Interview
Creed
Freedom of Belief
Middle East
S&U interviews
13 min read

Iran’s police forced me to leave my country

Interrogated and jailed for changing his faith, Medhi tells his story.

Belle is the staff writer at Seen & Unseen and co-host of its Re-enchanting podcast.

On a sun-lit railway platform, two men talk casting shadows on a waiting red and white train. Another shadow beside them is that of a man silouheted in the foreground
The train station, Zanjan, Iran.
Bahram Bayat on Unsplash.

'Mehdi' is Iranian and a converted Christian; now living in the United Kingdom, he tells Belle Tindall his story.  His name has been changed to protect his identity.  

Can we start with your own story? How did you become a Christian and how did that shape your life in Iran?  
 
Oh, yeah, absolutely. So I was eighteen when I came to Christ. And it was through my older brother who is six years older than me. He was dealing with lots of problems like depression, mental health and drugs and stuff for a few years. He was struggling with violence a lot outside the house, and then inside the house too. He would become really violent and start lots of fights, especially with me. And I was very young at that time, I was around 12 years old.  

I was hurt, and scared, and angry and bitter towards him. But when I was nearly 18, he had this experience with Jesus through one of his friends who had converted from Islam to Christianity. And he just had this experience of, like, new birth in Holy Spirit and he completely changed. He became really calm and kind. And it was very vivid - the changes in him.  

And I was struggling too, so I became really curious. One day, he was watching some videos about Christianity, one of them was of two pastors chatting through the gospel, and I asked him if I could watch it with him. Which was very unlike me, I wasn’t religious at all. I mean, I was Muslim, and I used to practise a little when I was younger, but I wasn’t serious about it because it never worked for me.  

So, I watched a video I heard message of the Gospel, and I could feel it – the love, the kind of security that Jesus was offering me, and the salvation. And so I prayed at the end of that video and my life completely changed.   

Literally, the day I prayed, I just felt completely different. It was just a supernatural peace. And I fell in love with the Bible instantly, I began reading the Bible constantly, and my curiosity was so evident that my brother took notice. Because I didn't actually tell my brother that I had prayed a prayer as a result of the video. And so I said to him, ‘I don’t know what’s happening to me’. He smiled and just hugged me, and said – ‘you’re a Christian now’  

And on that day I realised that I had become a Christian.  

So yeah, God completely transformed our relationship, and instead of fighting, we started praying together and trying to explore what it all meant. But it was very difficult because Christianity is banned Iran. We went to one of the church buildings, which was built before the Islamic revolution; we walked up and knocked on the door, and said ‘we’re Christians now, can we come in? Can we visit the church? Can we have a look inside?’ And he said ‘no, I'm sorry, you're not allowed in’. There were cameras at the door, we were Muslim converts, and we were being watched.  

So, that day we just became really discouraged because we suddenly realised, ‘oh, it's not going to be easy to be a Christian’.  

By some miracle, we got in contact with some other underground Christians, and we started to see each other. We would meet in our houses and read the bible together and share storied, sing some worship songs. We found some ways of accessing Christian resources, like worship songs, hymns books, things like that.  

By this time, I was twenty years old.  

And after a year or so of life looking like that, with these regular meetings, I was getting ready for work one morning and there was a knock at my door. I opened it and there were ten or so officers standing in front of the house. So, they raided and searched our house, they didn’t say why, they gave us no information – so I guessed it was because of my faith, but I didn’t know. It’s just that I had heard stories of this happening.  
And because we would hear about the stories around us happening to. 

But, we didn’t think that what we were doing was serious enough to get their attention. There were only 10-15 of us, we were just gathering together casually. We weren't really organised. And also we weren’t in any way in touch with foreign (Christian) organisations, which they are really sensitive about it. 

Because they see that as a political activity, you see. They believe that Christianity is a weapon of Western countries, with a long-term plan to convert Islamic countries like Iran so that they can alter the culture and take the power. Because, in Iran, there’s a very high value placed on religion.   

But anyway…  

The officers came in and collected up everything they could find that was related to Christianity in some way. Then they put handcuffs on me, my brother, my sister and my dad (they had also become Christians by this point) and they blindfolded us and put us in separate cars.  

