”. As a myriad of philosophers and theologians have commented, belief in human autonomy has come to replace belief in God. And MAID is one area which reveals this to be the case most acutely. Where previously we would turn to God to find comfort in the face of our finitude, instead now we turn to ourselves – the last hope we find in the face of death is our individual ability to control it.

Death and health should be a corporate phenomenon – when one person is ill, all of society is ill.

The German theologian Eberhard Jüngel described death in this broken world as “the occurrence of complete relationlessness”. In fact, Jüngel suggests that as human beings we are first and foremost made up of our relationships – we are truly human not by how we self-define in isolation but how we relate – how we relate to the God who made us, and how we relate to other people. This need for relationship is found most acutely in the face of death. As Ashley Moyse points out in his book, Resourcing Hope for Ageing & Dying in a Broken World, death and health should be a corporate phenomenon – when one person is ill, all of society is ill. And so, as death increasingly becomes the journey of the individual – when we face death in isolation from others and in isolation from God no wonder we feel such a strong desire towards control, towards ending our lives prematurely, towards science to help us avoid any more pain than we can bear alone.

In Plan 75 we see glimmers of hope in the possibility of relationship. As Michi and Yukio find rare moments of human connection with a long-lost nephew, with a young person working for Plan 75, with another older person going through the same questions around mortality you can’t help but feel deeply uncomfortable with their choice to apply for the scheme. It is in the hints of love, physical touch, smiles exchanged, even a simple conversation shared between two people that suddenly MAID seems so disconnected with the hope that life still has to offer through relationship. Perhaps if we could imagine a world where death became no longer an occurrence of complete relationlessness, but a locus for relational dependence, for familial connection, for leaning on God and not ourselves, the need for MAID would feel a little less necessary. It would be a world with a little more hope.

The Wild God we can't coerce

Weird and increasingly encountered beyond the wilderness.

Belle Tindall

Belle is the staff writer at Seen & Unseen and co-host of its Re-enchanting podcast.

A pianist raises his arms while sitting at a grand piano amid recording equipment.

Nick Cave recording Wild God.

nickcave.com

Christianity is a wild thing.

I say this, even while only half-understanding what I’m saying. It’s something that I’m learning. Or perhaps it’s more appropriate to say that it’s something that I’m unlearning. Because, admittedly, I’m far more familiar with a somewhat domesticated view of my own faith tradition. The kind that allows me to fashion fences out of my expectations; to put parameters around God’s presence and boundaries upon his behaviour. Both of which are a farce, of course - but a comforting farce, none the less.

You see, there is nothing ‘comfortable’ about a God who cannot be wholly predicted or comprehended, let alone controlled or contained. A wild God is always going to be a challenge to a culture that has enthroned comfort. We’re too easily spooked and too unused to the sensation of being cosmically baffled.

But, affronting as it may be, I am trying my best to sit in the knowledge that the God I believe in is a wild God. And I’m finding this wildness increasingly hard to ignore. Perhaps it’s all the Rowan Williams I’ve been reading, or my newfound interest in the Romantics (as in, the eighteenth and nineteenth century poets, not the 1970’s American rock band). Or maybe it has more to do with Nick Cave and the Bad Seeds’ new album, which I have been listening to relentlessly over the last week.

In this musical offering, Nick Cave introduces us to his ‘Wild God’, who I think is my God too. It’s just that ‘wild’ has never been the first adjective I reach for when describing him.

Until now, I suppose.

Let me clarify what I mean by wild, because what I’m not saying is that God is inherently chaotic, unruly, reckless or irrational. Wild Gods, as we know them from the myths and legends, act on tempestuous whims, and are more than a little havoc prone. They are perilous, largely because one can never truly know where they stand with them. That couldn’t be further from what I mean. The entire Old Testament - as complex, nuanced and masterful as it is - can be understood as a collection of ways in which the God at its centre is saying – this is who I am, this is what I desire, this is what I’m going to do, this is where you stand with me. If you were to read the Bible, it would become pretty clear pretty quickly: God is insistent that those who seek to know him will never have to second guess him. God’s wildness does not mean that we cannot know the essence of who he is or how he feels towards us. I like to think that we can endeavour to know him accurately, but never exhaustively.

