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Books
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Mental Health
5 min read

Reading together helps us read our own lives better

The rush and tumble nearly squeezes the life out of the clock’s second hand.

Jessica is a researcher, writer, and singer-songwriter. She is studying at Trinity College Dublin, and is an ordinand with the Church of Ireland.

A painting shows two 19th century women in a carriage, one reading as the others snoozes.
The Travelling Companions, Augustus Egg.
Birmingham Museums Trust on Unsplash.

Even ordinary days seem to have frantic edges. A friend of mine, a salesman and father of four teenagers, said the other day that it felt like he was the hamster in the wheel, but so dreadfully exhausted, he’s flopped over, thumping around as the wheel keeps spinning. If we put a finger on the pulse of our current cultural desires, one pulse would be the longing not only for rest — spots of digital fasting or a day hiking — but an overhaul and renewal of what we’ve done with time. Yet it is difficult to know how to slow down, and it often seems that our attempts for self-care and being intentional are not enough to register that desired sense of slowness.  

If we managed this, we would not just be able to slow down, but we would figure out how to bring our experience — the texture, the feel — of our paced lives into something like healing. The rush and tumble of a normal day nearly squeezes the life out of the clock’s second hand, and far too often, most of us reach each evening in some state of exhaustion.  

Speaking from my own story, a shift happened when we moved from Los Angeles (which was, to be fair, a great place for us until it wasn’t) to East Clare in the Midlands of Ireland. It was a shift that my whole being needed—needed at a limbic and somatic level, in the spiritual self, as an artist, for family dynamics, and for my partner, a sense of freedom in work. It wasn’t that we merely got more time in our day: it was that our immersion in time, our soul’s experience of the clock, found an ‘easing up’ that — though the daily round is still arduous enough — afforded a little more time in every direction to breathe, think, walk, write; be.  

It’s been in the wake of this move, nearly eight years ago now, that I’ve pondered why it felt that the hills here gathered me up into their arms and helped me to actually slow down. Is it these hills, the lovely stretches of variant greens and the countless walking paths hidden among them? Is it the congregation of artists — local artists, who refashioned my ideas about artistic success, inculcated as I was into seeing it as only with a large following? Is it the deliberate decisions to keep family overheads as low as we can, freeing up a bit of time from the understandable and ongoing need for wages?  

Among the many reasons for the shift in how I experience time — for the sense, not just of slowing down, but of time affording more space — is the grace of reading with others.  

The pastor, physician, and poet—this trio of us still are surprised by the deep, serendipitous connections that our poems make, week after week. 

In fact, before this shift there was the keenly disappointing realisation of how little time in the land of adulthood could be set aside for reading. In the last few years, though, the regular habit of reading in companionship has grown into one of the most structural elements of my week. With Monday evening comes lectio divina, an ancient Christian practice for reading scripture in an authentically ‘listening’ way. Two lovely pals from town and I meet (often over a WhatsApp call, but sometimes in person) to read together a passage from the Bible, usually what will be read at a service the following Sunday.  

On Monday night, my brother in Texas and I unpack whatever book we’re reading at the moment. We started with Tom Stoppard’s Arcadia, went onto Michael Foley’s School of Life book on Henri Bergson, and after a few more texts, are now reading the stunning poetry collection The Art of the Lathe by the Texan-Kansan poet B.H. Fairchild.  

On Tuesday nights, I gather via Zoom with two other women—a minister in Connecticut and a doctor in Sydney; we met at an online course about Rilke in the winter of 2021, and still meet regularly, each bringing a poem to share and the stories of our lives as we’re living through the week. The pastor, physician, and poet—this trio of us still is surprised by the deep, serendipitous connections that our poems make, week after week.  

I think too what happens in this reading companionship is that the muscles we use to attend to words together are the very muscles needed to read our own lives. 

As these fellow readers and I weave together silence and articulation, listening and exploration, our time together edges eternity. In this, I think I glimpse how God works to redeem the violence we do to time. When we enter into the invitation to holy spaces—like time spent with the Bible, times in prayer, times of friendship—our usage of clock time becomes secondary to the content within that duration, and certainly secondary to the presence of others (be it the writer of the Gospel of John, Emily Dickinson, the Holy Spirit, or a friend down the road). Our experience of time becomes inflected by the psychological richness and the interplay of spiritual growth with another person or persons.  

