Article

Assisted dying

Care

Creed

Death & life

19 November 2024

5 min read

“Shortening death” sidesteps the real battle

We need to do more than protest bad deaths, we need to protest death itself, it's more than biological.

Tom Dove

Tom has a PhD in Theology and works as a hospital physician.

A hand drapes over the side of an object out of shot.

Michael Schaffler on Unsplash.

What is “death”? It’s surprising the term has received little attention in the assisted dying discussion so far, because more hangs on the answer than one might expect. At a press briefing, Kim Leadbeater MP stated that the assisted dying bill she is proposing is about “shortening death, not ending life.”

But what meaning does “death” have here?

The current bill defines neither “death” nor “dying.” Granted, it implies a biological definition. The bill speaks of administering approved substances to “cause that person’s death” and of capacity and decision-making around “ending life.” These fit the understanding of death with which the medical profession operates—death is the point in time when the combined functions required for human life cease. It is a one-time event, the end of physiology, and so is recognised by a combination of physical signs.

Death, then, is a diagnosis.

So, too, “dying”—though here the waters are murkier. Setting aside sudden deaths, medical talk of dying takes us out of binary territory. Dying speaks of a process, of the “terminal phase.” Within medicine a diagnosis of dying heralds the expectation that a person’s death will occur within hours or days. And so, the focus shifts. The task of care is no longer the coordinated work of investigation, preserving life, and treating symptoms. Now attention is on bringing relief to the process of dying.

The bill seems wise to much of this. Though definitions of death and dying are absent, the bill does define terminal illness—“an inevitably progressive condition which cannot be reversed by treatment” and from which the event of death “can reasonably be expected within 6 months.” And so, it clearly distinguishes terminal illness from biological death and, implicitly, from dying.

Of course, terminal illness and biological death are related. Terminal illness is irreversible, and where terminal illness leads is death. Or, you might say, it leads to the end of life. Apart from the timescale of six months, the same may be said of ageing: ageing is irreversible, and where ageing leads is death. This is why Kim Leadbeater’s comment was puzzling to me. I suspect what she really meant was “shortening terminal illness.” If so, this is confusing because, within the framework of the bill, “shortening terminal illness” and “ending life” are identical. It seems she was getting at something else.

“It seems odd that in the name of eliminating suffering, we eliminate the sufferer.”

Stanley Hauerwas

I suspect Kim Leadbeater was echoing a conviction at home in the Christian faith. That is, try as we might to keep death at a distance and restrict it to a faraway frontier, the life of human beings involves death. I don’t simply mean the biological death we witness—the deaths of friends, relatives, or even strangers. I mean death intrudes upon the way we experience life. Death is more than simply biological.

The fear of death belongs in this category. For some, the impending loss of relationships and joys casts a shadow over life, giving birth to apprehension. Death is not simply a factual matter but something that exerts power and influence. Or take disease and illness. Built into the notion of terminal illness is the idea that the sickness borne by a human body will ultimately bring about that body’s death. That body already speaks of its death. Death is making itself felt in advance.

And so, death is more than a biological event. Even living things can bear the marks of death.

This is no novel claim. The creation account recorded in the Bible says that in the beginning, there was good. But an intruder appears. In the wake of humanity’s choice to go its own way rather than the way of its Maker, death arrives on the scene. And death is an imposter—not simply a physiological fact at the end of the road, but a destructive and alien presence in God’s good world.

Understood in this way, death is not something that God intends humans simply submit to. Death is something to protest. This is why Kim Leadbeater’s comment gets at something important: this kind of death should be protested. The marks of death should not be accommodated, because they do not belong to the goodness of what God has made.

At the heart of the Christian faith is God’s own ultimate protest against the force of death. Christians celebrate that God himself came in the man Jesus to “destroy death.” This is plainly more than biological. Jesus came to free humanity from the entirety of death’s grip. Hence why, when Jesus speaks of “eternal life” he means more than endless biological existence. He means liberation from all the havoc that death brings to bear within God’s world. To the Christian imagination, the power of death must be protested because God protested it first.

The question is how to protest death. Within the framework of the bill, shortening death or terminal illness is identical with ending life. This is the only form protesting death can take.

But the Christian faith makes a far more radical claim: God alone overcame death by dying. This is the point: Jesus was the one—the only one—who emerged resurrected victor in the contest with the power of death. In seeing his death and resurrection, an unshakeable hope emerges. Death is not the victor. And this hope stands above our present experience of death—in whatever form—and, at the same time, calls us to join the protest.

