Article
Assisted dying
Comment
Politics
7 min read

Assisted dying hasn’t resolved Swiss end of life debates

Despite attempts to normalise it, new challenges still arise.

Markus is Professor of Moral Theology and Ethics at the University of Fribourg, Switzerland.

A single bed, wiith an unmade colourful duvet stands in the corner of a room. A hoist reaches over it from the corner.
The dying room, Dignitas Clinic, Zurich.
Dignitas.

While countries such as Germany, France or the UK are currently struggling to find a suitable regulation for assisted suicide, their peers in the Netherlands, Canada and Switzerland have years of experience with the controversial medical practice. Even if each state must explore its own ways of dealing with these ethically controversial issues, it is obvious that international experience should not be ignored as they try to find a way forward.  

In Switzerland the discussions and challenges surrounding assisted suicide are increasing rather than decreasing. Contrary to the idea that a liberalisation of assisted suicide would lead to fewer debate, tensions and difficulties are increasing.  My observation, and thesis, indicates that practices such as assisted suicide cannot be “normalised”, even in the medium and long term. 

Developments 

In recent years, one to two per cent of all deaths in Switzerland were due to assisted suicide.  From an overall perspective, this practice is therefore still a marginal phenomenon. However, a look at the total number of assisted suicides per year gives a different impression, as this has increased more than fivefold in the years between 2008 and 2020, from an initial 253 to 1,251 deaths per year, a rising trend. The cause of death statistics for Switzerland only include those cases of assisted suicide in which persons resident in Switzerland were involved and the death was reported to the authorities. According to the Swiss Federal Statistical Office, in 2020, it was mainly people over the age of 64 who made use of assisted suicide. Detailed information on the underlying illnesses of the people affected in 2018 shows that about 40 per cent were affected by cancer, just under 12 per cent by diseases of the nervous system, a further 12 per cent by cardiovascular diseases and just over a third by other illnesses, including dementia and depression. There are currently seven right-to-die organisations in Switzerland which play a leading role in a typical assisted suicide procedure. They work closely with doctors who are prepared to prescribe a lethal drug, generally Pentobarbital. The data reflects an ambivalent picture: on the one hand, the proportion of assisted suicide cases is relatively low in relation to all deaths and, for example, in comparison to the large number of people who die in Switzerland in a state of deep sedation until death; on the other hand, the number of assisted suicides in Switzerland has risen sharply in recent years.  

Perceptions and assessments 

Since the 1990s, the public perception and assessment of assisted suicide in Swiss society has changed from an initially cautious and sceptical attitude towards broad acceptance. While the debates in other countries are characterised by relatively sharp controversies between those in favour and those against, public discourse in Switzerland has been less polarised. There are indications of a certain normalisation of the situation, the strongest sign is that Switzerland has so far refrained from regulating assisted suicide in a separate law. The results of a recently-published study on the opinions of Swiss people over the age of 55 regarding assisted suicide confirm these impressions.: The survey showed that over four-fifths of respondents support legal assisted suicide, almost two-thirds can imagine asking for assisted suicide themselves at some point, and that almost one-third are considering becoming members of an right-to-die organisation in the near future, with one-twentieth of respondents already being members at the time of the survey in 2015. Among people with a higher level of education and older people aged between 65 and 74, approval of assisted suicide and corresponding practices was higher than among less educated, younger and very old people; approval was also significantly lower among religious practitioners. 

Sensitive topics  

The fact that assisted suicide enjoys broad support in Swiss society as a whole does not mean that there are not difficult and controversial aspects relating to its practice. Relevant topics include, in particular, places of death, authorisation criteria and procedures. 

Places of death: Assisted suicide is permitted also for mentally ill persons in psychiatric clinics, but the federal court recommends great caution here and requires two psychiatric expert opinions to ensure that the person willing to die is capable of judgement with regard to the desire to commit suicide. Although assisted suicide for children and adolescents has hardly been an issue in Switzerland to date, the corresponding debates are currently being held in Canada and elsewhere. The question of whether people in prison also have a right to make use of assisted suicide, has been the subject of intense debate in Switzerland for years, with a generally positive response. The question of whether right-to-die organisations should be given access to acute hospitals and nursing homes is still the subject of controversial debate, with regulations varying from hospital to hospital, nursing home to nursing home 

Authorisation criteria: With regard to the admission criteria for persons willing to die, the capacity for judgement is at the centre of attention: while the importance of the criterion is undisputed in itself, there is a struggle for reliable standards and procedures to reliably test this criterion. Since the publication of the SAMS ethical guidelines Management of Dying and Death in 2018, the criterion for end of life and, depending on this, that of unbearable suffering have received new attention due to an objection by the Swiss Medical AssociationFMH. While the guidelines are based on the criterion of unbearable suffering, the FMH wants to stick to the near end of life. It is certainly difficult to diagnose the existence of unbearable suffering, as the international debate on the significance and assessment of existential (neither physical nor psychological) suffering shows. This difficulty is illustrated by the debate that has been going on for several years in Switzerland about so-called old-age suicide and the inherent criterion of tiredness of life. At the centre of the dispute is the legally difficult question of whether a doctor is also allowed to prescribe a lethal drug to a healthy person. 

