The dying decision: choice, coercion and community

A Japanese drama about medical assistance in dying, Plan 75, reveals a lot about our relationlessness.

Sian Brookes

Sian Brookes is studying for a Doctorate at Aberdeen University. Her research focuses on developing a theological understanding of old age. She studied English and Theology at Cambridge University.

In a retirement home, a older person sings karaoke while the person behind waves a hand.

Chieko Baishô plays Michi.

Happinet.

“Being able to choose when my life will end provided me with peace of mind. With no feelings of doubt. She led a good life on her terms, people will say”.

In Chie Hayakawa’s 2023 dystopian drama Plan 75, these are the words of a silver-haired, wrinkled woman in a promotional video for the eponymous plan – a government scheme which offers all over 75-year-olds the option of a pain-free death at the time of their choosing.

And yet for Michi, an older lady toying with the decisions around Plan 75 it doesn’t really feel like it is her choice which matters at all. Whether it is the $1,000 grant offered as an incentive to die, the luxury amenities on offer at the Plan 75 facility promoted in leaflets and magazines, or the young person employed to gently guide the candidates towards their death (but whose real job it is to make sure they follow through with it), this is a world which has a clear agenda – to rid society of older people. Indeed, it is clear that this is a vision of a world which believes it is better for old people to die than to put financial burdens on the economy or their families, and this is a culture willing to subtly coerce individuals to accept and act on that belief.

Plan 75 reveals an interesting point at the heart of the MAID (Medical Assistance in Dying) debate. One of the primary reasons that MAID is so attractive is the ability to take back control of one’s life and death, yet what happens when that seeming control isn’t really within the individual’s own control at all? For Plan 75, what is marketed as giving control back to older people, is really just a twist on a more sinister political policy to pressure individuals to sacrifice their “burdensome” lives for the greater good. Of course, this is a common argument for rejection of assisted suicide. This is the dangerous ‘slippery slope’, where MAID begins as an option only for those who desperately need it to relieve intense physical suffering. Yet it quickly becomes a tool to remove people whose lives no longer seem worth living due to societal expectations and opinions, rather than any objective reality.

Do we ever truly choose to die totally independent of the expectations of those around us?

For many, this problem can be appeased through strict legal controls over MAID – as long as the powers that be are regulated, MAID is still OK. As long as it is the individual who maintains control over their own death (and not the state), the goal of personal autonomy is maintained and all is well. And yet this perspective fails to ask the question - is such control over our own death ever actually possible? Do we ever truly choose to die totally independent of the expectations of those around us? In a world which places so little value on old age, can older people really make choices unaffected by that (deeply flawed and inhumane) logic? And, indeed - the elephant in the room – no matter how much we try to control death, in the end is it not death that ultimately controls us? As fundamentally finite beings we can never escape it completely – it will always find us one way or another. Ultimately, we will all have to face the reality of death when it comes to us. Complete control and autonomy are never truly possible.

In light of this unveiling, the possibility that complete choice and autonomy around death isn’t really an attainable goal, what better options might we pursue?

Where previously we would find comfort and hope in being loved, known and held by others in our death, now all too often this isn’t the case.

One thing is clear in Plan 75, the isolation and loneliness of older people in a society that has rejected them is deeply problematic. The movie primarily follows the stories of Michi, who lives alone with no family and Yukio Okabe, an older man totally estranged from his remaining family. Both face life, and are facing death, alone. We live in a world where increasingly we are forced to face death alone. When our final days and hours rarely happen in the family home, surrounded by our loved ones, but in faceless institutions devoid of lifelong meaningful relationship the sense that we are no longer doing death together as a society is acute. Where previously we would find comfort and hope in being loved, known and held by others in our death, now all too often this isn’t the case.

At the same time, there is no doubt that our modern world is unceasingly committed to the ideal of individual personal agency and autonomy – “She led a good life on her terms”. As a myriad of philosophers and theologians have commented, belief in human autonomy has come to replace belief in God. And MAID is one area which reveals this to be the case most acutely. Where previously we would turn to God to find comfort in the face of our finitude, instead now we turn to ourselves – the last hope we find in the face of death is our individual ability to control it.

Death and health should be a corporate phenomenon – when one person is ill, all of society is ill.

The German theologian Eberhard Jüngel described death in this broken world as “the occurrence of complete relationlessness”. In fact, Jüngel suggests that as human beings we are first and foremost made up of our relationships – we are truly human not by how we self-define in isolation but how we relate – how we relate to the God who made us, and how we relate to other people. This need for relationship is found most acutely in the face of death. As Ashley Moyse points out in his book, Resourcing Hope for Ageing & Dying in a Broken World, death and health should be a corporate phenomenon – when one person is ill, all of society is ill. And so, as death increasingly becomes the journey of the individual – when we face death in isolation from others and in isolation from God no wonder we feel such a strong desire towards control, towards ending our lives prematurely, towards science to help us avoid any more pain than we can bear alone.

In Plan 75 we see glimmers of hope in the possibility of relationship. As Michi and Yukio find rare moments of human connection with a long-lost nephew, with a young person working for Plan 75, with another older person going through the same questions around mortality you can’t help but feel deeply uncomfortable with their choice to apply for the scheme. It is in the hints of love, physical touch, smiles exchanged, even a simple conversation shared between two people that suddenly MAID seems so disconnected with the hope that life still has to offer through relationship. Perhaps if we could imagine a world where death became no longer an occurrence of complete relationlessness, but a locus for relational dependence, for familial connection, for leaning on God and not ourselves, the need for MAID would feel a little less necessary. It would be a world with a little more hope.

