We need to weep over the wreckage of mental illness

While its now OK to talk about mental illnesses, we need to weep over the harm caused and how we’ve tried to treat them, writes Rachael Newham.

Rachael Newham

Rachael is an author and theology of mental health specialist.

A grey and white wall graffited with a tag a image of a person crumpled and crying.

Today, February 1st, is Time to Talk Day. It's part of a long-running campaign encouraging people to have open and honest conversations about mental health. It's aim is to break down the barriers of stigma and misunderstanding. It has been a staggering success - what was a fringe issue talked by those only affected by mental illness a decade ago is now part of common parlance. Mental health training is widely available, and the charity’s work has been seen to have a significant positive impact on the mental health conversation

However, as our familiarity with the language of mental health has grown so too has the way we use it. People might talk about having PTSD after a bad date, or their friend being ‘so OCD’ about the way they organise. Unwittingly, as psychotherapist and author Julia Samuels points out, “[we have] awareness without real understanding.”

However, awareness without understanding means we actually don’t reach those most impacted by mental illness. We know about mental health in the way we know about our physical health - but we are no more aware about the serious, sometimes lifelong mental illnesses which rob people of hope, joy and vitality - sometimes leaving them with lifelong disability.

If you ask most people about mental illness they may tell you about depression and anxiety; the two most common mental illnesses which have become the acceptable face of mental illness. It’s reflected in the way funding is channeled to interventions that get people with mental illnesses back to work, or to NHS ‘Talking Therapies’ which offers short term psychological therapies (both of which are important initiatives) but have cut the number of inpatient beds from over 50,000 in 2001 to under 25,000 in 2022[3] which means those at the more severe end of the spectrum of mental health to mental illness are left to travel 300 miles for the care they need.

We have to survey the wreckage that severe and enduring mental illness causes, before we can begin to rebuild a society that is kinder - without prejudice or stigma.

Whilst it’s right that we have raised awareness about the most common conditions, we can’t ignore the illnesses which are termed ‘severe and enduring mental illnesses’ which include those such as bipolar disorder, major depression, schizophrenia and complex post-traumatic stress disorder.

For people living with these conditions, the general mental health advice that we give; for example getting enough sleep and time outdoors may not be enough to keep the symptoms at bay. Just as general physical health advice like getting your five a day will not cure or prevent all severe physical illnesses. Medication, hospitalisation, and at times even restrictions of freedom like being detained under the mental health act might be necessary to save lives.

These are stories that we need to hear. The debilitating side effects of life saving medications that can raise blood pressure, cause speech impediments. The injustices to confront (such as the fact that black people are five times more likely to be detained under the mental health act than their white counterparts) and the adjustments to life that those with disabilities are required to make to their lives.

We have to survey the wreckage that severe and enduring mental illness causes, before we can begin to rebuild a society that is kinder - without prejudice or stigma. We have to listen to the perhaps devastating, perhaps uncomfortable stories of those who live with severe and enduring mental illness. The mental health npatient units miles from home, the lack of freedom, the searing - unending grief.

Weep for the lives lost, the crumbling systems, the harm caused both by mental illness and the way we’ve tried to treat them.

By hearing these stories, we are accepting them as a part of reality. For those of us in churches it might be that the healing didn’t come in the way we expected, it might be also be all of us accepting that the systems designed to care for those with mental illness have in fact, caused more harm. It’s seeing the injustices and understanding that we, our systems and professionals need to change our attitudes.

Understanding and acceptance of the injustice are the way forward- that’s the only way change can come.

It might look like standing in the rubble, it might feel too huge and all but hopeless.

And yet in scripture and in life that is so often the only way we can begin to rebuild.

In the book of Nehemiah, one of the Old Testament prophets who had lived in exile far away from home for his whole life, we see that upon hearing about the state of the walls of Jerusalem, before he did any of the things we expect heroes and innovators to do- he wept. In fact, it’s estimated that for four months he wept over the state of the place that had once been the envy of the ancient world.

Perhaps we too need hear the stories and then weep.

Weep for the lives lost, the crumbling systems, the harm caused both by mental illness and the way we’ve tried to treat them and then slowly, we can begin the work of rebuilding.

It isn’t a work that can be done alone by a single agency much less a single person - it requires society to hear stories of the more than just ‘palatable’ mental illnesses with neat and tidy endings to the messy and sometimes traumatic stories that are there if we just care to listen to them. It might be reflected in the petitions we sign, the way we vote, the stories we choose to read.

So ,this Time to Talk Day - I’m saying let’s continue the amazing work of talking about mental health - we need to keep talking about anxiety and depression. But let us also make conversations wider, so that they encompass the whole continuum of mental health and illness.

We’ve seen the difference Time to Talk can make - now it’s time to talk about severe and enduring mental illnesses, too.

Article

Books

Change

Mental Health

17 June 2024

5 min read

Reading together helps us read our own lives better

The rush and tumble nearly squeezes the life out of the clock’s second hand.

Jessica Brown

Jessica is a researcher, writer, and singer-songwriter. She is studying at Trinity College Dublin, and is an ordinand with the Church of Ireland.