Procedures: Here the role of the medical profession and right to die organisations is by far the most important issue. In contrast to the physician-centred models in Belgium, Canada and the Netherlands, the Swiss model of assisted suicide is based on the idea that every person has the right to end their life and may call on the help of any other person to do so. Although the medical profession is usually involved in the process, the management of the procedure is normally the responsibility of a right-to-die organisation. This division of responsibilities is always up for debate when legal regulations are being considered, in which doctors should tend to take the lead in the process due to their professional background. There is also a debate about how and by whom compliance with the authorisation criteria should or could be monitored, whereby it remains to be decided whether this should be carried out before or after the death. At present, a certain amount of monitoring takes place following a suicide, insofar as the authorities investigate the cases afterwards. There is also debate as to whether Pentobarbital is a suitable means of suicide, especially if this barbiturate is not administered intravenously but taken orally; there is no knowledge of how many cases are currently administered intravenously and by whom an infusion is then set up. Last but not least, consideration has already been given to the use of lethal drugs, such as helium gas, which can be obtained over the counter. 

Attempts at regulation 

Political efforts to regulate assisted suicide in Switzerland in a more nuanced way than today have been made since the 1990s but have remain largely without consequences to date. In relevant judgements by the Federal Supreme Court or in statements by the Federal Department of Justice and Police, reference is regularly made to the ethical guidelines of the SAMS. These are classified as soft law and are therefore not legally binding, even though their content has become the subject of dispute. The National Advisory Commission on Biomedical Ethics (NCE) had already recommended more far-reaching legal regulation in 2005 as part of a detailed opinion on the subject; in the opinion of the NCE at the time, the review of authorisation criteria, a justifiable regulation of assisted suicide for the mentally ill, children and adolescents and state supervision of right-to-die organisations, should be ensured by law. The question is what form a legal regulation can take that grants the medical profession far-reaching powers but at the same time prevents medical paternalism (in favour of or against assisted suicide). From the perspective of Swiss experience, this is “a square circle”: either the doctors retain the final decision on who receives the barbiturate, or official access rules are established, the review of which does not generally require medical expertise. 

The outlook

In the short and medium term, it can be assumed that the number of assisted suicides in Switzerland will continue to rise. The coronavirus pandemic and the particular difficulties faced by nursing homes during this time are likely to exacerbate this increase. In view of these expectations and the legislative processes in other European countries, pressure is likely to increase in Switzerland to create a legal regulation. Overall, I think politically it will be important to create a legal regulation, in order to ensure legal equality and legal certainty on the one hand and prevention of abuse and expansion on the other. At the centre of social-ethical reflection is the challenge of learning to deal with the pluralism of different ideas of a good death and to develop and establish alternative models to medically assisted dying. The thesis I mentioned at the beginning is confirmed today: assisted suicide in Switzerland can hardly be normalised; new problems, challenges and demands are constantly arising. Suicide, whether with or without the help of another person, always means an existential transgression that defies normalisation. 

Article
Creed
Politics
Suffering
Trauma
6 min read

Dear Kemi, about that lost faith

Who stands with us when we suffer?

Graham is the Director of the Centre for Cultural Witness and a former Bishop of Kensington.

Kemi Badenoch sits and talks.
Kemi Badenoch.
ARC.

Dear Kemi (if I may)

Lost faith is usually a sad tale. And you have told us how you lost yours. I hear your grandfather was a Methodist minister, and so as a young girl, you would pray, seeing answers from time to time for longer hair, good grades and the like. But when you heard the story of Elizabeth Fritzl, whose father Josef kept her captive underground for 24 years, repeatedly raping her, you began to ask why God did not answer Elizabeth’s prayers for release. And so you gave up on God.

Now I have real sympathy for you. I have struggled with this too. The Josef Fritzl story and the suffering he inflicted on his daughter is truly horrific. None of us find the problem of evil easy. In fact, I have never yet met a Christian who thinks they have solved it. Yet the remarkable fact is that many of us believe in God anyway. And it’s not because we haven’t thought deeply about it. Many people start with a simple faith in a God who answers prayers, and yet one day, they come across what seems like an anomaly – that some prayers don’t seem to find an answer.

