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Assisted dying's language points to all our futures

Translating ‘lethal injection’ from Dutch releases the strange power of words.
A vial and syringe lie on a blue backdrop.
Markus Spiske on Unsplash.

In the coming weeks and months, MPs at Westminster will debate a draft bill which proposes a change in the law with regards to assisted dying in the UK. They will scrutinise every word of that bill. Language matters. 

Reading the coverage, with a particular interest in how such changes to the law have been operationalised in other countries, I was struck to discover that the term in Dutch for dying by means of a fatal injection of drugs is “de verlossende injectie.” This, when put through the rather clunky hands of Google translate, comes out literally as either “the redeeming injection” or “the releasing injection.” Of course, in English the term in more common parlance is “lethal injection”, which at first glance seems to carry neither of the possible Dutch meanings. But read on, and you will find out (as I did) that sometimes our words mean much more than we realise.   

Writing for Seen & Unseen readers, I explained a quirk of the brain that tricked them into thinking that the word car meant bicycle. Such is the mysterious world of neuroplasticity, but such also is the mysterious world of spoken language, where certain combinations of orally produced ‘sounds’ are designated to be ‘words’ which are assumed to be indicators of ‘meaning’. Such meanings are slippery things.  

This slipperiness has long been a preoccupation for philosophers of language. How do words come to indicate or delineate particular things? How come words can change their meanings? How is it that, if a friend tells you that they got hammered on Friday night, you instinctively know it had nothing to do with street violence or DIY? Why is it that in the eighteenth century it was a compliment to be called ‘silly’, but now it is an insult?  

Some words are so pregnant with possible meaning, they almost cease to have a meaning. What does “God” mean when you hear someone shout “Oh my God!”? Probably nothing at all, or very little. It is just a sound, surely? And yet no other sound has ever succeeded in fully replacing it. We are using the term “God”, as theologian Rowan Williams points out in his book The Edge of Words, as a “one-word folk poem” to refer to whatever we feel is out of our control.     

Both of these first two interpretations look at death, in some sense, ‘from the other side’ – evaluating the end of someone’s life in terms of speculation over what will happen next. 

This idea of an injection being verlossende seems to me to be the opposite. I find myself hearing it in four different (and not mutually exclusive) ways, each to do with taking control of this very uncertain question of dying. The first, releasing, sounds to me like an echo of the neo-platonic ideas that still infuse public consciousness about what it means to be dead. As we slimily carve our pumpkins for Halloween and the children clamour to cut eyeholes into perfectly good bedsheets, we see a demonstration of society’s latent belief that humans are made up of body and soul, and that at death the soul somehow leaves the body and floats into some unknown realm (or else remains, disembodied yet haunting). If we translate verlossende as releasing then we capture that idea – that of the soul, which longs to be at peace, trapped inside suffering, mortal flesh. 

Google’s second suggestion for verlossende was redeeming. This could be heard theologically. Christians believe in eternal life, that the death of this earthly body is only the start of something new – a life where there will be no crying or pain, and people will live forever in the glorious presence of God. In the bible, the apostle Paul encourages those who follow Christ to trust that they have been marked with a ‘seal’, meaning that they are like goods which have been purchased for a price, and that God will ‘redeem’ this purchase at the appointed time. Death, therefore, is not a fearful entering into the unknown, but a faithful entering into God’s promises.  

Both of these first two interpretations look at death, in some sense, ‘from the other side’ – evaluating the end of someone’s life in terms of speculation over what will happen next. But there is the view from this ‘side’ also. We do not need to speculate about what death means for some of those who experience acute suffering due to terminal illness, and who wish to hasten the end of their lives because of it. They too might want to speak of a releasing injection or a redeeming injection – given that both terms hint at the metaphor of life as a prison sentence. To be in prison is to have one’s rights and freedoms severely limited or entirely taken away. It is not uncommon to hear a sufferer refer to incapacitating illness as being ‘like a prison sentence’, and one can empathise with the desire to have the release date set, back within the sufferer’s control.  

This is the strange power and pregnancy of words – verlossende is able to carry all these meanings or none of them. Until I began researching this article, I had always assumed that the English term, lethal injection, simply meant an injection of some substance that is deadly. This is how the term is commonly understood, therefore, in a sense, this is its meaning. Yet, when I came to consider the possible origins of the word, I realised its likely etymology is from the Greek word lēthē, meaning ‘to forget’. In the Middle Ages, if something was lethal it caused not just death, but spiritual death, placing one beyond the prospect of everlasting life. By contrast, something could be fatal, meaning only that it brought one to one’s destiny or fate.  

With this in mind, as we try to speak clearly in the assisted dying debate, the term fatal injection might be a more precise way to describe this pathway to death that is in want of a name. After all, whether you believe in an afterlife or not, dying is everybody’s fate, and I can see that choosing to take control of one’s fate is, for anyone, an act of faith with regards to what comes next.  

  

This article was part-inspired by Theo Boer’s original article Euthanasia of young psychiatric patients cannot be carried out carefully enough, in Dutch newspaper Nederlands Dagblad.  Theo is a professor of health ethics at the Protestant Theology University, Utrecht. 