We had no idea where we were being taken, but we arrived at the Intelligence Services Detention Centre, where they interrogated us. They questioned us about our activities, our gatherings, who we knew.  

They released my family that day, but they kept me in because I was the most active Christian and because I was being stubborn. I wasn’t giving them the information that they were after, I wasn't responding to their questions or commenting on my faith, because I felt like Jesus was our friend, you know? 

Life was becoming very unbearable, Jesus was our only solution 

And it’s the same for many Iranians. There were people around us who are who were, and still are, dealing with lots of difficulties because of the economic situation, because of the oppression and corruption of the government, as well as the terrible economic situation. It feels like there’s no hope, no solution. The only solution can be found in the hidden places, it’s Jesus. For us, he became the hope of a new life.  

And so, I saw Jesus like that and it gave me the strength to go forward into whatever was coming next. So, I didn’t give them any answers and they put me in solitary confinement. I was in there for twenty-two days. And I was only 20 years old. And as an ordinary person… you know, that context is very important! I never had any problem with the police, or crime, or the law, or with people around me. And all of a sudden, I’m in this intense place. I’m in high security, with blindfolds and handcuffs. This wasn't something that I was used to, it wasn't even something I could have imagined.  

It was very, very, tough.  

I was in a tiny room, it was two-metre by six-metres, and there was a matt on the floor with two sheets, a toilet in the corner and that was it.  

It was incredibly difficult. Every moment, you’re expecting something really bad to happen to you. You don't have from your family or your friends, and you just think of all the worst possibilities that could happen at any moment.  

Are they about to torture me? Where are my family? What’s happening to my friends right now?  

For twenty-two days, not knowing how long I was going to be held here, I was bombarded with all these negative thoughts.  

I felt like I was being mentally and emotionally crumpled like a piece of paper, you know, trapped in this small room. But I had very powerful moments with God in that dark environment. He helped me to go beyond the circumstances that I was in, through the power of the Holy Spirit, who not chain could ever bind.  

After twenty-two days, they released me and two others on bail, and they took us to court, our trial lasted a year. They finally gave us an eight-month suspended sentence and warned us that if we were caught continuing our Christian activities within a five-year period, we’ll be brought back in and our sentence will be severe.  

So, we were in real danger.  

But it was almost impossible to not to continue with our Christian activities because Jesus was our whole life. Plus, we were a family, we couldn't leave each other. And so we started to see each other, but in public places.  

Little by little, the group, our small group grew to around two-hundred people.  

So, we scattered. We met in small groups around the city. We couldn’t be too organised, because we had to confuse the government. It was a huge challenge, to keep changing place and time. We couldn’t use our phones because they were constantly being tapped, we couldn't even take them with us because they were being tracked. We became paranoid about every person we’d meet, wondering if they were undercover officers or spies.  

Four years after my first arrest, I was arrested again. 

This time we were waiting for it. We were playing with our lives. We just couldn’t help it. We were ordinary people who were ready to leave everything; our families and friends, we were ready to pay the price. Because Jesus had truly changed our lives.  

So, they officers came again, they raided my house again, and this time it was far more aggressive. They took seven of us this time and the same thing happened – blindfolds, handcuffs, interrogations, solitary confinement – but this time I was in there for over a month. And it was way more intense; there were lots of horrible threats, mind games and mental torture. 

And then they sent us to the central prison, without a trial or a hearing – which is illegal. We didn’t know our charges or our sentence- nothing.   

And that prison had 8,000 prisoners and a very bad reputation. You know, it was overcrowded with no capacity, and so it was very violent and had very poor conditions. We were all terrified to go there. They kept us there, in that prison, for three years. But still, God was a light in that dark place. Some fellow prisoners even came to Christ. 

Can you tell me when and why you left Iran? 

Eight months after I was released, I was advised to leave Iran. They told me that if I stayed, my life was going to be very hard. They wanted me out of the country.  
That I decided to leave. 

So, I left Iran, and I went to Turkey, the neighbouring country, to seek asylum. I was there for three years.  

