Autism and belief: beyond the stereotypes

Reflect on living with the illogical beauty of feeling hemmed in by faith.

Henna Cundill

Henna is a researcher with the Centre for Autism and Theology at the University of Aberdeen.

A theatrical set door stands in the middle of a snowploughed road between fields of snow under a blue sky.

Photo by Zach Vessels on Unsplash.

Do autistic people believe in God? Can they? The stereotype says no. The stereotype says that autistic people have a preference for all things logical, scientific and systematic, and therefore God, accessed only through the medium of metaphor and subjective experience, must be beyond the autistic ken.

But we all know about stereotypes – they rarely serve us well. As it turns out that there are quite a few autistic people in churches, worshipping a God in whom they supposedly cannot believe. In fact, at the Centre for Autism and Theology (based at the University of Aberdeen) we have whole programme of research dedicated to understanding what it means to be an autistic person of faith.

It is not only true that autistic people can and do believe in God (some, anyway), but also autistic Christians can teach the rest of us a thing or two about the assumptions we make when it comes to why people live a life of faith. For example, if we assume that anyone with a preference for all things logical, scientific, and systematic is not going to believe in God, then we are also assuming that that faith is some kind of considered, intellectual choice; a conscious decision that Christians have made on how to approach the world and the experience of living in it.

But is faith really a choice? For many centuries the church was mired in this very argument about free will versus predestination. The matter never really got settled, indeed some theologians still earn their bread and butter by carrying the discussion on. Meanwhile, here in the academic cheap seats (so called ‘practical’ theology) we ask a different question: not do people have free will to choose the Christian faith, but do people feel like they have free will to choose the Christian faith? And what difference does this feeling make?

If I reflect on my own life as a Christian, I know there have been times when I’ve stumbled into prayer, angry or in despair (often both), feeling as if I don’t like my faith all that much. Or that maybe that God just doesn’t like me. More than once I’ve prayed, “I’m going to keep following you, God, no matter how hard you make this!” Is this great faith, or just sheer bloody-mindedness? I like to believe that I can walk away from practicing my faith, but can I really walk away from having it?

My research with the centre for autism and theology has been an education in how to live with the illogical beauty of feeling hemmed in by faith.

At one point in the Old Testament a psalm-writer speaks of feeling “hemmed in” by God. This resonates. My life is a patchwork quilt of being faithful to the Christian call, but also unfaithful, reluctantly faithful, faithful in public but, frankly, a bit iffy in private… yet every time I get to the very edge, somehow God is there. I cannot rationally explain God’s persistence in always catching me before I fall into utter, irrevocable faithlessness. It is certainly not logical. It is most certainly beyond my ken.

My research with the centre for autism and theology has been an education in how to live with the illogical beauty of feeling hemmed in by faith. Autistic Christians have taught me so much in the way that many of them persist in attending church, even when it is being stated or implied, not only by their non-Christian acquaintances but also by other churchgoers, that they are simply not meant to be there. Some have wandered from church to church and from denomination to denomination, trying to find acceptance and welcome. As one autistic young woman put it:

‘Going to church is just part of what Sunday is… [but] a lot of spiritual life is just up in the air and me working things out.’

When the purpose is counting bums-on-seats, research does tend to show that autistic people are more likely to be atheists. At the same time research also tends to show that socialisation is a big factor in the formation of faith. Perhaps it is little wonder then, that a group who often find themselves excluded socially are less likely to nurture and develop a faith. But then again, how do we explain a whole cohort of people who still have their bums on the Sunday seats and their hearts engaged in worship? Autistic people can and (some) do believe in God, and they keep engaging with church, working things out. Is this great faith, or sheer bloody-mindedness? At any rate such resilience is certainly not logical or rational, but perhaps it is just another thing that is beyond my ken.

Article

Assisted dying

Death & life

14 November 2023

4 min read

Behind the data: the social messages physician assisted suicide sends to the autistic

If intense suffering caused by society drives autistic people to seek assisted death, then society has failed.

Henna Cundill

Henna is a researcher with the Centre for Autism and Theology at the University of Aberdeen.

A hand rest gently on another outstretched hand.

Alexander Grey on Unsplash.