A painting shows two 19th century women in a carriage, one reading as the others snoozes.

The Travelling Companions, Augustus Egg.

Birmingham Museums Trust on Unsplash.

Even ordinary days seem to have frantic edges. A friend of mine, a salesman and father of four teenagers, said the other day that it felt like he was the hamster in the wheel, but so dreadfully exhausted, he’s flopped over, thumping around as the wheel keeps spinning. If we put a finger on the pulse of our current cultural desires, one pulse would be the longing not only for rest — spots of digital fasting or a day hiking — but an overhaul and renewal of what we’ve done with time. Yet it is difficult to know how to slow down, and it often seems that our attempts for self-care and being intentional are not enough to register that desired sense of slowness.

If we managed this, we would not just be able to slow down, but we would figure out how to bring our experience — the texture, the feel — of our paced lives into something like healing. The rush and tumble of a normal day nearly squeezes the life out of the clock’s second hand, and far too often, most of us reach each evening in some state of exhaustion.

Speaking from my own story, a shift happened when we moved from Los Angeles (which was, to be fair, a great place for us until it wasn’t) to East Clare in the Midlands of Ireland. It was a shift that my whole being needed—needed at a limbic and somatic level, in the spiritual self, as an artist, for family dynamics, and for my partner, a sense of freedom in work. It wasn’t that we merely got more time in our day: it was that our immersion in time, our soul’s experience of the clock, found an ‘easing up’ that — though the daily round is still arduous enough — afforded a little more time in every direction to breathe, think, walk, write; be.

It’s been in the wake of this move, nearly eight years ago now, that I’ve pondered why it felt that the hills here gathered me up into their arms and helped me to actually slow down. Is it these hills, the lovely stretches of variant greens and the countless walking paths hidden among them? Is it the congregation of artists — local artists, who refashioned my ideas about artistic success, inculcated as I was into seeing it as only with a large following? Is it the deliberate decisions to keep family overheads as low as we can, freeing up a bit of time from the understandable and ongoing need for wages?

Among the many reasons for the shift in how I experience time — for the sense, not just of slowing down, but of time affording more space — is the grace of reading with others.

The pastor, physician, and poet—this trio of us still are surprised by the deep, serendipitous connections that our poems make, week after week.

In fact, before this shift there was the keenly disappointing realisation of how little time in the land of adulthood could be set aside for reading. In the last few years, though, the regular habit of reading in companionship has grown into one of the most structural elements of my week. With Monday evening comes lectio divina, an ancient Christian practice for reading scripture in an authentically ‘listening’ way. Two lovely pals from town and I meet (often over a WhatsApp call, but sometimes in person) to read together a passage from the Bible, usually what will be read at a service the following Sunday.

On Monday night, my brother in Texas and I unpack whatever book we’re reading at the moment. We started with Tom Stoppard’s Arcadia, went onto Michael Foley’s School of Life book on Henri Bergson, and after a few more texts, are now reading the stunning poetry collection The Art of the Lathe by the Texan-Kansan poet B.H. Fairchild.

On Tuesday nights, I gather via Zoom with two other women—a minister in Connecticut and a doctor in Sydney; we met at an online course about Rilke in the winter of 2021, and still meet regularly, each bringing a poem to share and the stories of our lives as we’re living through the week. The pastor, physician, and poet—this trio of us still is surprised by the deep, serendipitous connections that our poems make, week after week.

I think too what happens in this reading companionship is that the muscles we use to attend to words together are the very muscles needed to read our own lives.

As these fellow readers and I weave together silence and articulation, listening and exploration, our time together edges eternity. In this, I think I glimpse how God works to redeem the violence we do to time. When we enter into the invitation to holy spaces—like time spent with the Bible, times in prayer, times of friendship—our usage of clock time becomes secondary to the content within that duration, and certainly secondary to the presence of others (be it the writer of the Gospel of John, Emily Dickinson, the Holy Spirit, or a friend down the road). Our experience of time becomes inflected by the psychological richness and the interplay of spiritual growth with another person or persons.

I think too what happens in this reading companionship is that the muscles we use to attend to words together are the very muscles needed to read our own lives. In this, we can suss out how the longing for slowness is an appropriate one and one to listen to. Using metaphors at hand, reading our lives with the modalities of dialogue, listening, and in-time discovery means that our longing for slowness can help us see that we’re looking for a waypoint, a stop along the road; or a few days at basecamp, patching up and cleaning worn gear; or a longer stretch of wintering in the plains before crossing the mountains; or a period of convalescence in a home by the sea. These images for rest, for pause and restoration, can help us see how to open to God’s care in our living narratives, care that seeks to renew and redeem our often grueling experience of time.

The special grace that reading companionship yields is not just the hour’s content that is spent in shared conversation, though this is nourishing and transformative in its own right. It is how this hour sets the context for all the other hours. The humble stance of reading with attention and cherishing the voices of others models a kind of immersed slowness for the rest of our personhood. At the end of the day, I think it’s a radical counterpoint to what we often ask of a day, an infusion of divine grace into the pumping vessels of time.