This was another difficult chapter for me; the new culture, new language, new country. Plus, the immigration police, unfortunately, they were corrupt just like the Iranian police. And the way they interrogated me had me re-living so much trauma. I wasn't allowed to leave my city as an asylum seeker, you have to go and have your fingerprints taken every two weeks – and I was just a prisoner again.  

I met my English wife there though. That’s the beautiful part of this story – we met at church, served together, fell in love, got married and eventually moved to the UK.  

So, what is it like being an Iranian Christian in the UK?  

There have been plenty of culture shocks. In Iran, my ‘church’, we didn’t have a building, we didn’t have any resources. It was a glimpse of the New Testament, really, with everything that we went through. We lived like the disciples – encountering Jesus personally, being ready to follow him, even if it had to be in secret. So, obviously, church in the UK has been quite a shock.  

There are different reasons why people go to church here in the UK: because their family go, because it’s the right thing to do, because they want to be a better person, because they’re lonely. Although these reasons exist in Iran too, if you want to go to an underground church as a Christian, you really have to want it. Because you take a huge risk.  

I think it’s been a privilege for me to experience a house church in Iran, to understand the value of the salvation that Jesus has given me. You know, at one point, when I was in solitary confinement – I had no family, no friends, no freedom – Jesus was literally all that I had. Jesus was everything. All my focus was on him, he was the only hope, he had all my attention.  

Besides the struggles I had, I could still rejoice. I was praising him because they could take everything away from me, but they couldn’t take him away. In other words, the sweetness of salvation overcame the bitterness of imprisonment. 

So, things are different, here. I have mixed feelings, really.  

So, with everything that you have experienced, and knowing first-hand how dangerous it is to be a Christian in a country that regards it as a threat - can I ask you your thoughts the narrative that’s floating around, that people are pretending to be Christians to get refugee status here in the UK. What are your thoughts on such accusations?  

First of all, I think the nature of the conversation is wrong. It spreads hatred and judgment, and creates an environment of suspicion that breaks trust between people. It's exactly like Mother Theresa said: 'when you judge people, you have no time to love them'.

Also, I think that the government are saying this to distract us from the things that are actually happening.  

The violation of human rights, the right to both free speech and freedom of belief, in Iran is real, it’s true, it’s happening. The persecution that Christians are facing in Iran is absolutely real.  

And, does that mean that some of them are leaving the country? Yes. I had to. I’m here. I had to leave my home. And there aren’t enough legal routes, there aren’t enough ways to seek asylum in countries like the UK. So, occasionally they have to smuggle in.  

So, it’s true that Christians are leaving Iran. I’m one of them. And I was incredibly lucky, I got here safely and securely.  Although, not as a refugee.

But if I had to come to this country by boat and sought asylum, would that be different? Would my story be false? Because even Turkey wasn't safe; Turkey is currently deporting Christians back to Iran, they’re arresting them, they’re closing down churches. In the last three years, they’ve kicked out most of the Christian missionaries. So, it could have happened, I might have had to smuggle myself here, with twenty other people, on a small boat.  

And I come here, and I tell my story, and you tell me it’s not real?  

If you come to the table with this mindset, if you’ve already made your decision about my life, if you’ve judged me already, and if you don't see me as a genuine Christian – you betray my humanity. You’ve betrayed the value of human rights.  

No one wants to leave their country in the first place. So, one of the first accusations are, ‘oh, they're leaving because of the economic situation’. No, it's not true. The majority of people who are staying in Iran right now, they are dealing with horrible economic situations, but don't leave their country. We leave when we’re in danger.  

How the government go to the table matters. Their compassion is at zero at the moment.  

The government violates human rights in Iran. We know this. And yet, so few people leave. The numbers are so small, you can’t rightly say ‘oh, if we accept this person, the whole of Iran will try to enter the country’, it’s just not true. It’s just playing with words.  

The picture they are painting of the situation is not accurate. So, first they need to fix that, and then talk about the desperate and oppressed person who has genuinely been through something awful, who has had to leave their country, who has put their life at risk. 

We can’t just forget about compassion and generosity. 

