Article
Assisted dying
Care
Comment
Politics
4 min read

Assisted dying is not a medical procedure; it is a social one

Another vote, and an age-related amendment, highlight the complex community of care.
Graffiti reads 'I miss me' with u crossed out under the 'mem'
Sidd Inban on Unsplash.

Scottish Parliament’s Assisted Dying bill will go to a stage one vote on Tuesday 13th May, with some amendments having been made in response to public and political consultation. This includes the age of eligibility, originally proposed as 16 years. In the new draft of the bill, those requesting assistance to die must be at least 18.  

MSPs have been given a free vote on this bill, which means they can follow their consciences. Clearly, amongst those who support it, there is a hope that raising the age threshold will calm the troubled consciences of some who are threatening to oppose. When asked if this age amendment was a response to weakening support, The Times reports that one “seasoned parliamentarian” (unnamed) agreed, and commented: 

“The age thing was always there to be traded, a tactical retreat.”  

The callousness of this language chills me. Whilst it is well known that politics is more of an art than a science, there are moments when our parliamentarians literally hold matters of life and death in their hands. How can someone speak of such matters as if they are bargaining chips or military manoeuvres? But my discomfort aside, there is a certain truth in what this unnamed strategist says.  

When Liam McArthur MSP was first proposed the bill, he already suggested that the age limit would be a point of debate, accepting that there were “persuasive” arguments for raising it to 18. Fortunately, McArthur’s language choices were more appropriate to the subject matter. “The rationale for opting for 16 was because of that being the age of capacity for making medical decisions,” he said, but at the same time he acknowledged that in other countries where similar assisted dying laws are already in operation, the age limit is typically 18.  

McArthur correctly observes that at 16 years old young people are considered legally competent to consent to medical procedures without needing the permission of a parent or guardian. But surely there is a difference, at a fundamental level, between consenting to a medical procedure that is designed to improve or extend one’s life and consenting to a medical procedure that will end it?  

Viewed philosophically, it would seem to me that Assisted Dying is actually not a medical procedure at all, but a social one. This claim is best illustrated by considering one of the key arguments given for protecting 16- and 17- year-olds from being allowed to make this decision, which is the risk of coercion. The adolescent brain is highly social; therefore, some argue, a young person might be particularly sensitive to the burden that their terminal illness is placing on loved ones. Or worse, socially motivated young people may be particularly vulnerable to pressure from exhausted care givers, applied subtly and behind closed doors.  

Whilst 16- and 17- year-olds are considered to have legal capacity, guidance for medical staff already indicates that under 18s should be strongly advised to seek parent or guardian advice before consenting to any decision that would have major consequences. Nothing gets more major than consenting to die, but sadly, some observe, we cannot be sure that a parent or guardian’s advice in that moment will be always in the young person’s best interests. All of this discussion implies that we know we are not asking young people to make just a medical decision that impacts their own body, but a social one that impacts multiple people in their wider networks.  

For me, this further raises the question of why 18 is even considered to be a suitable age threshold. If anything, the more ‘adult’ one gets, the more one realises one’s place in the world is part of a complex web of relationships with friends and family, in which one is not the centre. Typically, the more we grow up, the more we respect our parents, because we begin to learn that other people’s care of us has come at a cost to themselves. This is bound to affect how we feel about needing other people’s care in the case of disabling and degenerative illness. Could it even be argued that the risk of feeling socially pressured to end one’s life early actually increases with age? Indeed, there is as much concern about this bill leaving the elderly vulnerable to coercion as there is for young people, not to mention disabled adults. As MSP Pam Duncan-Glancey (a wheelchair-user) observes, “Many people with disabilities feel that they don’t get the right to live, never mind the right to die.” 

There is just a fundamental flawed logic to equating Assisted Dying with a medical procedure; one is about the mode of one’s existence in this world, but the other is about the very fact of it. The more we grow, the more we learn that we exist in communities – communities in which sometimes we are the care giver and sometimes we are the cared for. The legalisation of Assisted Dying will impact our communities in ways which cannot be undone, but none of that is accounted for if Assisted Dying is construed as nothing more than a medical choice.  

As our parliamentarians prepare to vote, I pray that they really will listen to their consciences. This is one of those moments when our elected leaders literally hold matters of life and death in their hands. Now is not the time for ‘tactical’ moves that might simply sweep the cared-for off of the table, like so many discarded bargaining chips. As MSPs consider making this very fundamental change to the way our communities in Scotland are constituted, they are not debating over the mode of the cared-for’s existence, they are debating their very right to it.   

Snippet
Care
Comment
Community
Mental Health
2 min read

Who holds the vital ingredient as healthcare shifts from hospital to community?

The trusted anchor institutions that can provide pastoral care and more.

Esther works as a Senior Consultant for the Good Faith Partnership. She sits in the secretariat for the ChurchWorks Commission.

A social prescribing project in full swing.
A social prescribing project in full swing.
Theos.

On 11 November, the Good Faith Partnership, the National Academy of Social Prescribing (NASP) and the Bishop of London convened a roundtable discussion in the House of Lords to call for a collaborative relationship between faith groups and NHS social prescribing providers. 

Faith leaders from the major religions in the UK gathered alongside senior officials such as from the Department for Health and Social Care, NHS England and arm’s length bodies.  

‘There are lots of exciting opportunities with a new government in place,’ said Charlotte Osborn-Forde, CEO of NASP, adding that as part of her desire to see social prescribing available in NHS services beyond GP surgeries ‘there are huge and untapped assets in communities.’  

Marianne Rozario from Theos, the lead researcher on a groundbreaking new report on faith and social prescribing, elaborated, saying that faith groups are trusted anchor institutions in local communities that are well networked, offer resources in the form of buildings and volunteers, and have expertise in pastoral and spiritual care.  

Mark Joannides, Deputy Director for Community Health in the Department of Health and Social Care, added that: ‘Faith groups are going to have to be part of this,’ when referring to the government’s health mission and the three big shifts from hospital to community, analogue to digital, and sickness to prevention.  

The conversation focused on how this integration could take place, particularly through securing shared investment funds for faith groups, co-locating healthcare services into faith buildings, and integrating faith groups into the NHS 10-year healthcare plan. 

A range of ideas were shared by those present including the importance of investing in faith groups to provide palliative care, focusing on reducing health inequalities, and investing in local infrastructure.  

On 30 January, Good Faith Partnership and Theos will publish the first ever report into the role of faith communities in the social prescribing system. This timely report collates research into the role of faith groups in social prescribing and aims to facilitate further discussion on how collaboration between faith groups and the NHS can support the needs of the most vulnerable in our society. Alongside the report, two ‘How To’ guides will be published, providing faith leaders and social prescribing link workers with a step-by-step process for building relationships with one another.  

To hear more about the research recommendations, explore next steps and to access the practical ‘how-to’ guides register for a free hour-long webinar on 30 January using this link: 

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