Read the original article in Dutch or an English translation below. Reproduced by permission.

 

 

Euthanasia of young psychiatric patients cannot be carried out carefully enough 

Theo Boer 

How is it possible to determine that patients who have suffered from psychiatric disorders for five or ten years and who are between the ages of 17 and 30 have ‘completed their treatment options’, wonders Theo Boer. It also conflicts with perhaps the most important task of psychiatrists: ‘offering hope.’  

The patients we are talking about now are not physically ill and therefore do not have the ‘comfort’ of an impending natural death. 

A letter was recently leaked in which leading psychiatrists ask the Public Prosecution Service to investigate the course of events surrounding euthanasia of young psychiatric patients.  

One death mentioned by name concerns seventeen-year-old Milou Verhoof, who received the redeeming injection from psychiatrist Menno Oosterhoff at the end of 2023. It will not have escaped many people's attention how much publicity the topic has received in the past year or so. Together with a colleague and a patient (who later also received euthanasia), Oosterhoff wrote the book Let me go.  

The tenor was: it is good that euthanasia is possible for this group of patients, the taboo must be removed, their suffering is often terrible, they have already had to undergo countless 'therapies' without effect - can one time be enough?  

Or would we rather have these patients end their lives in a gruesome way? And who really thinks that psychiatrists make hasty decisions when they decide to comply with a euthanasia request?  

To be clear: we are talking about something completely different than what has been called 'traditional euthanasia' for years: euthanasia for physically ill patients with a life expectancy of weeks or months. Given the excellent palliative care that has become available, such euthanasia will actually be less and less necessary in 2024.  

Panic  

No, the patients we are talking about now are panicky, anxious, confused, depressed, lonely, often unemployed, poorly housed, without prospects. But they are not physically ill and therefore do not have the 'comfort' of an impending natural death.  

I have heard several of them say: if only I were terminal, then euthanasia would not be necessary. The fact that there is now attention for this group of patients, with whom we in our hurried and solution-oriented society know so little how to deal, is a gain. At the same time, I am happy with the leaked letter. You can criticize Oosterhoff's procedural approach ('why not an ethical discussion instead of a legal one?'), the lack of collegiality, this perhaps underhanded action ('why did you go straight to the Public Prosecution Service?'). But in my opinion, the letter writers are definitely hitting the mark with this crooked stick. Firstly: how is it possible to determine that patients who have suffered from psychiatric disorders for five or ten years and who are between the ages of 17 and 30 have ‘completed their treatment options’ (a criterion from the Euthanasia Act)?  

Review Committee  

Nobody disputes that their suffering is unbearable. At the same time, I know from my time on a Regional Euthanasia Review Committee that an illness becomes unbearable when all hope is gone.  

A psychiatrist who gives euthanasia to a young adult is also undeniably sending the signal that, like his patient, he has given up all hope of improvement. That is actually risky, because even patients who have suffered for years sometimes recover and, moreover, our brains are not fully developed until we are 25. But it also conflicts with perhaps the most important task of psychiatrists: offering hope. In their training, the risk of transference-counter-transference is consistently pointed out: a patient takes his therapist with him into despair, the psychiatrist transfers those feelings to this and other patients: ‘this kind of suffering is untreatable and cannot be lived with’.  

In the recent NPO television documentary A Good Death we see an embrace between a psychiatrist and her emotional patient. In doing so, this psychiatrist offers a unique form of involvement. But does she provide sufficient resistance to the cynicism, despair and negative vision of the future that is also widespread outside psychiatry?  

Sensible decisions?  

That brings me to a second objection: is it sufficiently recognised how much a psychiatric illness can affect someone’s ability to make sensible decisions? The hallmark of many psychiatric illnesses is a deep desire to die and an inability to think about it in a relative way. As a result, many are unable to think in terms of a ‘possibly successful therapy’.  

Boudewijn Chabot 

The main character in the book Zelf heeft by Boudewijn Chabot, Netty Boomsma, responds to Chabot's suggestion that there might be a life after depression: 'Yes, but then I won't be it anymore.' She wants to go down with her depression. I know differences. The people with a death wish who remark about a possible therapy: ‘I hope it is not effective, because then I will have to go through it again.’ 

 Another hurdle 

If a second psychiatrist is consulted and, for example, suggests trying one or two more therapies, many patients see this as yet another hurdle on the road to euthanasia. They do not see it as a serious opportunity to be able to cope with life again. There are no easy answers here. Nor are pillories appropriate. But let euthanasia remain complicated here, and let us continue to look for hope. 

 

Reproduced by kind permission

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Politics
5 min read

A tents dispute about how to help the homeless

To house the homeless, argues Jon Kuhrt, silly soundbites and hasty policies need to be replaced with the right relationships and radical reform.

Jon Kuhrt is CEO of Hope into Action, a homelessness charity. He is a former government adviser on how faith groups address rough sleeping.

In an underpass a pedestrian passes and look at the tent of a homeless person.
Spielvogel, CC BY-SA 4.0, via Wikimedia Commons.