And so, when we say ‘these Iranians are all faking Christianity to gain asylum’ – that’s not the true issue. 

The question is: how has a government that claims to support Human Rights responded responsibly and appropriately to the discrimination and violation being faced by Christians?  What are the solutions? How can their lives can be protected and saved when there is no legal route for them to seek asylum in a safe country like the UK? 

Interview
Creed
Mental Health
Trauma
17 min read

When the answers run out: Kate Bowler on faith, fragility, and the beauty of uncertainty

Kate Bowler in conversation with Graham Tomlin.

Nick is the senior editor of Seen & Unseen.

A woman sits and smiles in front of her bookcase.

This interview is an edited transcript of the Seen & Unseen Live event.

Graham 

Kate Bowler is a four-time New York Times bestselling author. She's an award-winning podcast host and also an associate professor of American religious history at Duke University. She's the author of a number of books, including Blessed, a history of the American Prosperity Gospel. And they're wonderfully titled - The Preacher's Wife; The Precarious Power of Evangelical Women Celebrities.  

And you may know something of Kate's story, she was unexpectedly diagnosed with stage 4 cancer at the age of 35. And then out of that, wrote the New York Times, bestselling memoir. Everything Happens for a Reason and Other Lies That I've Loved, and her latest book, Have A Beautiful, Terrible Day. Daily Meditations for the Ups, Downs, And in Betweens. Kate hosts, the award-winning podcast Everything Happens.  

We were just talking about students and teaching. What do you teach your students? You say American religious history? Is there a kind of theme? And how do you go about teaching your students? How does that work in your setting? 

Kate 
Sometimes they make me do the Puritans to Trump sort of lectures which I enjoy, but I think the heart of what I love is to talk about American religious myth making. What stories animate their accounts of how to live a good life. Most American stories end up being iterations of that and some pretty classic themes of righteous individualism, of wanting only good things because God is good, a sense that all things can be conquerable. So, it's got this intense agency to it.   

I end up doing a history of American theodicies, explanations of evil. It mostly ends up being storytelling about whether people believe that they deserve the lives they got. It's a privilege to do it, especially at a divinity school. These are going to be people who are in the forefront of helping people interpret and explain their pain. 

And I guess that's something about America, isn't it? Because America was born out of this hopeful sense of people leaving the terrible strictures of Europe, and going off to this free new land, and so on. So, I suppose it had sort of hopefulness and positivity built right into the beginning, didn't it?  

It does. I also really just enjoy civic virtues, in general Canadian civic virtues. The Americans ones are, of course, the pursuit of happiness. Canadians have peace, order, and good governance as their primary civic virtues, which always makes me laugh. It's just so polite and so reasonable. But Americans are hoping fundamentally that they can become. The kinds of people that can conquer a fickle market, who can overcome any sort of structural evil, can be winners in a culture that doesn't ever really try to explain away inequality. It attempts to create the kind of people who can navigate it. 

And you started out by studying the prosperity gospel, didn't you? And particularly within the United States. Is that right? The kind of idea that God wanted good things for you. You've been talking about that already, and when you did that study, what did you expect to find? And what did you find when you did that research? 

Well, the very first time I bumped into the prosperity gospel I was in my hometown of Winnipeg, Manitoba, which is right in the middle of Canada, and we have only one fast road, and they had put up a traffic light. So, I was in a terrible mood. Then I saw all these people pouring out from what I thought was a factory that was running on Sunday morning, and then I thought, oh, no, I believe these are churchgoers. Oh, no, that factory is a church, and it turns out that was Canada's largest megachurch that was run by a man named Leon Fontaine, who had just been given a motorcycle by his congregants, and then rode it around on stage, and I thought, no, that is for Americans. I was so insistent on the idea that a story of health, wealth, and happiness was exclusive to an American cultural narrative.  

I think I was 18, maybe 20 when I first bumped into it, and then I spent my entire twenties wasting my youth interviewing televangelists in Canada and the United States, trying to understand why it was so deeply American, and also why it was so infinitely exportable and ultimately discovered that there was something very deeply humbling about studying a movement of infinite spiritual expectation. It taught me that we all want to be able to comb through our own biography, to know whether we have any evidence of God's love, special appreciation connection to us, but also that even when we think that we don't have a prosperity gospel in our own lives. We probably do. 