Of course, you’re not the first to have stumbled upon the problem of unanswered prayer. For centuries, Christians have pondered deeply the strange persistence of evil in the world, from St Irenaeus to St Augustine, to Thomas Aquinas, to any number of modern theologians.

They all knew that not all prayers get answered – yet even more, they knew that this is not a marginal thing for Christians, it actually lies at the very heart of our faith.

On the top of every spire, on every altar of a church, around many Christian necks, is a cross. It recalls the excruciating death of an executed innocent man. It is the universally recognised symbol of Christianity, as recognisable as the Islamic crescent or the Jewish Star of David.

Christianity centres on this remarkable claim: that God allowed his Son Jesus to die a cruel and tortured death, and did not respond to his agonised prayer: “My God, my God why have you forsaken me?” All he got was silence. Nothing.

So unanswered prayer is not something that lurks at the margins of Christian faith as a guilty secret. It lies at the very heart of it.

And yet I still believe. Why?

Why does God not intervene to stop the suffering of the world? Why did not God not stop the holocaust? Why does he not stop the suffering of the people of Gaza? Or the Israeli hostages? Or people who suffer from debilitating depression? Or long-term mental illness?

The answer is I don’t know. And why should I? For all I know, God might stop all kinds of things from happening – by definition I don’t know about thing that don’t come to pass. Yet I have to assume that God does not intervene to stop the vast majority of the suffering we inflict on each other. The best I can say is that he seems to allow us to have our own way, giving us the courtesy of accountability for our own actions. As a conservative politician, keen to stress personal responsibility, you should know that more than anyone.  

Josef Fritzl was the cause of his daughter’s suffering, not God. Fritzl was himself the child of an alcoholic father who abandoned him when he was four-year-old and a manipulative and abusive mother who brought him up thereafter. Not that this excuses his crimes for a moment, but he was part of a chain of sin and suffering handed on from one generation to another that stretched back through his parents, their parents, back to the very beginning of human history and beyond. Evil and suffering are part of our world. Christianity knows about evil all too well.

All this might hint at an answer, yet it still doesn’t satisfy. It still doesn’t reduce the suffering. Trying to explain it doesn’t make it any easier to endure it. In fact, if what we Christians say about evil is true, we cannot explain it because evil literally makes no sense. It is the absence of sense, the absence of meaning. It has no point, because it is literally pointless.

The real reason we Christians continue to believe is not that we have a neat answer to it, nor because we haven’t thought about it, but because we know that, paradoxical as it may sound, God himself, in the person of Jesus Christ, knows what it is to pray for something and not get an answer. He has been there too. Somehow, mysteriously, he stands with Elizabeth Fritzl, with Israeli hostages, with Palestinians hungry for peace and food, and with us when we cry out and apparently get no answer. In those moments, we are not, in the end, alone.

And yet, there is more. Despite that fact that we cannot explain the tangled, dark mysteries of evil in the human heart, we have been captivated by a story that tells us it has been overcome. Yes, Jesus died. Yes, he felt abandoned by God his Father. Yet the way the story turned out, the evil done to him was not the last word. God overturned the worst that the human race could do, when the most remarkable thing happened - his cold, abused, bloodied and battered body stirred once more into life. Yet this was not a return to this weary life all over again, back into the maelstrom of suffering and pain that we know it to be, but through the other side into a form of life beyond the grave that cannot be destroyed. Jesus was not ultimately abandoned, even if he, like us, like Elizabeth Fritzl, felt like it at the time.

This is what we get – not a neat answer – for that we will have to wait – but the gift of hope that it will not always be like this, that the Resurrection of Jesus is a foretaste of the Resurrection of all things one day.

And what about what you called your ‘stupid’ little prayers about hair and boyfriends? Why did they get answered and others didn’t? Again, I have no idea. It does seem that from time to time, God does something weird, brings some unexpected healing, things turning out miraculously better than expected, an unforeseen delight. Yet these are just hints, small signs of the great miracle, the Resurrection and the defeat of death. They are hints that even though God will not unravel the moral fabric of the world by intervening every time we do something wrong, occasionally we are given a small sign that he has not given up on the world and will one day flood it with his presence. They are signs to remind you, me, that all the good things we receive each day - food, sunshine, rain, air to breathe – are not accidents but come from a God who gave them to us out of love, and that evil is the anomaly, not goodness. We are left with a question – would we rather a world where that kind of surprising & delightful event never happened? Or one where it occasionally did?

The Resurrection is the ultimate reason we believe. Not because we can explain evil. But because it tells us we are not alone in our suffering. Because it tells us that evil is real, but in the end, will be banished to the pit from which it came. And because the alternative, when we think about that deeply enough – a world where monsters like Josef Fritzl get the last word – where hope is whistling in the dark and evil wins - is intolerable.

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