2011: London’s Westminster City Council proposes byelaws to ban rough sleeping and to prevent groups distributing food to people in need, known as ‘soup runs’, in the Victoria area.  

The proposals caused an almighty uproar from charities and community groups and demonstrations outside the council offices. In addition, both the London Mayor Boris Johnson, and the Conservative central government spoke out against the plans.  In the end the proposals were quietly withdrawn. 

At the time I was Director of the West London Mission, a homelessness charity based in Westminster. We worked closely with both churches and the council but we publicly disagreed with the plans because they were divisive, polarising and unworkable. 

‘Lifestyle choice’ 

2023: The Home Secretary, Suella Braverman, makes comments on social media about cracking down on rough sleepers who sleep in tents. Among other comments, Braverman said: 

"We cannot allow our streets to be taken over by rows of tents occupied by people, many of them from abroad, living on the streets as a lifestyle choice.”  

Again, Braverman’s comments have provoked an avalanche of criticism. In the middle of a housing and cost of living crisis, the accusation that people living in tents are simply making a ‘lifestyle choice' is rightly seen by many as simplistic, harsh and deeply unhelpful to addressing the serious issue of rough sleeping.  

Nothing represents UK poverty and exclusion with such visceral power as the sight of someone huddling in a doorway.  Therefore, to the average person, providing help to rough sleepers makes sense. Banning help appears harsh and inhumane. These are issues that need talking about carefully and compassionately. 

After 25 years of working for homeless charities, I worked for four years in the Government’s Rough Sleeping Initiative as an Adviser on how faith and community groups addressed homelessness. Building trust and cooperation between charities, churches and government was the key focus of my work.   

And probably the most sensitive of all issues is how the outdated ‘Vagrancy Act’ of 1824 could be replaced.  I know what frustration the Home Secretary’s ill-judged comments will cause to those in government working hard on reducing rough sleeping.  

Dangerous and insecure 

But whilst it’s right to condemn Braverman’s comments, we have to consider how we respond and not simply add to the unhelpful polarisation of these issues. The answer to anti-tent rhetoric is not to encourage people to give out more tents.  

It may sound obvious, but the key thing to focus on is the welfare of rough sleepers at the heart of this discussion. And that does not mean we endorse every form of help that is offered.  

The truth is that the rise in the use of cheap tents to sleep rough in is a genuine problem that local councils and charities have been struggling to address. They often create dangerous and insecure environments and can easily mask people’s serious declines in physical and mental health. 

Christian response 

A few years ago, I worked closely with All Saints Church in the centre of Northampton because they had 15 tents pitched in their churchyard.  The drug use, defecation and other behaviours of those living in the tents were genuinely anti-social and problematic.  Tensions with the council were rising and the vicar, Oliver Coss, was grappling with what the right Christian response was.  Of course, there was genuine housing need in the town but what was happening in his churchyard was no good for anyone. 

Through careful discussions, we brokered a plan of joint action between the church, the local authority and the key local charity. Those sleeping rough in the churchyard were given notice and were told the tents would be removed on a certain date but alongside this, interviews and offers of housing were made to everyone.  I have huge respect for the way Rev.Coss navigated these tricky waters with resolve and compassion.  He took heat, especially when the national press picked up the story but he steered a course which was genuinely best for all concerned. Theologically, his actions were the right blend of grace and truth

Relationship and trust 

Last winter I was involved in a similar way with an encampment in the park right behind my house in south London. It was causing serious concern to many local people due to the fires being lit, rubbish piling up and the vermin it attracted. I got to know almost all of the occupants of the camp as they attended a drop in meal I run at my church. The relationship and trust we developed helped me liaise between them and the council’s rough sleeping coordinator and this led to the camp being cleared and each of them offered temporary accommodation. 

Informed debate 

Rather than hasty policies or silly soundbites, we need a more honest and informed public discussion about rough sleeping.  Addressing homelessness is complex because it involves an interweaving of structural injustice and the personal challenges that individuals face. Simplistic comments may work well on social media, but they don’t help people in the real world.   

Enforcement is not the dirty word it is often made out to be – sometimes it is a vital ingredient in helping someone change their life.  But in order to work, it must always be accompanied by a valid offer of accommodation, a meaningful step off the streets. And for too many, especially non-UK nationals, no such step exists.  

Radical reform 

Housing should be the key issue in the next election. We need urgent and radical policy reform to build more social housing. Record numbers are housed in expensive temporary accommodation which is causing bankruptcy in some local authorities. Millions of pounds of public money has been wasted in housing people for years in hotels which could have been used so much more productively.  

We need more of the longer-term, community-based solutions to homelessness such as those pioneered by Hope into Action. We attract investment to buy houses which we turn into homes for people who have been homeless. In addition to professional support, each house is connected to a local church who provide friendship and community. 

People sleeping rough in tents is not a ‘lifestyle choice’. It is the visible tip of a vast homelessness iceberg in this country caused by relational poverty and chronic underinvestment in affordable housing.  And if we do not address the problems beneath the waterline, then we should not be surprised to see more tents appearing in our towns and parks.