You're talking there about the the kind of desire can control outcomes a little bit.  It struck me that I think the very first reflection you got in your book, which is called Have A Beautiful, Terrible Day, which is whenever everything is out of control, is that the sort of big theme that you  found with it - the desire to control? And I guess that's something you've experienced in your own life, that sense of not being able to control things? 
And  one of the books I've been reading recently is this one by Hartmut Rosa, called the The Uncontrollability of the World talks about how a world in which everything has been planned and controlled would be a dead world. It's the uncontrollable things that kind of make life kind of interesting, when snow falls and you can't control it, or a sports game that you can't predict the outcome of. Do you think there's something in that? That we try to resist? 

I am committed to resisting. I mean, if I could arrange some sort of consumer feedback to our Lord and Saviour, I would suggest that I would be given more control over my circumstances. I guess it's been a question that is really at the heart of so much of my both academic and spiritual interest is, what do we do now, when we feel ourselves confronted by all the things we can't control. Typically, the things that we can't control can do two awful things. One, they seem to preach the story of a God who is cruel and and just doesn't care. That can't possibly care enough to want to confront the evil that overwhelms. Because suffering isn't just like cosmetic change. It's just an avalanche that that sweeps everything away. And then in the face of that we don't know how to say what my friend Tom Long, who is a wonderful preaching professor at Princeton, says. He likes to say there's always two preachers at a funeral. There's the body. But what can tell a story that is bigger than death? So, I think that's the first thing - that suffering, of all the things that are uncertain seems to tell us something about God that isn't true. 

I think the other thing, and maybe this is just especially the marketing for women. But when I began to be an unlucky person, I began to feel the sting of a very distinct kind of shame. I felt that it was not just circumstances, that there was something about me, something about my failure, something about my unlovedness. One of the first thoughts I had when I got my diagnosis was, well, of course it's me.  

And that is an awful lie that buries itself somewhere in our hearts. But I think uncertainty can have this effect - we end up holding the blade on the wrong side, and it just it always feels like uncertainty. We sort of plunge it right into our chest. So, I think I think uncertainty in general, it's every wave and we have to learn to navigate, but mostly it feels like an affront on our essential goodness. 

 

And how did you learn to manage that uncontrollability?  There's a tendency in many of us to try to control everything, and we want to have everything sorted and ordered. And then you kind of get to the point where you realize can't do that. Then the temptation is to be just overwhelmed by it, and to feel there's nothing I can do at all. How do you navigate that sense of being out of control?  

One of the American cultural diseases, she can say lovingly, is, they are high on what I like to consider is ‘everything is possibleism’. And so then, in the face of uncertainty, or confusion, or despair, or undoing, then the great fear is that you swing right into ‘nothing is possibleism’ and a kind of despair and nihilism. And I'm very interested in every, especially religious tradition that that helps us cultivate an experience of limited agency like, how do you find that space, spiritually, emotionally, communally, of what is possible today? And I've really, I've really struggled with this over the various intellectual and sort of seasons of illness in my life. In Have a Beautiful, Terrible Day I wrote these little snack size reflections, because I was in a period of so much chronic pain that I really just didn't even have brain space for more than an hour and a half a day. So that became an exercise in trying to still allow myself the joy of creation. Because isn't it so wonderful when your brain goes somewhere, and pain is so boring. And I mean talking about pain is so boring, telling it to your friend for the 200th time, like we are all over it. 

 So, I just was trying to practice the experience of limited agency, even if for the other six hours I would have to lie in the bath and take pain meds. But I've realized over and over again that trying to find that soft space is a place where I can re-experience, humanity, love, and really just the weird, wild gifts that God gives us. Even when life falls apart. 

If anyone's watching this and hasn't found a book yet, I really do recommend it. It's a wonderful thing. It's got lots of different kind of poems and meditations and prayers, and it's got titles for when things are falling apart, when you screwed up, when you're in pain, when life feels incomplete, things like that. 