Ethicist Stanley Hauerwas once wrote: “it seems odd that in the name of eliminating suffering, we eliminate the sufferer.” I have deliberately avoided discussing suffering, not least because it would take me too far afield. Yet Hauerwas has put his finger on what I’m getting at. Protesting death—in the big sense—belongs to the Christian faith. Protesting suffering and pain, economic and racial injustice, fractured relationships and broken societies, are all part of this protest. But can eliminating those who live within the shadow of death be part of this protest? I think not. The Christian faith believes there is only one who can overcome death in this way, and that is God himself—who has already done it.

Interview

Belief

Books

Creed

28 August 2025

15 min read

Marilynne Robinson: “an ordinary person is as metaphysically amazing as Julius Caesar”

The self-confessed daydreamer and slacker talks with Graham Tomlin

Nick Jones

Nick is the senior editor of Seen & Unseen.

Marilynne Robinson is the author of best-selling novels including Housekeeping, the winner of the Hemingway Award, and Gilead, a winner of the Pulitzer Prize. She has also written numerous non-fiction works, including her most recent book, of which the New York Times said: ‘Reading Genesis is alive with questions of kindness, community and how to express what we so often struggle to put into words’. Rowan Williams has described Robinson as "one of the world's most compelling English-speaking novelists".

This interview is an edited transcript of a Seen & Unseen Live event.

Graham
I've got a number of your books on my table here. I've got my copy of Gilead, Housekeeping. I've got Jack, all the novels. I also have a whole series of other books of essays you've written, like When I Was A Child I Read Books and The Givenness of Things - I love that title. You write a lot of different things, but you're primarily known as a novelist, and I wanted to ask how and why you became a novelist. Did you always want to write stories? Was that always part of your kind of your mind? Was it made up when you were a child growing up? Was storytelling always part of your life?

Marilynne
You know I have very vague ideas about that. I was encouraged by teachers, and so on, to feel that I could write well. That if I made a choice I could follow up on it. I took a writing class in college, a workshop. I felt I had come to Brown [University], which is in Rhode Island, from Idaho - which is definitely not in Rhode Island! I listened to people talking about the West, basically where my ancestors had settled, and it reminded me of how differently I experienced it than the way that people talked about it. So, in a way, I wanted to create a West as I felt it as a child. Especially with the importance of women in that culture, which was very great. It gave me an opportunity to just recover the sense of the strange loveliness of a very wild place, and this richness of being there. So that was my first try at fiction.

Talking about Gilead for a moment, which is the first novel of yours that I read and probably the one I still enjoy the enjoy the most. It's always struck me it's a kind of unlikely novel to become very well known. It's the story of an elderly pastor writing a long letter to his son. It's a book in which, in one sense, not many things happen. It's doesn't have big plot changes. It's not set against seismic events in history like a war or an earthquake, or a disaster. It's small-town America, quite local in many ways. Was it a real surprise to you that it became so popular? Why do you think people resonated with it in quite the way that they did?

You know, those are the kinds of questions that I hesitate to ask myself. I feel as though the ordinary with which I am identified is extremely rich, and it has a very important place in any life. An ordinary moment in its own way is sort of metaphysically unaccountable as the most spectacular moment at least as we perceive these things. An ordinary person is as metaphysically amazing as Julius Caesar. I mean, there's no point pretending that we can make gradations of interest, I think, among people. And, if I have one aesthetic banner that I fly, basically, that's it. That anything that is looked at closely, and with an eye to the fact that the beautiful is sort of the signature of reality, there's everything to be done there.

There’s a sense that everything matters, even the small things are of real significance if you look at them closely enough. And that's one of the things that comes out of the book. And rereading it recently, that focus on ordinary things came out for me. Maybe because I was aware of some close friends who died recently, the theme of death also struck me. It's a novel that is kind of anticipating death. It's about an elderly man, 76 years old, who thinks he's probably going to die soon, writing a letter to his son. Did you sense that it was a meditation on death when you were writing it?

Well, I started it simply because I had a voice in my head, and the voice in the head was saying, you know I'm going to die soon. That was the the situation of the voice that was central to the novel for me. And so it necessarily became a meditation on death, whatever death is - the cessation of life in any case. Which is a profound retrospect on things that seem trivial as we pass through them, and are amazing in retrospect, just voices and gestures, and other people.

One of the lines that stays with me from the book is one from John Ames, the main character. He says something like: ‘I've been trying to think about heaven. But I found it quite difficult to do so. But then again, I wouldn't have been able to describe this world if I hadn't spent the last 70 years walking around on it’. Has writing the book helped you think about death in a different kind of way? As we get older, I suppose it becomes more part of not our experience, but of our anticipation. Do you find you think about these things more?