I think too what happens in this reading companionship is that the muscles we use to attend to words together are the very muscles needed to read our own lives. In this, we can suss out how the longing for slowness is an appropriate one and one to listen to. Using metaphors at hand, reading our lives with the modalities of dialogue, listening, and in-time discovery means that our longing for slowness can help us see that we’re looking for a waypoint, a stop along the road; or a few days at basecamp, patching up and cleaning worn gear; or a longer stretch of wintering in the plains before crossing the mountains; or a period of convalescence in a home by the sea. These images for rest, for pause and restoration, can help us see how to open to God’s care in our living narratives, care that seeks to renew and redeem our often grueling experience of time. 

The special grace that reading companionship yields is not just the hour’s content that is spent in shared conversation, though this is nourishing and transformative in its own right. It is how this hour sets the context for all the other hours. The humble stance of reading with attention and cherishing the voices of others models a kind of immersed slowness for the rest of our personhood. At the end of the day, I think it’s a radical counterpoint to what we often ask of a day, an infusion of divine grace into the pumping vessels of time. 

Review
Books
Care
Comment
Psychology
7 min read

We don’t have an over-diagnosis problem, we have a society problem

Suzanne O’Sullivan's question is timely
A visualised glass head shows a swirl of pink across the face.
Maxim Berg on Unsplash.

Rates of diagnoses for autism and ADHD are at an all-time high, whilst NHS funding remains in a perpetual state of squeeze. In this context, consultant neurologist Suzanne O’Sullivan, in her recent book The Age of Diagnosis, asks a timely question: can getting a diagnosis sometimes do more harm than good? Her concern is that many of these apparent “diagnoses” are not so much wrong as superfluous; in her view, they risk harming a person’s sense of wellbeing by encouraging self-imposed limitations or prompting them to pursue treatments that may not be justified. 

There are elements of O-Sullivan’s argument that I am not qualified to assess. For example, I cannot look at the research into preventative treatments for localised and non-metastatic cancers and tell you what proportion of those treatments is unnecessary. However, even from my lay-person’s perspective, it does seem that if the removal of a tumour brings peace of mind to a patient, however benign that tumour might be, then O’Sullivan may be oversimplifying the situation when she proposes that such surgery is an unnecessary medical intervention.  

But O’Sullivan devotes a large proportion of the book to the topics of autism and ADHD – and on this I am less of a lay person. She is one of many people who are proposing that these are being over diagnosed due to parental pressure and social contagion. Her particular concern is that a diagnosis might become a self-fulfilling prophecy, limiting one’s opportunities in life: “Some will take the diagnosis to mean that they can’t do certain things, so they won’t even try.” Notably, O’Sullivan persists with this argument even though the one autistic person whom she interviewed for the book actually told her the opposite: getting a diagnosis had helped her interviewee, Poppy, to re-frame a number of the difficulties that she was facing in life and realise they were not her fault.  

Poppy’s narrative is one with which we are very familiar at the Centre for Autism and Theology, where our team of neurodiverse researchers have conducted many, many interviews with people of all neurotypes across multiple research projects. Time and time again we hear the same thing: getting a diagnosis is what helps many neurodivergent people make sense of their lives and to ask for the help that they need. As theologian Grant Macaskill said in a recent podcast:  

“A label, potentially, is something that can help you to thrive rather than simply label the fact that you're not thriving in some way.” 

Perhaps it is helpful to remember how these diagnoses come about, because neurodivergence cannot be identified by any objective means such as by a blood test or CT scan. At present the only way to get a diagnosis is to have one’s lifestyle, behaviours and preferences analysed by clinicians during an intrusive and often patronising process of self-disclosure. 

