Article
Assisted dying
Care
Comment
Easter
5 min read

I know who will be most affected by legalising assisted dying

Contemplating lent revives hard memories and raises fresh fears.

Ryan is an ordained Priest in the Church of England, currently serving in south London. 

A close up of a forehead bearing an ash cross marked on it.
Ahna Ziegler on Unsplash.

“What’s that - a face tattoo?” 

These were the words of one person as I walked past them on the streets on a recent Wednesday, with the ashes of last year’s burnt palm-branches placed across my forehead in the shape of the cross.  

The cross has been a symbol of hope for over two millennia; that even in the most painful of circumstances, darkness does not have the final say, including in death.  

As a society, we don’t really talk about death that much. Margot Robbie’s Barbie was the quintessential party-pooper when she pondered: 

 “do you guys ever think about dying?”. 

It’s no fun to dwell on death and dying, and for many of us, we put it off as long as we can. That all changed last year with the introduction of the assisted dying bill into the Houses of Parliament. Our national attention was, for a rare moment, captured by death.  

As a parish priest, I’ve seen the finality of burying someone into the ground. I’ve seen the sadness in the eyes of those trying to grieve. 

The words of Ash Wednesday, which remind us that we are ‘but dust, and to dust we shall return’ are echoed in the famous words that the priest recites in those last moments of burial, ‘ashes to ashes, dust to dust’. In that moment, amongst the bereaved, there is no escaping the inevitability of death. It is the ultimate statistic, 1 in 1 die. 

Whilst death is of course universal and will affect us all, the impact of this assisted dying bill could have consequences for some of the most vulnerable in society.  

As I reflect on my time as a Priest in East London, this is not abstract theory, but something I lived with each day. I served amongst a hugely diverse, vibrant, community in one of the poorest parts of the city. As I try to picture some the people I’ve walked alongside, I know it is these lives that will be most affected.  

One of the reasons I have concerns about the bill is the prospect of these people being coerced into ending their own lives prematurely, by a world that has already told them their lives are of little value. There are already huge disparities in access to the current provision of palliative care at the end of life, particularly amongst people of colour, the disabled and the poor.  

Of the 500,000 people who die each year, 100,000 do not access the care they need. This number is skewed towards ethnic minorities and those who come from poorer backgrounds.  

There is much confusion and misinformation about what end-of-life care even is. Research conducted by Marie Curie shows that 1 in 5 people from an ethnic minority background believe Palliative Care is actually Euthanasia.  

We only need to look at what has happened around the world when the ‘right to die’ becomes a duty to die. Even with the best of intentions, other jurisdictions show us that safeguards rapidly deteriorate and those who are already vulnerable become even more so.  

I worry that the way in which this bill is being handled - rushed through, little time being given to properly chew over the profound consequences it may have - reflects the wider way we view death. 

By trying to provide a ‘choice’ for a certain group of people, the consequence will be taking away real choice from those who already have little. 

Yet we know that for those who do access it, palliative care can be hugely effective in improving their quality of life, and for some, they can even outlive their prognosis. During Ash Wednesday’s service, I met an elderly gentleman who was diagnosed with stage four pancreatic cancer in 2019. He was told he had five months to live. He described every day of his six-year survival since as a ‘miracle’, his eyes filled with evident joy.  

Such a blessing stands in stark contrast to the lonely final days of my 96-year-old great grandmother. She was suddenly taken ill during the Covid-19 pandemic and was frantically rushed to a hospital. Amidst the chaos, exasperated by the restrictions against seeing family that were in place at the time, I distinctly remember confused conversations about placing her in a care home for her final days. It was clear she needed a lot of specialist attention, more than our family could provide ourselves.  As she was discharged to stay with our aunt, she never did reach that care home, as she died at home. She was buried in our local cemetery, with our family watching on Zoom.  

My final memory of my great-grandmother will be the FaceTime call we shared when she was taken to hospital, with the poor data connection and shaky picture. I am so grateful for the few family members who were able to be by her side when she died, but I’ve often wondered whether she fully received the care she actually needed during those final days, in the way she needed it.  

What my great-grandmother didn’t have a lot of at the end of her life was time.  

That’s also true for this bill. Concerns have been raised that only five hours of debate were given to this Bill in the chamber, comparatively short for a change in the law of this magnitude.  

I worry that the way in which this bill is being handled- rushed through, little time being given to properly chew over the profound consequences it may have- reflects the wider way we view death.  

Do we view death - and indeed the dying- as something to be shoved to one side, not spoken about in the hopes we can avoid its impact? Or do we view death as an important moment to review who and what matters most in life?  