I think that one of the things that's wonderful about writing novels or poetry is that it makes coherence, it puts things in relation to each other. It lets you explore your mind and understand what you read and what you are attracted to, and all the rest. I think that just the fact of writing has sort of transformed my ideas of both life and death. The need to make them, as it were, palpable or visual in one's own imagination. You have to make choices in terms of what is beautiful or what matters, So, yes, my sense of death is no doubt very much modified by having written that book and also my sense of being alive.

The other book I wanted to talk about is your latest book, Reading Genesis. It a bit of a departure for you. You've mainly written novels, essays and books of cultural commentary. You suddenly find yourself writing a book about a book of the Bible. What led you to do that? Why did you focus on Genesis rather than one of the Gospels, or the Psalms, or any other book within the Bible?

Genesis establishes so much that becomes an assumption for the rest of the Bible. It establishes the basic metaphysical circumstance of humankind in relation to God. You find it echoed everywhere. It's so basic to the whole literature that the fact is that it is very much underread and it's been exposed to centuries of criticism that was very condescending to it, as if it were a primitive literature when, of course, ancient people were capable of extremely sophisticated thinking and perceiving. I thought that in order to clarify anything subsequent to Genesis, you had to clarify Genesis. It seemed to me as if it functioned so beautifully in terms of self-referential qualities, structure, the argument was there to be made. it's not recherché or anything. It's in the text that it is literary and that certain meanings are developed by literary methods through the course of the of the book.

How did you find coming at it as a as a novelist? Most books I've read on Genesis have been technical commentaries by Biblical scholars who've researched the history of the times, and the texts around it. You come at it as a storyteller, as a novelist. Did that give you an advantage in telling the story of Genesis, looking at again, or a different angle than you'd find in many of the commentaries?

I have my limitations. I looked at it, of course, in the way that was natural for me to look at it. But I felt as if it was badly treated by critics. I asked a friend of mine, a theologian, if people still used JEDP, the old 'documentary hypothesis'. He did a poll of people that he knew that wrote in the area, and one of them said any self-respecting scholar uses the documentary hypothesis. So, I thought, well, that's not me, you know. I'm not a scholar. The documentary hypothesis is very old at this point and however many ways it's been modified its impact is essentially the same. It makes the text incoherent in its most crucial parts.

This is the hypothesis that breaks it down into different sources, and tries to identify which part of the book comes from J, or E, or D, or P?

Yes, exactly, exactly. And they question the reality of Moses, but they believe deeply in J or D. I mean, it's kind of ridiculous, and they proceed as if they were a kind of documentary evidence that really does not exist. So, I thought the fact that scholarship has been manacled to this one theory for 150 years does not oblige me to be shackled to it also.

If you ask the average person their view of the God of the Old Testament they might imagine a kind of vengeful, capricious, angry character who smites people because he doesn't like them. Yet your depiction of the story seems to say, actually, no it’s God who is faithful and good and patient. It's the humans in the story who are angry and vengeful and capricious. You're turning that on its head. Some people may not be convinced by that, and are still wedded to this idea, that that the God of the Old Testament is this vengeful character. How do you respond to that when you read people who depict God in that way?

This is a very ancient thing, this making the sharp distinction between the God of the Old Testament, the God of the New Testament, giving Moses horns and all the rest of it. This is dualism, it's a violation of the assumptions of monotheism. which I think are very beautiful and important. I'm very ready to defend monotheism, but in any case, I think that if there's a punitive structure in the narratives of the Old Testament, what they are telling us is that most of the world's evil is created by human beings and there are certain points at which it becomes intolerable under almost all circumstances. The evil that is insupportable is violence against human beings. It is the tendency of human beings who are images of God to act revoltingly badly toward human beings who are images of God. If you think of the four horsemen of the Apocalypse, war and famine and plague, and so on, all of these things are humanly created in the vast majority of cases, perhaps every case, and I think it's an evasion of of the fact of human moral competence to say that you know God is to blame for the violence that we do.

And letting ourselves off the hook by doing that....

Yes, exactly.

You make quite a contrast between what the Book of Genesis says about humanity, for example, and some of the Babylonian myths of the time, similar creation stories like the Gilgamesh epic or the Enūma Elish. You contrasted them because they seem to give a very different understanding of humanity from what you get in in Genesis. Why does the view of humanity in Genesis have much more nobility and grandeur than these other origin stories?