I'm a huge bummer, Graham. Thank you. I think it's so funny. I think it's because we grew up Mennonite, and we love our version of like Saily Bread, and like the tiny little booklets, and all of them were very sweet and very precious moments. And then in my version, it's like, when you're worried you want to eat your own arm, you hate your life so much. So, I do kind of prefer them for the rawer times. 

Coming on to how Christian faith helps you navigate those, one thing that struck me as I was reading through it is there's a difference between, one of the common approaches to suffering you get in the modern world, which is the stoic idea that you  just sort of grit your teeth, you can't control what's going to happen to you, but you can control your own emotions.  

That's such crap, isn't it?  

It’s pretty common, isn't it? You get that sort of sense of stoicism, these days there are stoic podcasts and books. What do you see is the difference between that and what Christian faith says to on how you navigate these really difficult periods of life? 

I want to say specifically that what I truly believe is crap is the phrase, the argument, ‘you might not be able to control but you can control how you respond.’ I mean, anyone who's been unexpectedly stabbed with a needle knows that that is fundamentally not true. And the reason why I am so sensitive to it is, you know, as somebody who’s had a public cancer diagnosis, I see how quickly the cultural narrative is so intense, I've seen every single person who suffers is lined up to give that response, because what everybody wants to know is, well, just tell me that there's an escape hatch on the other side of it. 

Modern stoicism is - and when I say modern it did not have a Renaissance until the 2010s, which is wild - in part a result of an incomplete theology of masculinity that has been available, and it has become a way to explain specifically to men that there's an almost natural impassivity that is theirs should they claim it, And that in the face of chaos, global and personal, that there's a higher path. Stoicism is always, of course, stripped of its original cosmology, refitted with self-help techniques. But what I really object to, which is at the core, is a story about control.  

Emotional management is, of course, a therapeutic good. But, man, we're 50 years into the therapeutic paradigm. It makes me want to add the word dude at the end of that sentence. We are 50 years into the therapeutic paradigm, and we have not yet found a way to control our emotions, and that is because, as spiritual creatures we are always, we have this ache, we have this soul-cry that Augustine named so beautifully. We have a spiritual restlessness that no kind of emotional management strategy can overcome, and because it it is meant to be satisfied fundamentally by our love, our love of God, our love of others, and frankly, an unsolvability that tells us that we are an incomplete story. If we could be a complete story, I don't know if we really should be religious at all. Frankly, I really would. I would probably do other things with my time. 

It does seem to be something about desire at the heart of this. The Stoic response is to just slightly repress your desires, keep your desires under control. It is offering a sort of sense of control. Or Christian faith is actually about redirecting your desires to something that is bigger than yourself and more powerful and beautiful than you are. And so whereas sort of stoicism seems to say, just control your desires, Christianity in some ways almost says let your desire for God grow as you go through this.  

But I was wondering a little bit about prayer, and how prayer works for you in times of real struggle? I often seems to me that when you go through really difficult times, the time when you kind of feel you need to pray, is often the time it's hardest to do so. Do you find that? What role prayer plays for you in moments of uncontrollability, of the sufferings and struggles of life. What role does prayer play for you in that

This stoicism to prayer thoroughfare is a perfect continuity of the argument. Stoicism, and I mean just living inside of the precarity of this world, reminds us again and again that life requires so much more courage than we thought. Maybe we were convinced along the way that prayer also doesn't require courage just to get to that place of spiritual honesty again, I mean especially if you feel like your prayer was supposed to follow a different template. Whether it was always supposed to very quickly move from brief needs, long descriptions, great thankfulness. That's the classic three-parter, but most often are our honesty requires us to be incomplete before God. I mean utterly, or angry or unknowing. Maybe this gets back to your certainty comments at the start about like, how do we manage such enormous uncertainty? Do we imagine prayer as a strategy for certainty? And if we're hoping it's that, we might be we might be unsatisfied. I just know that when I pray honestly that when I'm in a really terrible season, my prayers sound more like it's 2am. And I'm the sort of self who is buying things on Amazon and wishes I could call people and say things and cannot be trusted. Those prayers sound something like, help me! Help me! Save me, make them come back. Make this stop! Those are necessary, deep, guttural cries. 