Rather, what I’m trying to get my head and heart around is the knowledge that God, and therefore Christianity, cannot be wholly domesticated. Despite my best efforts, it cannot be made into an entirely comfortable and cozy thing. To make it so, one would have to dilute it, shrink it, bleed any truth out of it. In his poem - Sometimes a Wild God -Tom Hirons writes,

Oh, limitless space.
Oh, eternal mystery.
Oh, endless cycles of death and birth.
Oh, miracle of life.
Oh, the wondrous dance of it all’.

There’s an innate weirdness to the Christian worldview, a pure wildness at the heart of it. It’s brimming with mystery and mysticism. As Hirons hints, it’s bigger and more consequential than our comfort-zones would like it to be. And, what’s more, much of it is communicated through the natural world. Biblical narratives and poetry are endlessly pointing us toward the places and spaces that are outside human cultivation – the stars, the mountains, the oceans – the things that pre-date and will outlive us.

Christianity is wild in that there’s an alluring organic-ness about it. Its truth sits beyond human manipulation and coercion.

For millennia, whole lives have been given over to this truly wild and, I believe, wildly true story. Can I give you just two recent examples? Two people who have (utterly unexpectedly) adventured their way into this wild and wonderful way of seeing the world? Two people I’ve had the joy of learning from over the past year?

First up is Paul Kingsnorth.

Paul is an award-winning poet and a best-selling author of both fiction (including the Buckmaster Trilogy: Wake, Beast and Alexandria) and non-fiction (including Real England, Confessions of a Recovering Environmentalist and his ongoing Sub-Stack series: Abbey of Misrule). He is, and always has been, an advocate for treating the natural world as if it were far more than a machine to be used or a resource to be obtained. Such behaviour is, according to Paul, nothing short of sacrilegious. As well as an enchantment with what he can see and sense in the natural world, he also has a long-standing fascination with all things mystical.

Buddhism, Witchcraft – you name it, he’s tried it.

He told Justin Brierley and I the story of how he his adventures have led him to arrive at the wildest possible destination: Christianity.  

And then there’s the renowned mythologist, Dr Martin Shaw, who decided to do a 101-day wild vigil in Dartmoor. Despite not being a Christian, on the very last night, he prayed. While praying, he looked up and saw something utterly unexplainable, something ‘properly Old Testament’. And that was it – after a night of dancing, several other ‘odd’ experiences, and eighteen months of deep pondering – he was able to say, ‘I went into the forest expected to be wedded to the wild and I came out wedded to Christ’.

Thinking about it, it’s probably no accident that ‘Christianity’ began on the margins, and from there, worked its way into the cities. There was a time where the prediction of Jesus’ arrival was being yelled out into the countryside, so loudly that people were emptying the surrounding towns to come and hear more. A time when rumours of redemption were being whispered in the rural hills. A time when its chief messenger was an inexplicably weird man named John the Baptist; who shunned his prestigious priestly heritage to live in the wilds, to dress in camel skins, to eat honey and insects and insist upon the imminent coming of the long-awaited Messiah. This Messiah, by the way, who would be born where animals are kept, sleep on mountains, retreat into deserts, walk on water, speak to storms, and break people (including himself) out of stone graves.

You see what I mean, Christianity is a wild story to believe and live in accordance with.

It’s the story that drove the ‘Desert Mothers and Fathers’ of the Third Century AD to reject civilisation and all its comforts, in order to seek God in the silence and solitude of the desert. It’s the story that is still inspiring people to live in caves on Mount Athos, secluded islands just off the coast of Wales and forests in the heart of Ireland. An uncontainable message has, since its inception, been lived out in uncontainable places.

Honestly, you want weird? Christianity can darn-well give you weird.

Don’t be fooled by over-familiarity or be swayed by that pesky left-side of your brain, the part that wants to convince you that you know all that there is to know. Christianity is a story that I, myself, had forgotten was quite this wild.