Well, the idea that human beings are images of God, that is utterly Biblical. There is nothing to compare with it. Human beings are made in the Babylonian myths to do groundwork basically, to spare gods having to do work that would fall to them because they lost the war among gods. A certain number of people are created. They are not named. They are no objects of any god's devotion or anything like that. Brilliant as the Babylonians were, they're not assumed to be a creation of the status of an Adam. ‘What is man, that thou art mindful of him?’ The way that Genesis sets up, so that the beginning is this wonderful explosion of being, and at the end is this human being that reflects it all basically, that is the adequate second presence in this amazing moment. And you find that picked up in the Gospel of John. That's just very beautiful, and I know of nothing that is comparable to it in any way. Certainly not myths that were current in antiquity. Certainly not in our very declined anthropology since then.

Genesis probably is one of the most influential books in the whole of Western intellectual history, given that it's given us a whole language for thinking about the way the world is, the way we are, who God is, how we relate to one another as human beings, how human society works. Would you pick out other themes or ideas apart from that anthropology, that you think were revolutionary in the Book of Genesis?

One of the things that is amazing about it is that the people upon whom God's attention rests are very ordinary people. Abraham is not a king, or a magnate, or anything like that. He's just a wandering herdsman. The idea that the whole of history and meaning can rest on the person of someone who would have seemed quite unexceptional to the people around him as he lived. That means any of us. That's a way of re-understanding the fact that the Adamic figure at the beginning of Genesis is simply humankind. You know the grandeur and the the ordinariness are simultaneous.

The significance of each individual as a significant moral actor within the world.

Yes, exactly.

So, if Abraham has had such a role, then you and I can. And everyone listening to this or reading this conversation can do the same.

And assume that we do it. One of the things that I think is very clear historically is that people are morally competent, for one thing, and then deeply consequential. When you have an election and you make a very appalling choice, 51% of the individuals in the United States made that choice. They truly did. We can't hide behind the idea that what we do does not matter, that we're minor figures, and so on, that God knows what the ultimate consequences of these kinds of things might be. :

In writing the book, did you find yourself reflecting on the kind of current situation in America and what was going on in it? You were writing it before the recent election, but did it have any reflections for you on where your nation is right now?

Well, it necessarily has reflections on history in general, because it is about what human beings are, and how things happen among them. I would not have anticipated anything of our present circumstance, even a re-election of Trump. This is horrifying, astonishing.

I want to ask one more question. I was reading recently one of your essays, and I think it started with the line ‘I reached the point in my life when I can see what has mattered’. I wondered if you wanted to reflect back on your life as a as a novelist, as a writer, as a thinker, as a Christian? What do you find has mattered more as time has gone on, and what has mattered less? What are the things that really do matter for you now, as you look back and you see what has mattered?

I have found out how important teaching was to me. No doubt you know things become radiant in memory. I think I enjoyed the interaction of my life, and my mind, and my literary interest in that particular moment more than I've ever done in any other circumstance. One of the most important things to me was my first experience writing Housekeeping when I was in isolation more or less. Trying to remember things that had happened two decades earlier, experiences I had had, and finding out in those circumstances that I remembered them, that I knew what kind of flower bloomed, in what place, at what time, that my memory was much more active and alert than I think my conscious attention was. I found out that from that that I had lived a much broader life, a much more intense life than I realised. I would never have known that if I hadn't made the kind of demand on myself that writing that book made, writing any book makes really, but fiction especially, because you're trying to conjure a sense of reality. Even from the point of view of when I talk to my students, I say, don't imagine that you know your mind. It is much larger. There's it's almost another life beside your life. The finding that out was just incredibly important to me, not just because it helps me write, but also to find out something about what I am as a human being.

Linking that to the previous point about the the significance of each individual as a moral actor, it also maybe says something about that each of us lives much richer lives than we think we do.

Absolutely.

Maybe memory brings those things to the surface in a way that that we don't often recognize?

Exactly, and that we don't normally access. I was in a kind of an extreme situation, trying to remember Idaho while I was living in France - kind of an eccentric project. It's finding the place at which the past is evoked in the mind. Very powerful.

I'm noticing the things that otherwise you might not see which is, again back to the point about the ordinary, the ordinary being significant.

Yes.

Are there things that seemed very important to you when you were younger, that now don't seem quite so important?

You know I think of myself as a sort of a slacker. I think I have friends who could affirm my view of things as a slacker. I've always enjoyed just simply being in my own head. To the extent that it's a distraction for me. I know people who have lives like mine, who are much more productive than I am. Where did my time go? Well, daydreaming, thinking, watching, just being in my head. I was told when I was a student when I was in high school. that I should give myself a mind that I wanted to live in because I would live in it for the rest of my life, and I did that, and I have done that. And you know it's been a great pleasure, finally. Maybe I should have done more!

Well, the the daydreaming has been a very beneficial thing for the rest of us who've been able to read some of the product of that daydreaming. So, we're very grateful, Marilynne. Thank you.

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