My 2pm prayers, I've got Trinitarian round-outs. I've got sophisticated nuanced theology. I'm quoting here and there.  

Both are reflections of how much we're not even entirely known to ourselves, except that we find ourselves unfolded by our circumstances. 

Pressing into how you deal with enduring pain. You talk very movingly about what it's like to go through really quite searing pain that just doesn't go away. And you have to kind of deal with it. Here in the UK we've been having a debate over the last few months about assisted dying. Which is a route out of pain for some people towards the end of life. Did you ever experience the temptation to that? Or has your experience helped you reflect upon that kind of route that our society is offering people at the moment? Can you end this by ending it all. 

Canada's been having similar and terrible debates with terrible consequences. I think one of the great worries, especially with North American theologies of the self, is that the suffering, those who suffer are inherently less valuable because we are not the worker self. We're not the productive self. We're simply the the feeling and the limited and the precarious self. 

What really worries me, especially with some of these exit interview for people who apply for euthanasia in Canada, is is quotes like ‘It's not that I don't want to die it’s that I can't afford to live’, because so many of the things that relieve pain are frankly so expensive and so off insurance. Any discussion about pain and assisted suicide are also just always, at least in North American context, conversations about who is valuable and whose pain is insurable. 

I know that one of the major differences that I've had in my own life between a self that was in so much pain I could barely function to this version, is that I could pay for my own treatment. I feel overwhelming compassion for all those who feel like they will suffer without end because there are no social services to alleviate it.  

I've been in a situation where I'm so desperate to live that I have not fundamentally experienced despair that has a telos to it. I've experienced despair at times in which I feel my own helplessness.  

I had a lovely interview with Dr. Catherine Mannix. She developed a cognitive behavioural therapy therapeutic approach inside of palliative care in the NHS. And it was really it ended up being a way to talk about how do you experience control inside of that much suffering. Her books are about people who thought that they would want to die in that much pain. In these little case studies, I found her description to be so deeply Christian. What she was arguing was that even in the midst of deafening pain, that helping people find a small, soft place of narrow choice and meaning-making could reinfuse their lives with such purpose that otherwise our culture would erase.  I just wish that everybody that inside of our conversation about when pain is too much, had a little bit more of that place of gentle possibility. 

One of the phrases that that really struck me as I was reading your book is that ‘we are united by our fragility.’ The implications seem to be that that's actually what we have in common. The fact that we are fragile or incomplete, in your language from earlier on. It got me thinking about how that might change the way we think about each other and community and relationships, and maybe even church. What that difference would it make if we actually thought that was the centre of what we have in common, our fragility. Do you have any thoughts on that? 

At heart, I'm an anti-culture warrior. In this time of increasing binaries our democratic structures or any kind are fragile, especially in the United States, the big tent umbrellas of denominationally or otherwise. I do think it is important for us to sort of spiritually land on what we think makes us all deeply the same. I know that when I started down this path there was a lot of humiliation because I was treated as disposable by the healthcare industry. I was truly humbled by it. In suffering you are laid low and there's a little key in that that I found that I've never wanted to give up. IT is that the second I knew I suffering, I could see it so much more easily in other people.  And that I could know that a broken heart is an open heart. If you can keep that at the at the centre of of a story about our difference Ihave just found it easier, easier on Facebook, easier at family gatherings, just easier. We have a contingency that we're all grappling with, and we can't always see it on each other's faces. But if we know that we all are so worried that we're wearing a sweater and someone's going to pull a thread and then there we are, naked to the world. I think I know that it inculcates a deep feeling of humanity in me. 

There’s something about approaching another person with that thought of  I'm fragile and kind of so are you. Especially it's not that terrible if you see my fragility, and maybe I begin to look for the fragility and the other person, and that makes that person that much more approachable somehow, and a bit more human. This militates against the idea of going to everybody else and trying to  give to give out this image of being complete, and I've got everything sorted, and I know all the answers. The kind of image we try to present of ourselves.  

I think I think invulnerability is exhausting, and we could just cut ourselves some slack.

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