Explainer

Culture

Film & TV

Identity

3 May 2024

5 min read

Adapting Doctor Who: it's time for change

The fan debate on associating disability with evil lacks nuance.

Harry Gibbins

Harry Gibbins is a doctoral researcher at the University of Aberdeen. His PhD concerns the intersection between autism and Christian ministry.

Davros, an alien leader sits in the lower half of a Dalek.

Davros: leader of the Daleks.

In an interview with behind-the-scenes show Doctor Who Unleashed, returning showrunner Russel T Davies had this to say about how iconic Doctor Who baddie Davros was to be portrayed in a mini-episode produced for charity event Children in Need last year.

“We had long conversations about bringing Davros back, because he's a fantastic character, time and society and culture and taste has moved on. And there's a problem with the Davros of old in that he's a wheelchair user, who is evil. And I had problems with that. And a lot of us on the production team had problems with that, of associating disability with evil. And trust me, there's a very long tradition of this.”

He continues to explain that this led the production team to depict Davros differently. Gone is the facial scaring, the wheelchair, the robotic eye, and the mechanical hand. Now, as Davies explains, Davros is seen through a lens in which disability stops being a way of identifying evil.

“This is our lens, this is our eye. Things used to be black and white, they’re not black and white anymore, and Davros used to look like that and he looks like this now.”

Davies’ comments caused somewhat of a split online with some fans. On the one hand, Davies is continuing a tradition that can be traced back to his previous work on Doctor Who between 2005 and 2010. For example, he purposefully wrote Billie Piper’s character Rose Tyler as working class to cut against the gain of the prim-and-proper received pronunciation of previous companion characters. Perhaps Davies was tired of the limited scope of once again portraying the villain as disabled. Just as he didn’t want another female companion who lacked agency and depth, depiction of Davros as disabled simply wouldn’t fit with this modern incarnation of the show. On the other hand, in his comments, Davies seems to suggest that if this character ever appears again, he will not be disabled, even if it contradicts previous storylines, retroactively removing this part of the character as if it was never there to begin with.

Davros isn’t evil because he’s disabled, so why is Davies so hellbent on changing something that wasn’t an issue to begin with?

But is Davies’ efforts necessary? Reddit user u/Bowtie327 suggests that Davros’ disability isn’t important, “I can’t say I ever even drew a connection around Davros, being evil, and being disabled”, whilst another user u/PenguinHighGround claims that as a disabled person themselves they found him “weirdly inspiring, his (sic) goals are abhorrent, but he didn’t let his physical issues limit him”. X user @Dadros3 highlights how, as a wheelchair user, Davros has become a sort of science-fiction icon. He euphemistically states that “evil comes in all forms, all races, all genders, all abilities, and all disabilities. We cannot stand by and allow the cancellation of something for fear of offence that doesn’t exist”.

We are starting to see where the conversation heads; there are worries of by simply removing disability from the equation no effort is made to necessarily further the cause of disabled representation in media. Similarly, Davros isn’t evil because he’s disabled, so why is Davies so hellbent on changing something that wasn’t an issue to begin with? Whether it's that Davros’ disability wasn’t noticed by a majority able-bodied audience, or that his evil ideology has nothing to do with being disabled, Davros should stay put!

What becomes clear is that the changes made to depicting Davros is a product of the philosophy of change that is woven into the show’s DNA.

There’s a nuance that I believe has been missed by these arguments, a nuance that speaks to the philosophy that underpins what has led Doctor Who to last so long. I do not believe that Davies is suggesting that we pretend that harmful depictions of disabled people didn’t happen. Rather, this is a progression of a core part of Doctor Who.

Doctor Who encompasses change. Whether it’s the titular character’s face changing every few years, new story motifs coming and going, or even entirely new production teams, change is what keeps the Doctor Who machine whirring. It is clear that in this new era of the show that Davies is looking for a sort of fresh start. That is what keeps Doctor Who alive, and I think it’s what can make it such a great show. The ability to, despite its long history, still tell a new story. Times where I think the show has suffered has been when it has tried too hard to emulate what has come before.

This is a good opportunity to look back at how disability has been characterised in the media. It is good to sit with this tension even if we didn’t notice it and even if we don’t necessarily take offence. Interestingly, in the brief discussions Davies has had in the behind the scene footage he never mentions offence, nor does he want to attribute blame onto anyone for depicting a wheelchair user in such a way. Instead, he looks forward, just as we do as an audience. Forwards to opportunities to encapsulate the real lived experiences of disabled people, not only and narrowly looking at it as a way of identifying the baddie. Speaking to Doctor Who Magazine in 2022, casting director Andy Pryor stated that he is actually intentionally trying to cast more disabled actors claiming that “If you can’t cast diversely on Doctor Who, what show can you do it on?”. This is even reflected in the set design, with the TARDIS now being completely wheelchair accessible. What becomes clear is that the changes made to depicting Davros is a product of the philosophy of change that is woven into the show’s DNA.

The original 1975 story ‘Genesis of the Daleks’, in which Davros first appears, is still available to watch on BBC iPlayer; no attempt has been made to alter the original to remove the problematic depiction of disability. These stories are still there for us to watch and learn from, not to pave over and pretend they didn’t happen. Perhaps this means Davies and the rest of the production team at Bad Wolf will be cautious about featuring Davros again. What we can say is that Doctor Who is a unique icon in the television space in the way it demonstrates how we respond to change.