Despite the invidious nature of this diagnostic process, more and more people are willing to subject themselves to it. Philosopher Robert Chapman looks to late-stage capitalism for the explanation. Having a diagnosis means that one can take on what is known as the “sick role” in our societal structures. When one is in the “sick role” in any kind of culture, society, or organisation, one is given social permission to take less personal responsibility for one’s own well-being. For example, if I have the flu at home, then caring family members might bring me hot drinks, chicken soup or whatever else I might need, so that I don’t have to get out of bed. This makes sense when I am sick, but if I expected my family to do things like that for me all the time, then I would be called lazy and demanding! When a person is in the “sick role” to whatever degree (it doesn’t always entail being consigned to one’s bed) then the expectations on that person change accordingly.  

Chapman points out that the dynamics of late-stage capitalism have pushed more and more people into the “sick role” because our lifestyles are bad for our health in ways that are mostly out of our own control. In his 2023 book, Empire of Normality, he observes,  

“In the scientific literature more generally, for instance, modern artificial lighting has been associated with depression and other health conditions; excessive exposure to screen time has been associated with chronic overstimulation, mental health conditions, and cognitive disablement; and noise annoyance has been associated with a twofold increase in depression and anxiety, especially relating to noise pollution from aircraft, traffic, and industrial work.” 

Most of this we cannot escape, and on top of it all we live life at a frenetic pace where workers are expected to function like machines, often subordinating the needs and demands of the body. Thus, more and more people begin to experience disablement, where they simply cannot keep working, and they start to reach for medical diagnoses to explain why they cannot keep pace in an environment that is constantly thwarting their efforts to stay fit and well. From this arises the phenomenon of “shadow diagnoses” – this is where “milder” versions of existing conditions, including autism and ADHD, start to be diagnosed more commonly, because more and more people are feeling that they are unsuited to the cognitive, sensory and emotional demands of daily working life.  

When I read in O’Sullivan’s book that a lot more people are asking for diagnoses, what I hear is that a lot more people are asking for help.

O’Sullivan rightly observes that some real problems arise from this phenomenon of “shadow diagnoses”. It does create a scenario, for example, where autistic people who experience significant disability (e.g., those who have no perception of danger and therefore require 24-hour supervision to keep them safe) are in the same “queue” for support as those from whom being autistic doesn’t preclude living independently. 

But this is not a diagnosis problem so much as a society problem – health and social care resources are never limitless, and a process of prioritisation must always take place. If I cut my hand on a piece of broken glass and need to go to A&E for stiches, I might find myself in the same “queue” as a 7-year-old child who has done exactly the same thing. Like anyone, I would expect the staff to treat the child first, knowing that the same injury is likely to be causing a younger person much more distress. Autistic individuals are just as capable of recognising that others within the autism community may have needs that should take priority over their own.   

What O’Sullivan overlooks is that there are some equally big positives to “shadow diagnoses” – especially as our society runs on such strongly capitalist lines. When a large proportion of the population starts to experience the same disablement, it becomes economically worthwhile for employers or other authorities to address the problem. To put it another way: If we get a rise in “shadow diagnoses” then we also get a rise in “shadow treatments” – accommodations made in the workplace/society that mean everybody can thrive. As Macaskill puts it:  

“Accommodations then are not about accommodating something intrinsically negative; they're about accommodating something intrinsically different so that it doesn't have to be negative.” 

This can be seen already in many primary schools: where once it was the exception (and highly stigmatised) for a child to wear noise cancelling headphones, they are now routinely made available to all students, regardless of neurotype. This means not only that stigma is reduced for the one or two students who may be highly dependent on headphones, but it also means that many more children can benefit from a break from the deleterious effects of constant noise. 

When I read in O’Sullivan’s book that a lot more people are asking for diagnoses, what I hear is that a lot more people are asking for help. I suspect the rise in people identifying as neurodivergent reflects a latent cry of “Stop the world, I want to get off!” This is not to say that those coming forward are not autistic or do not have ADHD (or other neurodivergence) but simply that if our societies were gentler and more cohesive, fewer people with these conditions would need to reach for the “sick role” in order to get by.  

Perhaps counter-intuitively, if we want the number of people asking for the “sick role” to decrease, we actually need to be diagnosing more people! In this way, we push our capitalist society towards adopting “shadow-treatments” – adopting certain accommodations in our schools and workplaces as part of the norm. When this happens, there are benefits not only for neurodivergent people, but for everybody.

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