Statistically speaking, autistic people are far more likely to die by suicide than non-autistic people. They are also, statistically speaking, far more likely to die by physician assisted suicide than non-autistic people, in countries where this is allowed.

For example, in a study of 927 people who sought physician assisted suicide in the Netherlands (where this is legal) 39 of them were autistic. That’s about four per cent, but the prevalence of diagnosed autism in the Netherlands is only one to two per cent. The researchers go on to note that 21 per cent of these 39 people cite autism or intellectual disability as the “sole cause of suffering” that had prompted them to request assistance to die.

I don’t like speaking statistically. For a start, 21 per cent of 39 people is 8.19 people, which raises obvious questions. A little digging reveals that what the researchers mean really is eight people. Eight people with eight unique stories that include an account of autistic suffering so intense that they asked for help to end their lives.

But we do not have those stories, not really. Included in the report are carefully anonymised excerpts from the physicians’ notes, and this is the nearest that we can get.

‘The patient suffered from his inability to participate in society [ … ] [He] was not able to live among people, because he was easily overstimulated. This made him isolated’ (2019 (22), male, 70s, ASD)

‘The patient had felt unhappy since childhood and was persistently bullied because he was just a bit different from others [ … ] [He] longed for social contacts but was unable to connect with others. This reinforced his sense of loneliness. The consequences of his autism were unbearable for him [ … ] The prospect of having to live on in this way for years was an abomination to him and he could not bear it’ (2021 (26), male, 20s, ASD)

The debate about legalising physician assisted suicide in the UK is ongoing, and the British Medical Association have provided a helpful guidance document which sets out the main arguments, both for and against, without making a recommendation either way. In the document, they observe that the reasons people ask for assisted suicide are predominantly personal and social, not clinical, and also that “laws send social messages.” I agree that laws do that, and I also think that those seeking assisted suicide send social messages too.

For example, even just from these two tiny excerpts, I hear that a life worth living is one where people can participate in society and have social contacts, even if they are a “just a bit different from others.” It would be good to hear more. It would be good to sit down over a cup of coffee with each of these two men and ask them all my questions about their lived wisdom when it comes to autism.

I could ask “2019 (22), male, 70s, ASD”:

What causes the overstimulation - are there places where you don’t feel that?

Can we create more such places for autistic people to socialise?

And I could ask “2021 (26), male, 20s, ASD”:

What makes you feel different?

What kind of social contacts and connections do you think that you are looking for?

But of course, I can’t do that, because these two men have been assisted to die.

The word ‘welcome’ is striking to me here. What does it mean to welcome someone, not to merely include or tolerate, but to really welcome someone.

When approached for comment, autistic theologian Claire Williams said:

‘There is something of a personal and social tragedy reflected in these cases. If we understand that much of the difficulty that autistic people suffer is caused by society – as per the neurodiversity paradigm – then it is the case that these two nameless men were failed by society. They felt that their lives could not find a place in an unwelcoming world. It is, of course, their choice to end their lives but I do also think that God chose to start their lives and finds them to be infinitely valuable. They were both made in God’s image and reflect something of it. That they felt there isn’t a place for them that is suitable is a tragedy because society should do better to welcome them.’

The word ‘welcome’ is striking to me here. What does it mean to welcome someone, not to merely include or tolerate, but to really welcome someone, even if they seem ‘a little bit different from others’? Dr Léon van Ommen, another theologian who writes about autism, suggests that it is a matter of making oneself and one’s resources fully available to that person, to the point where they feel that you belong to them. This is not to promote relationships with unhealthy power dynamics, but to highlight that when a person feels truly welcomed by another, they feel the opposite of owing a debt or being a burden – they feel they are of value, that you would be lacking something without them.

I feel we are lacking something without you, “2019 (22), male, 70s, ASD”. And I feel we are lacking something without you, “2021 (26), male, 20s, ASD”. Not to forget the 37 others who are a little like you. We can pause to reflect on the social messages that you have sent, what you are teaching all of us about what it means to live a “good” life. But I am sorry that you have all died now and we cannot hear more.

Whether people in the UK should be able to choose physician assisted suicide, I, personally, am not yet sure. Like the BMA, I see and respect the very good arguments both for and against. But eight people have chosen physician assisted suicide due to autism or intellectual disability, and when it comes to the social messages that sends, I feel compelled to sit down and listen.