Perhaps for some, the fact that Christians devote a period of 40 days to dwell on death may be one of the mysteries of faith. However, perhaps it’s not such a bad idea after all.  Death may bring with it fear, grief and pain and so we tend to avoid it. But do we risk missing out on much more? As we head into Easter, the cross still serves as a powerful reminder that, especially in death, Hope can be found, that Good has triumphed over evil, and Light shines even in the darkest of places.  

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Article
Comment
Middle East
4 min read

The harsh reminder of our common humanity

Iran’s latest sanctions on protestors are a harsh reminder of the importance of diversity, solidarity and our common humanity, writes Krish Kandiah.

Krish is a social entrepreneur partnering across civil society, faith communities, government and philanthropy. He founded The Sanctuary Foundation.

A protester holds a red placard bearing the name and image of Mahsa Amini

It has been a year since the widespread protests across Iran sparked by the death of Mahsa Amini. The courageous 22-year-old was killed in prison for refusing to wear the hijab headscarf. To mark the anniversary of her death the Iranian government issued new legislation increasing the punishment to women who are deemed “inappropriately dressed” from a previous punishment of 10 days in prison to a maximum 10-year incarceration sentence.  

According to the World Economic Forum, Iran is ranked 140 out of 144 countries in the area of gender equality. Iran’s current leadership suppresses not just the clothing of women but their voices, skills, perspectives and decisions too. Women choosing to forego the hijab had previously been a way to peacefully push back on the inequality they are facing. This symbolism of resistance is now not only forbidden, but criminal. Even business owners who serve women who are not wearing the hijab are liable for prosecution under the new laws.  

As a father of three daughters, I find Iran’s new laws deeply disturbing.  I cannot even imagine the desperation of Amjad Amini, Mahsa’s father, who this week was put in prison in an attempt to short-circuit any protests of his daughter’s death. He faces not just the trauma of the state murder of his daughter, the risk to his own life and the inability to grieve in peace, but also the devastating consequence of her death on 49 million other women in Iran with the tightening of the very laws his daughter was protesting against.  

It could learn a lot from Jesus who went out of his way to welcome those that others looked down on. 

As a Christian I find these oppressive laws deeply troubling too. One of the most revolutionary marks of the Christian faith is that it recognises the absolute equality and intrinsic value of all human beings. No matter what our age or race or gender or sexuality or nationality or ability or immigration status or political persuasion or faith, all are made in the image of God. I believe it is therefore an essential element of my faith to speak up for the rights of my fellow human beings, particularly when they are being marginalised, tyrannised, dehumanised or disempowered.  

This means the oppression of Muslim women in the Middle East matters to me. Although we come from different cultures, live on different continents and hold different views about God and how to worship him, I believe we are connected by our common humanity.  

Sadly, our common humanity is not always recognised either by Christians or those outside of the church. The church in the UK has too often been guilty as charged for misogynist, homophobic and racist attitudes. It could learn a lot from Jesus who went out of his way to welcome those that others looked down on. He was not afraid to face criticism for spending time with those the religious folk of the time had traditionally mistreated. It is time for the church to follow his example and take a lead in treating everyone with compassion and in standing up for the basic human rights of women, those in the LGBT community, and those from other countries.  

Our common humanity is becoming overlooked too in our polarised world as it further divides over identity politics. There is a developing norm to focus less on the things that unite us and more on what differentiates us. Our latest culture wars are pitting women’s rights against trans rights, telling us that the rights of black people are opposed to the rights of white people, or that the rights of immigrants are at odds with the rights of settled passport-holders. But that is not the way things have to be or should be.  

I believe that the opposite is true: that the world can be better for all of us, that there is strength in solidarity, that diversity is genuinely good for everyone.  

This is why I recently turned up at a campaign calling for the rights of Afghan women and girls to be respected, why I publicly advocate for refugees and care-experienced young people, and why I insisted on greater representation of the LGBT community in my work with government. This is why I offer race and faith literacy training to government bodies, churches and businesses. This is why I have opened up my home to foster children and refugee families. This is why I set up my charity, Sanctuary Foundation, to advocate for those who do not feel safe in their own country. This is why I call the church to action and compassion for all whose rights have been taken away or are being eroded. This is why, in as far as it depends on me, I will champion equality for all.  

And this is why I will continue to be calling on the government to open safe and legal routes for all those who are being oppressed and persecuted in the countries where they live. I would like the government to offer our country as sanctuary to women from Iran whose lives are endangered, whose human rights are being denied. I would like our country to offer asylum and hospitality to those who have had to flee Iran after daring to challenge the brutality of the current regime. I would like our churches to lead the way in warmly welcoming all those from Iran and anywhere else who have never experienced unconditional love and acceptance.